Join me at the 10th International Shared Decision Making Conference in Quebec City, Canada, from July 7-10 2019.
This conference is a unique chance to discuss best strategies for involving patients in shared decision-making research so that it better reflects their knowledge, priorities, and needs.
#Bioethics News: U.S. Senator Bernie Sanders sent a letter to Catalyst Pharmaceuticals last Monday asking it to justify its decision to charge $375,000 annually for a medication that for years has been available to patients for free. Read more here - https://t.co/hius07VGrP
#Bioethics News: The average person would spend 76 working days reading all of the digital privacy policies they agree to in the span of a year... If no one reads the terms and conditions, how can they continue to be the legal backbone of the internet? https://t.co/E2dEPbrmBx
#Bioethics News: A decision by #FamilyTreeDNA, a prominent consumer DNA-testing company, to share data with federal law enforcement means investigators have access to genetic information linked to hundreds of millions of people https://t.co/ohnSsWcbdL
#Bioethics News: “FDA-approved” does not mean “clinically useful.” #23andMe relies on simpler technology than tests at your doctor’s office. As a result, the company’s tests can't tell you much about your actual risk of developing the diseases in question https://t.co/u0zn6d9nwq
#Bioethics News: Chinese Bioethicists Respond to the Case of He Jiankui - the scientist who created the world’s first gene-edited babies. See more at @hastingscenter here - https://t.co/xv8xDQ3rQK
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