Tag: policy

Blog Posts (20)

April 21, 2014

Being Wrong is Unacceptable: The Continued Saga of Justina Pelletier

by Theresa Spranger, Bioethics Program Alumna (MSBioethics 2012) Alright, as many of you certainly know I have developed an addiction to the Justina Pelletier case.  I promise someday I will write on another topic, but today is not that day.  If you haven’t been privy to my latest obsession please see: When Doctor’s Disagree. An opinion […]
April 10, 2014

Health Disparities: They’re Not Just for Patients Anymore

by Jacob Dahlke, Bioethics Program Alum (MSBioethics 2012) Much is written – and justifiably so – about the disparities that exist in our healthcare system in the U.S. The CDC, for example, reports a few: non-Hispanic blacks die more frequently from stroke and coronary heart disease than whites; homicide deaths are 2.5 times higher for men […]
April 9, 2014

If Hobby Lobby Wins, We All Lose

by Dr. Patricia Mayer, Bioethics Program Alumna (2009) Late last month, the US Supreme Court heard oral arguments in the case of Sebelius v. Hobby Lobby Stores, Inc. The Supreme Court is currently considering whether Hobby Lobby, a privately owned chain of 640 arts and crafts stores, may deny its employees insurance coverage for things […]
April 4, 2014

Whose Business Is It If You Want a Bee To Sting Your Penis? Should IRBs Be Policing Self-Experimentation?

by Michelle Meyer, Bioethics Program Faculty. You might think that the answer to the titular question is pretty obvious. Obviously, it’s your business, and yours alone if you want to induce a bee to sting your penis? Right? I mean, sure, maybe it would be considerate to discuss the potential ramifications of this activity with your partner. […]
April 1, 2014

When Doctors Disagree: Parental Rights and Disputed Pediatric Diagnoses

by Theresa Spranger, Bioethics Program Alumna (MSBioethics 2012) What happens when doctors disagree on a pediatric diagnosis? What are the parents’ rights in a diagnosis dispute? Do they have any? Many readers will be familiar with the story of Justina Pelletier, a 15 year old Connecticut girl diagnosed with Mitochondrial Disease by Dr. Mark Korson at […]
March 30, 2014

Rated NC-17: Why Voluntary Euthanasia of Children is Dead Wrong

by Dr. Patricia Mayer, Bioethics Program Alumna (2009) Belgium just became the first country in the world to extend the option of voluntary euthanasia to children under the age of 12.  Voluntary euthanasia of adults has been legal in that country since 2002, but the Belgian parliament has now decided to remove age restrictions from […]
August 28, 2013

Paying for Patient Empowerment

by Craig Klugman, Ph.D.

Way back in 2009 when the Affordable Care Act (ACA) was being debated across the country, one of the more controversial elements was a section (HE 3200, Section 1233) that would provide physician reimbursement for conversations about end-of-life advance care planning.…

June 28, 2012

Waiting for the SCOTUS decision on Obamacare? Read AJOB.

As the nation waits on pins and needles for SCOTUS’ decision regarding Obamacare, take a few minutes to bone up on the ethics of healthcare reform and governance with AJOB’s Special Issue on healthcare reform.…

March 2, 2012

Meet Our New Associate Editor, Kayhan Parsi, JD PhD

AJOB is proud to have Kayhan Parsi as our new Associate Editor.  Kayhan has worked with AJOB closely for the last three years serving as its Book Review Editor.…

October 10, 2011

Saving the USPS by Cutting Healthcare Costs?

What does the postal service have to do with healthcare? Sure, the USPS delivers medical supplies to individuals and organizations. But that is not the connection that the nation’s postmaster general is making between healthcare and the viability of the postal service.…

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Published Articles (6)

American Journal of Bioethics: Volume 10 Issue 5 - May 2010

Stem Cell Tourism and Doctors' Duties to Minors?A View From Canada

American Journal of Bioethics: Volume 10 Issue 3 - Mar 2010

Response to Open Peer Commentaries on ?Trans Fat Bans and Human Freedom?

American Journal of Bioethics: Volume 10 Issue 3 - Mar 2010

Trans Fat Bans and Human Freedom

American Journal of Bioethics: Volume 7 Issue 6 - Jun 2007

Public Health, Public Trust and Lobbying

American Journal of Bioethics: Volume 6 Issue 2 - Mar 2006

ELSI Priorities for Brain Imaging

American Journal of Bioethics: Volume 4 Issue 1 - Jan 2004

Will Lower Drug Prices Jeopardize Drug Research? A Policy Fact Sheet

News (38)

September 20, 2012 8:42 pm

N.C. Woman With Stage 4 Cancer Fights Foreclosure (ABC News)

When Kirk Davis of Mount Holly, N.C., describes his wife’s cancer and subsequent treatment, he never says it was “her” diagnosis or chemo. He says “we were diagnosed with breast cancer” on June 2, 2008.  The diagnosis, which was followed by medical bills and both having to take pay cuts, led to the Davis’ struggle to save their home from a scheduled foreclosure in December.  Cindi Davis, 50, had to resign from her job as a school teacher to go on long-term disability. She said she has stage four cancer, now that it has spread to her lymph nodes, lungs and liver.

