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08/05/2019

With $2.1 million price tag, families fight to get lifesaving drug for babies covered

External Link - Source: NBC News

When the Food and Drug Administration approved Zolgensma, a lifesaving medication to treat spinal muscular atrophy, parents of young children with the rare and fatal disease rejoiced.

But that relief was quickly tempered by the price tag: $2.1 million — the most expensive ever for a single dose of a drug.

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