African Americans still can’t get over the Tuskegee Experiment.
Four decades after the infamous study on syphilis’ impact on black men ended in rural Alabama, mistrust of medical science resonates in the lack of African American participant…
Blog.
06/07/2013
Accord Aims to Create Trove of Genetic Data
[NYTimes] More than 70 medical, research and advocacy organizations active in 41 countries and including the National Institutes of Health announced Wednesday that they had agreed to create an organized way to share genetic and clinical information. Th…
The war of 1812 was sometimes called “Madison’s war” by those who opposed the President’s call for military action against Great Britain. A whole slew of grievances was building up between the two countries, especially with Britain’s bullying…
Last week’s New England Journal of Medicine (you can see I’m a bit behind in my journal reading) featured three “perspectives” on the Sunshine Act that became law as part of the Affordable Care Act of 2010:http://www.nejm.org/doi/full/10.1056/NEJMp1302…
06/06/2013
Lung Transplants and the Bandwagon Bioethics
by Craig Klugman, Ph.D.
In case you have not heard, the big bioethics story this week comes out of Philadelphia where a 10-year-old girl with cystic fibrosis is in need of a lung transplant to survive. Sarah M has been on the transplant list for a while but her chances of getting a lung are slim. According to United Network for Organ Sharing (UNOS) rules, children under 12 can only get lungs from child donors and can only be offered adult lungs after all potential adult donors have been approached. The problem is that there are very few children donating lungs.…
06/06/2013
Big Data: Will It Work in Healthcare?
I was recently struck by two news headlines that hit my email inbox on the same day: “Most Doctors Don’t Meet U.S. Push for Electronic Records” and “Sebelius touts new emphasis on healthcare data“. Do you see the problem here?…
[New York Times] Government officials, drug companies and medical experts, faced with outbreaks of antibiotic-resistant “superbugs,” are pushing to speed up the approval of new antibiotics, a move that is raising safety concerns among some critics….
[Here and Now] A critically ill 10-year-old girl in Pennsylvania in the final stages of lung failure is not expected to live through the weekend without a double lung transplant.
Sarah Murnaghan is on the top of the pediatric transplant list — and ha…
I have developed a number of threads on this blog presenting and discussing issues that deal with the disabled person such as the following:”Thinking and Writing about the Disabled:Courageous or Burdened” “Eugenics,“Feeblemindedness” and the “Dro…
I have developed a number of threads on this blog presenting and discussing issues that deal with the disabled person such as the following:”Thinking and Writing about the Disabled:Courageous or Burdened” “Eugenics,“Feeblemindedness” and the “Dro…