 

September 5, 2012 7:57 pm

Do Current Organ Transplant Policies Restrict Potential Donors? (Huffington Post)

A friend of mine, a transplant surgeon, was emotionally recounting a recent experience. A young woman with organ failure desperately needed a transplant, but none was available, and she was sinking rapidly. She, her family, and the medical team expected that she would be dead before the morning, and she had already said her goodbyes. The team was in despair, knowing that they could have saved her if only the means had been available. Then, suddenly, news came that a donor had been found. Everyone rushed into action, and by the next day joy was unconfined.  That story had a happy ending, but its purpose was to emphasize the thousands of similar stories that end in tragedy. Innumerable people experience firsthand the misery of failing organs, and their doctors suffer the intense distress of knowing they have the skills to save them but not the organs themselves.

September 5, 2012 7:41 pm

Former Harvard professor Marc Hauser fabricated, manipulated data, US says (Boston.com)

Marc Hauser, a prolific scientist and popular psychology professor who last summer resigned from Harvard University, had fabricated data, manipulated results in multiple experiments, and described how studies were conducted in factually incorrect ways, according to the findings of a federal research oversight agency posted online Wednesday.  The report provides the greatest insight yet into the problems that triggered a three-year internal university investigation that concluded in 2010 that Hauser, a star professor and public intellectual, had committed eight instances of scientific misconduct. The document, which will be published in the Federal Register Thursday, found six cases in which Hauser engaged in research misconduct in work supported by the National Institutes of Health. One paper was retracted and two were corrected, and other problems were found in unpublished work.

August 12, 2012 6:39 pm

More voices raising questions about consumer gene testing (Silicon Beat)

The Mercury News editorial page had a great column today from three experts on genetic testing that provides the medical perspective on why a physician should be involved in the direct-to-consumer genetic testing process. They argue that these are indeed medical tests, despite industry arguments otherwise. And the results are complex.

August 8, 2012 3:31 pm

Bioethicist: Families, stop thwarting organ donors (NBC News (blog))

Despite the great demand, very few Americans donate their organs when they die. But the reason for that may not be what you’d think — it’s your relatives.  That’s what David Shaw, honorary lecturer at the University of Aberdeen in Scotland, thinks the real problem is. In an article published Tuesday in the British Medical Journal, he writes that one of the biggest reasons more people don’t wind up donating is veto by their family.

July 24, 2012 9:15 am

Ban on pharma meals for physicians overturned (American Medical News)

In May, the Massachusetts Medical Society adopted policy supporting a change in the state’s gift ban so long as the modification conformed to guidelines from the ACCME and the American Medical Association. The AMA Code of Medical Ethics says it is OK for physicians to accept gifts worth $100 or less from industry so long as they benefit patients.

July 10, 2012 4:32 pm

An Organ 'Donor' Revolution (The Wall Street Journal)

With all eyes fixed on the Supreme Court’s recent health-care decision, a life-saving development swooped in under the radar: It is now legal to compensate bone-marrow donors. This represents a triumph for the 2,000-3,000 people with cancer and blood diseases who die each year while awaiting a marrow transplant.

July 9, 2012 9:20 pm

Lesbians allowed to donate blood in China (Examiner.com)

In a reversal of government health policy, the People’s Republic of China now allows lesbians to donate blood, the United Nations reported Sunday.  “The ban still applies to men who are sexually active with other men, but celibate homosexuals are permitted to give blood, CNN reported.

June 28, 2012 9:44 am

Let grandma have sex! (Salon)

A new article published in the Journal of Medical Ethics takes nursing homes to task because elderly patients’ “sexual expression” is often “overlooked, ignored or even discouraged.” The authors of the Australian paper argue, “The formation of relationships, physical intimacy and the expression of sexuality are a basic human right and a normal and healthy part of aging,” and caregivers should respects patients’ “decisions about their sexuality, intimacy and physical relationships.”

May 15, 2012 10:40 am

Unintended Consequence for Dialysis Patients as Drug Rule Changes (New York Times)

A shift last year by the federal government in how it pays for drugs to treat dialysis patients may have had an unintended and potentially dire consequence, according to new research: a significant jump in blood transfusions for patients who now may not be getting enough of the medications. The findings are seen by some experts as a stark illustration of how the government’s reimbursement policies can drive the practice of medicine.

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