Tag: genetics

Blog Posts (32)

April 15, 2013

Medical Futility Policy Transparency

Thaddeus Mason Pope, J.D., Ph.D.

Faith Smith was born with Trisomy 18.  She was also diagnosed with a hole in her heart. …

January 25, 2013

Whose DNA is it anyway?

Craig Klugman, Ph.D.

The 1000 Genomes Project has collected anonymous DNA samples from people all over the world. By looking at this massive data set, the project hopes to discover genetic components of diseases or traits.…

October 24, 2012

The October issue of AJOB is here!

This month’s issue includes a target article on whether or not to disclose research results from whole-exome sequencing to relatives of a family member who has died.  …

February 29, 2012

Meet Our New Associate Editor, Richard Sharp, PhD

The AJOB Editorial Office is proud to announce its has added five new members to its editorial group.  Over the next few days, we will introduce the members of our new editorial group to you, including our new co-Editors in Chief, our two new Associate Editors and our new Book Review Editor.…

October 18, 2011

Genetic Testing for the Injury Prone

Professional soccer teams (football to the rest of the world) are using high-powered science to give them a competitive edge. The most recent venture into the world of professional sport and science involves an “unnamed Premier League club” [that] has commissioned Yale University scientists to genetically test its players and attempt to identify genetic indicators that can serve as a warning sign to whether an athlete is prone to injury.” According to Bleacher Report, scientists claim that there are more than 100 genetic factors linked to being prone to injury.…

February 15, 2011

Eugenic or Not, Sterilization Makes Sense for "P"

The current case before a British judge as to whether a mentally disabled woman identified only as “P” should be sterilized has raised the ire of medical ethicists and the disability community.…

June 24, 2010

New Website is Match.com for Your Genes

Before I even describe the services purportedly offered by BeautifulPeople.com, let me quote Art Caplan who has summed it up better (characteristically so) than anyone else could: “It’s pure, utter nonsensical baloney, at best.

September 3, 2009

There's Something Different About You. And You. And Everyone Else You've Ever Met. They Are All Mutants.

It turns out it wasn’t all a bunch of rubbish when our parents told us as children that each one of us was very special, in fact unique, from everyone else.…

June 10, 2009

Who Cares About Preventive Care? Who Should?

The role and scope of preventive care in our healthcare system has been a perennial issue for decades. Emily Willingham raises the issue and its role in healthcare reform and are larger healthcare system in light of a recent encounter on Facebook and more:
I received a Facebook invitation today to join in signing a petition to require insurance coverage for genetic testing for breast cancer.

April 24, 2009

Moooove Over Elsie. We Know Your Entire Genome Now.

The Saint Louis Post Dispatch says that the sequencing of the cow genome is going to lead to more milk and better beef, but all I can say for sure is that it certainly is an interesting step forward in the world of genomics.…

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Published Articles (8)

American Journal of Bioethics: Volume 15 Issue 2 - Feb 2015

Collectivizing Rescue Obligations in Bioethics Jeremy R. Garrett

American Journal of Bioethics: Volume 14 Issue 11 - Nov 2014

Protecting Posted Genes: Social Networking and the Limits of GINA Sandra Soo-Jin Lee & Emily Borgelt

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children Ellen Wright Clayton, Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M. Wolf & For the Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Ethics and Empiricism in the Formation of Professional Guidelines Mildred K. Cho

American Journal of Bioethics: Volume 13 Issue 10 - Oct 2013

The Ethics of Contacting Family Members of a Subject in a Genetic Research Study to Return Results for an Autosomal Dominant Syndrome Holly A. Taylor & Benjamin S. Wilfond

American Journal of Bioethics: Volume 13 Issue 5 - May 2013

The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing An Ravelingien & Guido Pennings

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings? Catherine Gliwa & Benjamin E. Berkman

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

What To Do With the Could-Be-Knowns of Genomic Medicine Richard R. Sharp

News (214)

February 18, 2015 3:15 pm

U.S. approves first biotech apple that resists browning

U.S. regulators on Friday approved what would be the first commercialized biotech apple, rejecting efforts by the organic industry and other GMO critics to block the new fruit.

February 9, 2015 4:07 pm

UK Set to Legalize Babies With DNA From 3 Parents

After a parliamentary vote earlier this week, the United Kingdom is set to become the first country to legalize making a baby with DNA from three parents.

January 29, 2015 2:55 pm

Obama to Request Research Funding for Treatments Tailored to Patients’ DNA

President Obama will seek hundreds of millions of dollars for a new initiative to develop medical treatments tailored to genetic and other characteristics of individual patients, administration officials say.

January 29, 2015 2:54 pm

Genetic Testing and Tribal Identity

The genetic sequencing company 23andMe recently tapped into its vast bank of data to release a study on genetic origins, producing the biggest genetic profile of the United States ever conducted—big, but nowhere near complete.

January 26, 2015 6:52 pm

Testing for mortality: Why I measured my telomeres. Should you?

This piece discusses telomere testing as a way to predict age-related diseases. Hank Greely, with the Stanford Center for Biomedical Ethics and director of Stanford’s Center for Law and the Biosciences, comments on the growing concern among federal regulators.

January 23, 2015 5:43 pm

Surprise! With $60 Million Genentech Deal, 23andMe Has A Business Plan

A deal being announced today with Genentech points the way for 23andMe, the personal genetics company backed by Facebook billionaire Yuri Milner and Google Ventures to become a sustainable business – even if the company’s discussions with the U.S. Food and Drug Administration stretch on for years.

January 23, 2015 5:42 pm

Most parents want their babies’ genome sequenced, study finds

By sequencing the billions of chemical letters in a cell’s DNA, which make up the human genome, scientists may be able to better estimate the risk of a person developing cancer, heart, biochemical and metabolic diseases.

January 16, 2015 1:02 pm

Who Owns A Human Genome?

When a human subject is involved with a scientific study, researchers must obtain informed consent, right? Well, if the study in question involves genomics research, the answer isn’t so clear.

January 9, 2015 8:29 pm

Genetic Testing Company 23andMe Finds New Revenue With Big Pharma

The past two years have been a rough and transformative time for the controversial DIY genetic testing company 23andMe. At the end of 2013, the Food and Drug Administration requested that the company shut down its main service, an analysis of a person’s genome gleaned from spit samples that anyone who purchased a kit could send in, noting that interpreting human genes—understanding what changes in DNA mean, and how they contribute or don’t contribute to disease—is still too much of a black box.

January 6, 2015 7:58 pm

Surprise! With $60 Million Genentech Deal, 23andMe Has A Business Plan

A deal being announced today with Genentech points the way for 23andMe, the personal genetics company backed by Facebook billionaire Yuri Milner and Google Ventures to become a sustainable business – even if the company’s discussions with the U.S. Food and Drug Administration stretch on for years.

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