External Link - Source: Genomeweb
A study underway at Boston Children’s Hospital is investigating how the preferences of parents can inform a choice-driven and ethical system for returning secondary findings of genomic sequencing studies of young children. The project, led by Boston Children’s’ Ingrid Holm, is combining a series of cognitive interviews — to better understand subjects’ preferences and decision making in choosing what results to receive from their children’s sequencing data—with a study tracking the experiences of families who actually go through the process of receiving results.