Tag: genetics

Blog Posts (32)

April 15, 2013

Medical Futility Policy Transparency

Thaddeus Mason Pope, J.D., Ph.D.

Faith Smith was born with Trisomy 18.  She was also diagnosed with a hole in her heart. …

January 25, 2013

Whose DNA is it anyway?

Craig Klugman, Ph.D.

The 1000 Genomes Project has collected anonymous DNA samples from people all over the world. By looking at this massive data set, the project hopes to discover genetic components of diseases or traits.…

October 24, 2012

The October issue of AJOB is here!

This month’s issue includes a target article on whether or not to disclose research results from whole-exome sequencing to relatives of a family member who has died.  …

February 29, 2012

Meet Our New Associate Editor, Richard Sharp, PhD

The AJOB Editorial Office is proud to announce its has added five new members to its editorial group.  Over the next few days, we will introduce the members of our new editorial group to you, including our new co-Editors in Chief, our two new Associate Editors and our new Book Review Editor.…

October 18, 2011

Genetic Testing for the Injury Prone

Professional soccer teams (football to the rest of the world) are using high-powered science to give them a competitive edge. The most recent venture into the world of professional sport and science involves an “unnamed Premier League club” [that] has commissioned Yale University scientists to genetically test its players and attempt to identify genetic indicators that can serve as a warning sign to whether an athlete is prone to injury.” According to Bleacher Report, scientists claim that there are more than 100 genetic factors linked to being prone to injury.…

February 15, 2011

Eugenic or Not, Sterilization Makes Sense for "P"

The current case before a British judge as to whether a mentally disabled woman identified only as “P” should be sterilized has raised the ire of medical ethicists and the disability community.…

June 24, 2010

New Website is Match.com for Your Genes

Before I even describe the services purportedly offered by BeautifulPeople.com, let me quote Art Caplan who has summed it up better (characteristically so) than anyone else could: “It’s pure, utter nonsensical baloney, at best.

September 3, 2009

There's Something Different About You. And You. And Everyone Else You've Ever Met. They Are All Mutants.

It turns out it wasn’t all a bunch of rubbish when our parents told us as children that each one of us was very special, in fact unique, from everyone else.…

June 10, 2009

Who Cares About Preventive Care? Who Should?

The role and scope of preventive care in our healthcare system has been a perennial issue for decades. Emily Willingham raises the issue and its role in healthcare reform and are larger healthcare system in light of a recent encounter on Facebook and more:
I received a Facebook invitation today to join in signing a petition to require insurance coverage for genetic testing for breast cancer.

April 24, 2009

Moooove Over Elsie. We Know Your Entire Genome Now.

The Saint Louis Post Dispatch says that the sequencing of the cow genome is going to lead to more milk and better beef, but all I can say for sure is that it certainly is an interesting step forward in the world of genomics.…

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Published Articles (13)

American Journal of Bioethics: Volume 16 Issue 12 - Dec 2016

Does Lack of “Genetic-Relative Family Health History” Represent a Potentially Avoidable Health Disparity for Adoptees? Thomas May, Kimberly A. Strong, Kaija L. Zusevics, Jessica Jeruzal, Michael H. Farrell, Alison LaPean Kirschner, Arthur R. Derse, James P. Evans & Harold D. Grotevant

American Journal of Bioethics: Volume 15 Issue 7 - Jul 2015

Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst

American Journal of Bioethics: Volume 15 Issue 7 - Jul 2015

Preventive Genomic Sequencing in the General Population: Do PGS Fly? Mildred K. Cho

American Journal of Bioethics: Volume 15 Issue 6 - Jun 2015

Imposing Genetic Diversity Robert Sparrow

American Journal of Bioethics: Volume 15 Issue 6 - Jun 2015

Ruffling a Few Feathers Richard R. Sharp

American Journal of Bioethics: Volume 15 Issue 2 - Feb 2015

Collectivizing Rescue Obligations in Bioethics Jeremy R. Garrett

American Journal of Bioethics: Volume 14 Issue 11 - Nov 2014

Protecting Posted Genes: Social Networking and the Limits of GINA Sandra Soo-Jin Lee & Emily Borgelt

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children Ellen Wright Clayton, Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M. Wolf & For the Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Ethics and Empiricism in the Formation of Professional Guidelines Mildred K. Cho

American Journal of Bioethics: Volume 13 Issue 10 - Oct 2013

The Ethics of Contacting Family Members of a Subject in a Genetic Research Study to Return Results for an Autosomal Dominant Syndrome Holly A. Taylor & Benjamin S. Wilfond

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News (249)

November 28, 2016 6:00 am

Climbing the social ladder can strengthen your immune system, monkey study suggests (Science)

Immune cells from low-ranking monkeys were less effective at fighting the infection.

November 17, 2016 9:00 am

CRISPR gene-editing tested in a person for the first time (Nature)

A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique.

October 31, 2016 8:00 am

The controversial DNA search that helped nab the 'Grim Sleeper' is winning over skeptics (LA Times)

The “Roaming Rapist” is one of a handful of cases that California authorities have quietly solved in recent years using a controversial technique that scours an offender DNA database for a father, son or brother of an elusive crime suspect.

October 25, 2016 8:00 am

Can Ecstasy Help Relieve Social Anxiety Epidemic Among Autistic People? (NPR)

For a long time, Daniel Au Valencia got the message that she was wrong, wrong, wrong. She stood wrong. She talked wrong. She looked at people wrong. “There’s a lot of shame around autism,” she says. “There’s a lot of being told you look weird.”

October 25, 2016 8:00 am

What Stem Cell Researchers Talk About When They Talk About Ethics (NPR)

Prior to the development of iPSCs, stem cells were derived primarily from eggs fertilized in clinics in vitro that were donated for research purposes. To some, such as President George W. Bush, this was tantamount to abortion. In 2001 he banned federal funding for research on newly created human embryonic stem cell lines. (President Barack Obama lifted that ban in 2009.)

October 18, 2016 8:00 am

DNA’s new ‘miracle’: How adoptees are using online registries to find their blood relatives (Washington Post)

Last year, Bob Nore, a Vietnam War veteran in Huntsville, Ala., was working on a family tree and wanted to trace his ancestors’ history and origins. So he sent a vial of saliva and $89 to a DNA registry for analysis.

October 13, 2016 8:00 am

Major Investor Sues Theranos (WSJ)

One of Theranos Inc.’s biggest financial backers has sued the embattled startup and its founder for allegedly lying to attract its nearly $100 million investment, according to a fund document and people familiar with the matter.

October 7, 2016 8:00 am

This 8-year-old is free of cancer — for now — after a ‘breakthrough’ treatment (Washington Post)

By the time 8-year-old Ava Christianson got to the National Institutes of Health this summer, she had lost several grueling rounds to leukemia and was bracing for the next one.

October 4, 2016 8:00 am

Are Swedish Designer Babies Coming Soon? (Seeker)

A Swedish medical researcher has taken another step toward eventually being able to engineer a custom-made human being. The experiment, first reported on NPR Thursday involves editing the genes of a developing human embryo.

September 28, 2016 10:50 am

World's first baby born from new procedure using DNA of three people (The Guardian)

The world’s first baby to be born from a new procedure that combines the DNA of three people appears to be healthy, according to doctors in the US who oversaw the treatment.

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