Tag: genetics

Blog Posts (32)

April 15, 2013

Medical Futility Policy Transparency

Thaddeus Mason Pope, J.D., Ph.D.

Faith Smith was born with Trisomy 18.  She was also diagnosed with a hole in her heart. …

January 25, 2013

Whose DNA is it anyway?

Craig Klugman, Ph.D.

The 1000 Genomes Project has collected anonymous DNA samples from people all over the world. By looking at this massive data set, the project hopes to discover genetic components of diseases or traits.…

October 24, 2012

The October issue of AJOB is here!

This month’s issue includes a target article on whether or not to disclose research results from whole-exome sequencing to relatives of a family member who has died.  …

February 29, 2012

Meet Our New Associate Editor, Richard Sharp, PhD

The AJOB Editorial Office is proud to announce its has added five new members to its editorial group.  Over the next few days, we will introduce the members of our new editorial group to you, including our new co-Editors in Chief, our two new Associate Editors and our new Book Review Editor.…

October 18, 2011

Genetic Testing for the Injury Prone

Professional soccer teams (football to the rest of the world) are using high-powered science to give them a competitive edge. The most recent venture into the world of professional sport and science involves an “unnamed Premier League club” [that] has commissioned Yale University scientists to genetically test its players and attempt to identify genetic indicators that can serve as a warning sign to whether an athlete is prone to injury.” According to Bleacher Report, scientists claim that there are more than 100 genetic factors linked to being prone to injury.…

February 15, 2011

Eugenic or Not, Sterilization Makes Sense for "P"

The current case before a British judge as to whether a mentally disabled woman identified only as “P” should be sterilized has raised the ire of medical ethicists and the disability community.…

June 24, 2010

New Website is Match.com for Your Genes

Before I even describe the services purportedly offered by BeautifulPeople.com, let me quote Art Caplan who has summed it up better (characteristically so) than anyone else could: “It’s pure, utter nonsensical baloney, at best.

September 3, 2009

There's Something Different About You. And You. And Everyone Else You've Ever Met. They Are All Mutants.

It turns out it wasn’t all a bunch of rubbish when our parents told us as children that each one of us was very special, in fact unique, from everyone else.…

June 10, 2009

Who Cares About Preventive Care? Who Should?

The role and scope of preventive care in our healthcare system has been a perennial issue for decades. Emily Willingham raises the issue and its role in healthcare reform and are larger healthcare system in light of a recent encounter on Facebook and more:
I received a Facebook invitation today to join in signing a petition to require insurance coverage for genetic testing for breast cancer.

April 24, 2009

Moooove Over Elsie. We Know Your Entire Genome Now.

The Saint Louis Post Dispatch says that the sequencing of the cow genome is going to lead to more milk and better beef, but all I can say for sure is that it certainly is an interesting step forward in the world of genomics.…

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Published Articles (6)

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children Ellen Wright Clayton, Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M. Wolf & For the Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Ethics and Empiricism in the Formation of Professional Guidelines Mildred K. Cho

American Journal of Bioethics: Volume 13 Issue 10 - Oct 2013

The Ethics of Contacting Family Members of a Subject in a Genetic Research Study to Return Results for an Autosomal Dominant Syndrome Holly A. Taylor & Benjamin S. Wilfond

American Journal of Bioethics: Volume 13 Issue 5 - May 2013

The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing An Ravelingien & Guido Pennings

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings? Catherine Gliwa & Benjamin E. Berkman

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

What To Do With the Could-Be-Knowns of Genomic Medicine Richard R. Sharp

News (194)

September 10, 2014 4:37 pm

Planet of the apes: Gibbons are last ape to have genome revealed

Gibbons – the small, long-armed tree swingers that inhabit the dense tropical forests of Southeast Asia – have become the last of the planet’s apes to have their genetic secrets revealed.

September 10, 2014 2:49 pm

NIH issues finalized policy on genomic data sharing

The National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health while protecting the privacy of research participants.

September 8, 2014 2:50 pm

Multitasking Gene May Help Drone Operators Control Robotic Swarms

A genetic variant that keeps dopamine levels high could lead to personalized training and also benefit personnel in ERs and air traffic control towers.

August 26, 2014 1:19 pm

Happiness study draws frowns from critics

A high-profile 2013 study that concluded that different kinds of happiness are associated with dramatically different patterns of gene activity is fatally flawed, according to an analysis published on Monday which tore into its target with language rarely seen in science journals.

August 13, 2014 4:31 pm

Film documents rise and fall of a genome matching service – and poses tough ethical questions

When I think of “science fiction,” I picture three-eyed aliens with purple-and-gold tentacles — not the disturbing demise of a man, and a company, depicted in the film “The Perfect 46.”

August 12, 2014 1:54 pm

Briton with advanced heart failure launches new gene therapy trial

A 37-year-old British man who needs a mechanical pump to keep his heart working has kicked off tests to see if gene therapy could help him recover and potentially avoid the need for a heart transplant.

July 31, 2014 6:01 pm

Blood test could reliably predict risk of suicide attempt

According to a report from Johns Hopkins University School of Medicine, researchers discovered a chemical alteration in a single human gene linked to stress reactions that, if confirmed in larger studies, could offer doctors a simple blood test to predict a person’s risk of attempting suicide.

July 29, 2014 4:01 pm

Google Seeks Human Guinea Pigs for Health Project

Google’s newest project aims to create a crowd-sourced picture of human health by collecting anonymous genetic and molecular information from participants.

July 15, 2014 2:39 pm

China approves DNA-sequencing devices to detect genetic defects in unborn babies

The mainland has lifted the controversial ban on medical diagnostic products that can help detect birth defects in unborn children.

July 10, 2014 4:03 pm

The Brave New World of Three-Parent I.V.F.

A microscopic image that shows a genome being removed from a donor egg. 1. Manipulation pipette. 2. Donor egg. 3. Holding pipette. 4. Zona pellucida (encircling the egg). 5. Location of the oocyte genome (or nuclear DNA) before removal.

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