Tag: genetics

Blog Posts (32)

April 15, 2013

Medical Futility Policy Transparency

Thaddeus Mason Pope, J.D., Ph.D.

Faith Smith was born with Trisomy 18.  She was also diagnosed with a hole in her heart. …

January 25, 2013

Whose DNA is it anyway?

Craig Klugman, Ph.D.

The 1000 Genomes Project has collected anonymous DNA samples from people all over the world. By looking at this massive data set, the project hopes to discover genetic components of diseases or traits.…

October 24, 2012

The October issue of AJOB is here!

This month’s issue includes a target article on whether or not to disclose research results from whole-exome sequencing to relatives of a family member who has died.  …

February 29, 2012

Meet Our New Associate Editor, Richard Sharp, PhD

The AJOB Editorial Office is proud to announce its has added five new members to its editorial group.  Over the next few days, we will introduce the members of our new editorial group to you, including our new co-Editors in Chief, our two new Associate Editors and our new Book Review Editor.…

October 18, 2011

Genetic Testing for the Injury Prone

Professional soccer teams (football to the rest of the world) are using high-powered science to give them a competitive edge. The most recent venture into the world of professional sport and science involves an “unnamed Premier League club” [that] has commissioned Yale University scientists to genetically test its players and attempt to identify genetic indicators that can serve as a warning sign to whether an athlete is prone to injury.” According to Bleacher Report, scientists claim that there are more than 100 genetic factors linked to being prone to injury.…

February 15, 2011

Eugenic or Not, Sterilization Makes Sense for "P"

The current case before a British judge as to whether a mentally disabled woman identified only as “P” should be sterilized has raised the ire of medical ethicists and the disability community.…

June 24, 2010

New Website is Match.com for Your Genes

Before I even describe the services purportedly offered by BeautifulPeople.com, let me quote Art Caplan who has summed it up better (characteristically so) than anyone else could: “It’s pure, utter nonsensical baloney, at best.

September 3, 2009

There's Something Different About You. And You. And Everyone Else You've Ever Met. They Are All Mutants.

It turns out it wasn’t all a bunch of rubbish when our parents told us as children that each one of us was very special, in fact unique, from everyone else.…

June 10, 2009

Who Cares About Preventive Care? Who Should?

The role and scope of preventive care in our healthcare system has been a perennial issue for decades. Emily Willingham raises the issue and its role in healthcare reform and are larger healthcare system in light of a recent encounter on Facebook and more:
I received a Facebook invitation today to join in signing a petition to require insurance coverage for genetic testing for breast cancer.

April 24, 2009

Moooove Over Elsie. We Know Your Entire Genome Now.

The Saint Louis Post Dispatch says that the sequencing of the cow genome is going to lead to more milk and better beef, but all I can say for sure is that it certainly is an interesting step forward in the world of genomics.…

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Published Articles (6)

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children Ellen Wright Clayton, Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M. Wolf & For the Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group

American Journal of Bioethics: Volume 14 Issue 3 - Mar 2014

Ethics and Empiricism in the Formation of Professional Guidelines Mildred K. Cho

American Journal of Bioethics: Volume 13 Issue 10 - Oct 2013

The Ethics of Contacting Family Members of a Subject in a Genetic Research Study to Return Results for an Autosomal Dominant Syndrome Holly A. Taylor & Benjamin S. Wilfond

American Journal of Bioethics: Volume 13 Issue 5 - May 2013

The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing An Ravelingien & Guido Pennings

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings? Catherine Gliwa & Benjamin E. Berkman

American Journal of Bioethics: Volume 13 Issue 2 - Feb 2013

What To Do With the Could-Be-Knowns of Genomic Medicine Richard R. Sharp

News (171)

April 17, 2014 5:42 pm

French School Carries out DNA Dragnet in Rape Case

French investigators began taking DNA samples Monday from 527 male students and staff at a high school — including boys as young as 14 — as they searched for the assailant who raped a teenage girl on the closed campus.

April 3, 2014 4:43 pm

An FDA Update For 23andMe Customers

Over the last few months we’ve heard from many of you asking about where 23andMe stands in the FDA authorization process, so here is the latest.

April 2, 2014 2:15 pm

Scientists hail synthetic chromosome advance

Previously synthetic DNA has been designed and made for simpler organisms such as bacteria.  As a form of life whose cells contain a nucleus, yeast is related to plants and animals and shares 2,000 genes with us.

March 27, 2014 5:42 pm

Gene Gurus Create Synthetic Yeast Chromosome From Scratch

Geneticists say they’ve built a working yeast chromosome from the bottom up for the first time — a feat that could open the way for custom-made biofactories that churn out fuels and pharmaceuticals.

March 26, 2014 4:03 pm

Scientists publish "navigation maps" for human genome

A large international team of scientists has built the clearest picture yet of how human genes are regulated in the vast array of cell types in the body – work that should help researchers target genes linked to disease.

March 24, 2014 6:38 pm

Cardiff University thyroid IQ theory 'could help children'

Children at risk of developing a low IQ could be helped by genetic screening, Cardiff University researchers say.

March 18, 2014 2:49 pm

His Fertility Advance Draws Ire

To most people, the word “mitochondria” is only dimly familiar.  But to Shoukhrat Mitalipov, the mysterious power producers inside every human cell are a lifelong obsession.

March 12, 2014 4:17 pm

Cheap, reliable whole-genome sequencing? Not so fast, say Stanford researchers

A Stanford study found that producing accurate genome analysis is still best left to medical professionals and complete, reliable results from an off-the-shelf test are currently not possible.

March 6, 2014 7:27 pm

A Powerful New Way to Edit DNA

In the late 1980s, scientists at Osaka University in Japan noticed unusual repeated DNA sequences next to a gene they were studying in a common bacterium. They mentioned them in the final paragraph of a paper: “The biological significance of these sequences is not known.”

March 4, 2014 6:13 pm

China Cracks Down on DNA Testing

Genetic testing has grown to be a business big enough in China to warrant the government’s intervention.

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