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It's Time to Reframe the Savior Sibling Debate
Kimberly A. Strong, Chris F. Jordens, Ian H. Kerridge, John Miles Little & Rachel A. Ankeny

The creation of savior siblings has been the subject of intense ethical debate over the past decade. While ethical concerns might provide clinicians with valid reasons for not providing these clinical services, we suggest that it is more difficult to make a case for physicians not disclosing to the parents of sick children under their care the option of creating a savior sibling. We “test” the...

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Physician-Researchers’ Experiences of the Consent Process in the Sociocultural Context of a Developing Country
Aisha Y. Malik

Background: International guidelines for medical research involving human subjects maintain the primacy of informed consent while recognizing cultural diversity. Methods: This article draws on empirical data obtained from interviews with physician-researchers in teaching hospitals of Lahore, Pakistan, to identify social and cultural factors that affect the consent process for participants in res...

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Potential Workplace Discrimination Based on Genetic Predisposition: Views of Workers
Laura Weiss Roberts, Liliana Kalogjera Barry & Teddy D. Warner

Background: The authors sought to better understand attitudes of employees at two settings in which occupational exposures may occur regarding their preferences for disclosure of genetic and nongenetic health information and the potential for discrimination by coworkers, lower performance review, and failure to be promoted on the basis of genetic information. Methods: A new, anonymous 168-quest...

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The Brazilian Ethics Research Review System: An Evaluation from the Perspectives of Institutional Review Boards
Silvana Ferreira Bento, Ellen Hardy, Eliana Maria Hebling, Karla Simônia de Pádua & Maria José Duarte Osis

Background: In Brazil, all studies involving human beings must be evaluated by an institutional review board (IRB) registered with the National Commission for Ethics in Research (CONEP), the entity responsible for coordinating all IRBs in the country. Methods: In 2007, a broad quantitative evaluation of Brazilian IRBs was carried out, followed by a qualitative component conducted using a semistr...

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