August 7, 2013 2:01 pm
Henrietta Lacks, who died of cervical cancer in 1951, died before consenting to her cells’ being studied. But now 62 years later the Lacks family has the power to grant researchers control over how her genome is used.
June 12, 2013 2:02 pm
The Johns Hopkins Berman Institute of Bioethics will host its first “Global Bioethics Week” June 10-14, designed to launch two unique global research ethics initiatives, in collaboration with colleagues from several African universities.
June 7, 2013 2:31 pm
Thanks to a public outcry that included objections from bioethics experts from across the country, the federal Office for Human Research Protections (OHRP) has decided to suspend sanctions it imposed earlier this year on a study of blood oxygen levels used to treat premature infants.
June 5, 2013 5:16 pm
A group of scholars and leaders in bioethics and pediatrics with extensive experience in ethical and regulatory issues in pediatrics and human subjects research urged the OHRP to withdraw its research violation notification to the institutions involved in SUPPORT.
May 28, 2013 1:58 pm
NIH-funded awards are subject to a prohibition on using federal funds for lobbying activities (the actual language can be viewed here and here).
May 14, 2013 4:29 pm
A top Berlin hospital plans to investigate the conduct of drug trials in the former East Germany amid allegations that some patients were used as human guinea pigs.
April 25, 2013 5:14 pm
Comparative effectiveness research tries to research whether one standardly used treatment is better than the others.. Yet this is exactly the kind of research that was slammed by government watchdogs and mauled in the press.
April 3, 2013 2:44 pm
Hua Jun Zhao, a researcher at the Medical College of Wisconsin, is charged with espionage after prosecutors say he stole details of a cancer-fighting compound that he wanted to share with China.
February 22, 2013 12:41 pm
Parents with children who have rare and debilitating diseases are pushing to change how researchers develop medicines to treat the conditions. The parents want different scientists researching the diseases to share data about the patients so the children won’t need to participate in so many studies.
February 11, 2013 2:51 pm
In a storage facility in the Netherlands, a mutant virus engineered into existence has been locked in a freezer for more than a year, unaware of the global debate swirling around it. This strain has sparked one of the most inflamed bioethics debates in recent memory.