The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has posted a new educational module on its website, Bioethics.gov. This module on privacy focuses on the Bioethics Commission’s work in Ethics and Ebola: Public Health Planning and Response (Ethics and Ebola). This new privacy module on Ethics and Ebola adds to the privacy resources already produced by the Bioethics Commission. Additional materials on privacy include a background module and a module that accompanies the Bioethics Commission’s report Privacy and Progress in Whole Genome Sequencing. Other topics covered by the Bioethics Commission’s educational modules include community engagement, compensation for research-related injury, informed consent, research design, and vulnerable populations.
The Privacy in Ethics and Ebola module briefly introduces the concept of privacy as it relates to the collection, use, and sharing of biospecimens during public health emergencies; sets forth the ethical principles that guide consideration of the privacy issues raised by the collection, use, and sharing of biospecimens during public health emergencies; and describes the privacy protections, including anonymization and de-identification, available for biospecimens that are collected, used, and shared.
The educational modules produced by the Bioethics Commission are based on the contemporary ethical issues addressed by the Commission, and are designed to provide instructors with foundational information, ethical analysis, discussion questions, problem-based learning scenarios, exercises, and additional resources to support ethics education and the integration of bioethical analysis into coursework across disciplines.