The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has just reached 1,000 followers on Twitter. This social media milestone is the perfect opportunity to take a moment and thank all of you who follow us (@Bioethicsgov), read our blog (blog.bioethics.gov), take part in our webinars (Bioethicsgov) access and use our educational materials (bioethics.gov/education), attend our meetings, provide comments on any of our projects, and otherwise engage with us in what Edmund Pellegrino called “doing ethics in the public square.”
Advances in biomedical research and related areas of science and technology can create a range of ethical dilemmas, and the President established our commission to advise him and his administration as the country navigates the challenging questions that arise. For example: Can the U.S. government ethically conduct pediatric research on medical countermeasures, like an anthrax vaccine? Our nation must protect children enrolled in research studies while also doing its best to develop the knowledge needed to save children’s lives during a possible emergency. Another example: How do we protect individual privacy but share highly personal genomic and neuroscientific data widely enough in order to make important scientific progress?
The Bioethics Commission seeks to identify and promote policies and practices that ensure scientific research, health care delivery, and technological innovation are conducted in a socially and ethically responsible manner. We report to the President, but our work is not for the President’s eyes only – far from it. We are fully transparent and conduct our meetings and deliberations in public. In so doing, we help educate the nation on bioethical issues. But that is just part of how we engage in public bioethics.
To engage the community, our public meetings are held at various sites nationwide, webcast live, and bring our members and a wide variety of subject-matter experts together for information sharing and open deliberation. These sessions play an integral role in shaping our final reports and recommendations.
Comments from the public also play an important role in our deliberations. Through the Federal Register we call for comments related to each of our projects; and we encourage comments at any time through firstname.lastname@example.org. All comments are reviewed and logged, including those written and submitted during each of our public meetings; they are just part of a process that ensures a variety of perspectives are included during our deliberations.
Social media, such as Twitter, seemed a natural next step as we continue to explore what public bioethics is and can become. This commission is proud to be the first U.S. Bioethics Commission to engage the public via Twitter. For more about how this commission works, we hope you will watch this video.
And thanks again for following us on Twitter! Proud to be 1,000 strong.