Tag: genetics

Blog Posts (32)

April 15, 2013

Medical Futility Policy Transparency

Thaddeus Mason Pope, J.D., Ph.D.

Faith Smith was born with Trisomy 18.  She was also diagnosed with a hole in her heart. …

January 25, 2013

Whose DNA is it anyway?

Craig Klugman, Ph.D.

The 1000 Genomes Project has collected anonymous DNA samples from people all over the world. By looking at this massive data set, the project hopes to discover genetic components of diseases or traits.…

October 24, 2012

The October issue of AJOB is here!

This month’s issue includes a target article on whether or not to disclose research results from whole-exome sequencing to relatives of a family member who has died.  …

February 29, 2012

Meet Our New Associate Editor, Richard Sharp, PhD

The AJOB Editorial Office is proud to announce its has added five new members to its editorial group.  Over the next few days, we will introduce the members of our new editorial group to you, including our new co-Editors in Chief, our two new Associate Editors and our new Book Review Editor.…

October 18, 2011

Genetic Testing for the Injury Prone

Professional soccer teams (football to the rest of the world) are using high-powered science to give them a competitive edge. The most recent venture into the world of professional sport and science involves an “unnamed Premier League club” [that] has commissioned Yale University scientists to genetically test its players and attempt to identify genetic indicators that can serve as a warning sign to whether an athlete is prone to injury.” According to Bleacher Report, scientists claim that there are more than 100 genetic factors linked to being prone to injury.…

February 15, 2011

Eugenic or Not, Sterilization Makes Sense for "P"

The current case before a British judge as to whether a mentally disabled woman identified only as “P” should be sterilized has raised the ire of medical ethicists and the disability community.…

June 24, 2010

New Website is Match.com for Your Genes

Before I even describe the services purportedly offered by BeautifulPeople.com, let me quote Art Caplan who has summed it up better (characteristically so) than anyone else could: “It’s pure, utter nonsensical baloney, at best.

September 3, 2009

There's Something Different About You. And You. And Everyone Else You've Ever Met. They Are All Mutants.

It turns out it wasn’t all a bunch of rubbish when our parents told us as children that each one of us was very special, in fact unique, from everyone else.…

June 10, 2009

Who Cares About Preventive Care? Who Should?

The role and scope of preventive care in our healthcare system has been a perennial issue for decades. Emily Willingham raises the issue and its role in healthcare reform and are larger healthcare system in light of a recent encounter on Facebook and more:
I received a Facebook invitation today to join in signing a petition to require insurance coverage for genetic testing for breast cancer.

April 24, 2009

Moooove Over Elsie. We Know Your Entire Genome Now.

The Saint Louis Post Dispatch says that the sequencing of the cow genome is going to lead to more milk and better beef, but all I can say for sure is that it certainly is an interesting step forward in the world of genomics.…

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Published Articles (7)

American Journal of Bioethics: Volume 14 Issue 11 - Nov 2014

Protecting Posted Genes: Social Networking and the Limits of GINA Sandra Soo-Jin Lee & Emily Borgelt

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children Ellen Wright Clayton, Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M. Wolf & For the Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Ethics and Empiricism in the Formation of Professional Guidelines Mildred K. Cho

American Journal of Bioethics: Volume 13 Issue 10 - Oct 2013

The Ethics of Contacting Family Members of a Subject in a Genetic Research Study to Return Results for an Autosomal Dominant Syndrome Holly A. Taylor & Benjamin S. Wilfond

American Journal of Bioethics: Volume 13 Issue 5 - May 2013

The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing An Ravelingien & Guido Pennings

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings? Catherine Gliwa & Benjamin E. Berkman

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

What To Do With the Could-Be-Knowns of Genomic Medicine Richard R. Sharp

News (203)

December 10, 2014 6:02 pm

Pfizer bets on gene therapy as technology comes of age

Pfizer Inc is moving into the gene therapy space in the latest sign that the technology for fixing faulty genes may finally be ready for prime time, following earlier setbacks.

December 4, 2014 3:21 pm

Scientists map genetic diversity of sub-Saharan Africa

Scientists have made the most comprehensive map yet of African genetic variation and say it should help them learn more about the role genes play in diseases such as malaria, hemorrhagic fever and hypertension in populations there.

December 1, 2014 3:22 pm

Exclusive: First gene therapy drug sets million-euro price record

The Western world’s first gene therapy drug is set to go on sale in Germany with a 1.1 million euro ($1.4 million) price tag, a new record for a medicine to treat a rare disease.

November 19, 2014 4:36 pm

Illumina teams with U.S. government, researchers to sequence Ebola

Gene sequencing equipment maker Illumina has teamed up with the U.S. government and academic researchers at the Broad Institute in Boston to train scientists in West Africa to improve tracking of how the Ebola virus is mutating in hopes of fighting it more effectively.

November 18, 2014 4:41 pm

EmTech: Illumina Says 228,000 Human Genomes Will Be Sequenced This Year

Henry Ford kept lowering the price of cars, and more people kept buying them. The San Diego–based gene sequencing company Illumina has been doing something similar with the tools needed to interpret the human genetic code.

November 12, 2014 6:13 pm

Scientists scour the genomes of people who live past 110

How do some people live past 110 years old? Is it superior genes, clean living, good luck or some combination of those?

November 6, 2014 3:26 pm

Gene patent lawsuit aims to clear up confusion in Canada

Canadian courts have not yet ruled on whether genes can be patented. A lawsuit filed Monday over cardiac disorder Long QT aims to clear that up.

September 29, 2014 2:25 pm

If Synthetic Biology Lets Us Play God, We Need Rules

Synthetic biology has been called “genetic engineering on steroids.” It’s also been described as so difficult to pin down that five scientists would give you six different definitions.

September 29, 2014 2:24 pm

Finding Risks, Not Answers, in Gene Tests

Jennifer was 39 and perfectly healthy, but her grandmother had died young from breast cancer, so she decided to be tested for mutations in two genes known to increase risk for the disease.

September 10, 2014 4:37 pm

Planet of the apes: Gibbons are last ape to have genome revealed

Gibbons – the small, long-armed tree swingers that inhabit the dense tropical forests of Southeast Asia – have become the last of the planet’s apes to have their genetic secrets revealed.

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