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Bioethics news.

Trump Administration Files Formal Request to Strike Down All of Obamacare
The Trump administration formally declared its opposition to the entire Affordable Care Act on Wednesday, arguing in a federal appeals court filing that the signature Obama-era legislation was unconstitutional and should be struck down.
F.D.A. Won’t Ban Sales of Textured Breast Implants Linked to Cancer
A type of breast implant linked to a rare cancer can still be sold in the United States, even though it has been banned in many other countries, the Food and Drug Administration said on Thursday.
Top Executives of Insys, an Opioid Company, Are Found Guilty of Racketeering
A federal jury on Thursday found the top executives of Insys Therapeutics, a company that sold a fentanyl-based painkiller, guilty of racketeering charges in a rare criminal prosecution that blamed corporate officials for contributing to the nation’s opioid epidemic.
F.D.A. Approves the First Vaccine for Dengue Fever, but Limits Its Use
The Food and Drug Administration has approved the first vaccine for dengue, Dengvaxia, but placed significant restrictions on its use because the vaccine has been shown to put some people at heightened risk for a severe form of the disease.
Drug Agency Calls for Strong Warning Labels on Popular Sleep Aids
Federal health regulators announced on Tuesday that they would require manufacturers of sleeping pills such as Ambien and related drugs to post strongly worded warnings in boxes on labels and patient guides. The Food and Drug Administration, in what it called a safety announcement, noted that the drugs’ side effects included risky behaviors, such as sleepwalking and...
‘I want out of this body’: I can’t move, talk or breathe on my own. But I’m still in there thinking, remembering my old life.
What is it like to be locked into your body, to be alive but not living? I’m dying — fast. My lungs are at 20 percent of vital capacity and it’s a matter of time before the nerves supplying my breathing muscles degenerate. I have a rapid form of ALS — amyotrophic lateral sclerosis, or Lou Gehrig’s disease.
Hospitals, patients sue to block new liver transplant rules
A group of patients waiting for liver transplants and hospitals have filed suit to block new rules they contend will reduce their access to the life-sustaining organs by transferring hundreds to medical centers in large cities, where the demand is higher.
Sooner or Later Your Cousin’s DNA Is Going to Solve a Murder
The Golden State Killer case was just the start. Hundreds of cold cases are hot again thanks to a new genealogy technique. The price may be everyone’s genetic privacy.
Widespread Testing Begins on Malaria Vaccine That Is Only Partly Effective
With malaria deaths rebounding worldwide, a pilot program testing a new and fiercely debated malaria vaccine began on Tuesday in Malawi. Dr. Katherine O’Brien, the World Health Organization’s director of immunization, called the rollout “a historic moment in the fight against malaria,” and said the testing will soon expand to malarious regions of Ghana and Kenya. But...
Religious Objections to the Measles Vaccine? Get the Shots, Faith Leaders Say
The measles outbreak in the United States is now the largest since the disease was declared eliminated here 19 years ago. The return of this scourge has been driven by one factor in particular: misinformation, spread by vaccine critics, that scares parents into not immunizing their children.
In Washington, Juul Vows to Curb Youth Vaping. Its Lobbying in States Runs Counter to That Pledge.
For months, Juul Labs has had a clear, unwavering message for officials in Washington: The e-cigarette giant is committed to doing all it can to keep its hugely popular vaping products away from teenagers.
Scientists Create Speech From Brain Signals
Scientists are reporting that they have developed a virtual prosthetic voice, a system that decodes the brain’s vocal intentions and translates them into mostly understandable speech, with no need to move a muscle, even those in the mouth.
Senator McConnell, a Tobacco Ally, Supports Raising Age to Buy Cigarettes
Senator Mitch McConnell, long one of the tobacco industry’s loyal allies, said last Thursday that he would sponsor legislation to raise the minimum age to 21 for the purchase of tobacco and e-cigarettes.
‘I helped test a wonder drug – then I was denied it’
Because of rare illness, Louise Moorhouse is on a special diet of pills or foul-tasting shakes. There’s a drug that would allow her to eat like anyone else – she took it for three years during a clinical trial. But the NHS won’t pay for it, reports the BBC’s Deborah Cohen – and the drug company stopped giving...
