|Lead author Alex Kon|
They endorse six recommendations:
- Shared decision making is a collaborative process that allows patients, or their surrogates, and clinicians to make healthcare decisions together, taking into account the best scientific evidence available, as well as the patient’s values, goals, and preferences.
- Clinicians should engage in a shared decision making process to define overall goals of care (including decisions regarding limiting or withdrawing life-prolonging interventions) and when making major treatment decisions that may be affected by personal values, goals, and preferences.
- Clinicians should use as their “default” approach a shared decision making process that includes three main elements: information exchange, deliberation, and making a treatment decision.
- A wide range of decision-making approaches are ethically supportable, including patient- or surrogate-directed and clinician-directed models. Clinicians should tailor the decisionmaking process based on the preferences of the patient or surrogate.
- Clinicians should be trained in communication skills.
- Research is needed to evaluate decision-making strategies.
by Keisha Ray, Ph.D.
This past week I attended the annual American Society of Bioethics and Humanities (ASBH) meeting in Houston, Texas. One of my favorite ASBH activities is seeing members who I consider mentors and members who are I consider to be informal mentors. While at the conference I reflected on the value of mentorship. I reflected on my luck in finding really great mentors who are active leaders in the bioethics community, great professors to their students, and mentors who have always been encouraging and helpful to me in my budding career in bioethics. But it is not lost on me that only a few of my mentors look like me.…
by Craig Klugman, Ph.D.
Julianna Snow is a 5-year-old who suffers from Charcot-Marie-Tooth disease, a neurodegenerative illness. This is the most common of all inherited neurological disorders (about 1 in 2,500 people have it). The disease usually is noticed in adolescence or early adulthood. For Julianna, the disease affects not only movement but swallowing and breathing. She is subjected to NT suctioning every few hours to remove the mucus that accumulates. Her decline was rapid and severe. Michelle and Steve Snow have written extensive blogs about their experiences and conversations.
Julianna’s prognosis is not good. Her parents sat her down and explained that heaven is “where she’ll be able to run and play and eat, none of which she can do now.…
The exhibition encourages you to consider ethical issues, different attitudes to death and how different cultures have dealt with the end of life. As a society we are reluctant to talk about death and dying. death: the human experience is about helping to start that conversation.