Tag: Genetic Testing and Privacy Issues

Blog Posts (8)

May 14, 2013

Angelina Jolie’s mastectomy account raises awareness of gene testing

[The Guardian] It was an extraordinarily public declaration of an incredibly private experience. But when Angelina Jolie took to the comment pages of the New York Times to declare that she had undergone a double mastectomy, she spearheaded a new awaren...
May 8, 2013

IVF Parents Lose $10m Wrongful Birth Case, Hit With Legal Costs

[The Sydney Morning Herald] The parents of a severely disabled boy have lost a $10 million case against an IVF specialist who failed to properly warn them of the likelihood their son would inherit a blood-clotting condition, but are considering appeali...
April 29, 2013

The Ethical and Social Implications of Preimplantation Genetic Diagnosis for Late Onset Disease

Original Commentary by BEI Young Professionals member Ayelet Evrony. Preimplantation genetic diagnosis (PGD) is a highly effective technology that allows couples to preemptively screen a selection of embryos for an array of genetic disorders. Utilized ...
April 25, 2013

Gene Patents: A Hindrance to Innovation?

[Guardian] Scientists researching diseases such as cancer are impeded by having to pay companies who own specific gene patents. You carry a set of instructions in every cell, encrypted in DNA. Your genome, 3 billion letters of genetic code, is not on...
February 19, 2013

Can They Patent Your Genes?

[The New York Review of Books] Can genes be patented? This spring, the Supreme Court will hear a case that may well decide the question, and the consequences for American biomedicine could be huge. Over three years ago, in May 2009, the American Civil ...
February 17, 2013

No anonymity for sperm donors, court rules

[Deutsche Welle]  The decision of a regional appeals court in Hamm that the children of sperm donors have the right to know who their fathers are could have a wider impact – some 100,000 children in Germany were born to sperm donors. For people who ...
January 29, 2013

Genetic privacy: How private is private?

[Nature] How private is private? A study published on 17 January reveals vulnerabilities in the security of public databases that contain genetic data, the latest in a series of similar revelations. So far, research funders that host the databases have...
January 20, 2013

It’s Legal For Some Insurers To Discriminate Based On Genes

[NPR, David Schultz] Getting the results of a genetic test can be a bit like opening Pandora’s box. You might learn something useful or interesting, or you might learn that you’re likely to develop an incurable disease later on in life. The...