Researchers restore some function to brains of dead pigs, raising potential for human applications
A new experiment has raised medical and ethical questions as serious as those surrounding human gene editing: A support system delivering artificial blood to pig brains prevented degradation of important neural functions, Yale researchers discovered.
Stanford Clears Professor of Helping With Gene-Edited Babies Experiment
Stanford University has cleared Stephen Quake, a bioengineering professor, of any wrongdoing in his interactions with a Chinese researcher who roiled the scientific world by creating the first gene-edited babies.
Parents of 3 NYC children face $1,000 penalty for violating measles order
New York City health officials issued summonses to parents of three children Thursday for failing to have their children vaccinated against measles, a violation of the city’s emergency ordermandating immunizations to control a surging outbreak.
Chinese scientists have put human brain genes in monkeys—and yes, they may be smarter
Scientists in southern China report that they’ve tried to narrow the evolutionary gap, creating several transgenic macaque monkeys with extra copies of a human gene suspected of playing a role in shaping human intelligence.
Dr. de Blasio’s timely prescription: He and his health officials are right to demand vaccinations in the throes of a measles outbreak
Measles has been much in the news lately, and rightly so. New York is one of the epicenters of a growing epidemic that poses a serious threat. There have been 285 confirmed cases since the outbreak began last fall; 21 of those led to hospitalizations, including five admissions to intensive care units.
As Ebola Cases Rise in Congo, the W.H.O. Declines to Issue Emergency Declaration
Despite a worsening Ebola epidemic in the Democratic Republic of Congo, the World Health Organization on Friday again decided not to declare the outbreak a global health emergency. While expressing “deep concern” about the number of increasing cases in parts of Congo, and the potential risk of the disease spreading to neighboring countries, 
Adopt a moratorium on heritable genome editing
We call for a global moratorium on all clinical uses of human germline editing — that is, changing heritable DNA (in sperm, eggs or embryos) to make genetically modified children. By ‘global moratorium’, we do not mean a permanent ban. Rather, we call for the establishment of an international framework in which nations, while retaining the right to make their...
Gene-Edited Babies: What a Chinese Scientist Told an American Mentor
When and where should scientists report controversial research ideas that colleagues share with them in confidence? Have scientists acted inappropriately if they provide conventional research advice to someone conducting an unorthodox experiment?
A new lawsuit involving Stanford and Sequoia Capital highlights fights to come over cell-free DNA testing
Publicly traded transplant diagnostics company called CareDx, along with Stanford University, sued another publicly traded genetic testing company, Natera, for patent infringement. Much appears to be at stake, and it all centers on cell-free DNA testing, a type of technology that has already been at the crux of numerous lawsuits and looks poised to play center stage again in...
A.I. Is Changing Insurance
See the latest NYTimes piece about the way that artificial intelligence is changing the health insurance industry
CRISPR yields new potential “bubble boy” gene therapy
About 1 in 50,000 baby boys are born with no immune cells — they have no way to molecularly protect themselves. The disease, called X-linked severe combined immunodeficiency, or SCID-X1, is more commonly known as the “bubble boy” disease because if babies born with SCID-X1 are not secluded in a hygienic “bubble,” they could contract an infection and die. Now,...
Years after an experimental stem cell therapy blinded patients, the FDA is still trying to stop it
The Food and Drug Administration promised yesterday to heighten oversight of providers of experimental stem cell treatments, as a Post report detailed the agency’s slow response to a leading stem cell company whose treatments blinded some patients.
The Kids Who Are Cleared to Leave Psychiatric Hospitals—But Can’t
Every year, the state of Illinois struggles to find a place for hundreds of children with serious mental-health issues—holding them in psychiatric hospitals for sometimes weeks or months even after they’re cleared for discharge.
THE $3 MILLION RESEARCH BREAKDOWN: The University of Illinois at Chicago’s Troubling Study
The University of Illinois at Chicago’s acclaimed child psychiatrist Mani Pavuluri put vulnerable children at serious risk in one of her clinical trials by testing the powerful drug lithium on children younger than 13 — violating research rules, failing to properly alert parents of the study’s risks and falsifying data to cover up the misconduct.
Top Official at Memorial Sloan Kettering Resigns After Failing to Disclose Industry Ties
Dr. José Baselga, the hospital’s chief medical officer, stepped down days after a report by ProPublica and the New York Times that he failed to disclose millions of dollars in payments from the health care and drug industry in research articles.