Hot Topics: Decision making
by Dominic Wilkinson @Neonatalethics This week the legal case around medical treatment for five-year old Tafida Raqeeb has begun in the High Court. She sustained severe brain damage from bleeding in the brain seven months ago. Her parents wish to take her to a hospital in Italy for further treatment, while the doctors at […]Full Article
by Craig Klugman, Ph.D.
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“I’ve always wanted to try and ensure that, even before having a child and hoping to have children…Two, maximum!
Last week’s by-election in the Welsh constituency of Brecon and Radnorshire saw a reduction of Boris Johnson’s government majority to just one, as Liberal Democrat Jane Dodds won the seat. The result was an interesting one: more voters went for No Deal-friendly parties (mainly Johnson’s Conservatives and the Brexit Party) than for the out-and-out Remainer […]Full Article
by Craig Klugman, Ph.D.
The film, “The Farewell” claims to be a movie “based on an actual lie”. Billi is a first generation Chinese-American twenty-something artist living in New York near her parents.…Full Article
The ethics of research trials for young people with gender dysphoria are complicated. Billion Photos/Shutterstock Dominic Wilkinson, University of Oxford and Julian Savulescu, University of Oxford A recent Newsnight programme reported that a major UK puberty-blocking trial is under investigation. Doctors at a London clinic provided drugs to block the development of puberty in young […]Full Article
by Craig Klugman, Ph.D.
Last week, Amazon announced a new partnership with the UK’s National Health Service(NHS). In this arrangement, when patients ask their Alexa personal digital assistant health questions, the answers will come from the NHS’s website.…Full Article
Hannah Maslen, University of Oxford, @hannahmaslen_ox Colin Paine, Thames Valley Police, @Colin_Paine Police investigators are sometimes faced with a dilemma when deciding whether to pursue investigation of a non-recent case of child sexual abuse. Whilst it might seem obvious at first that the police should always investigate any credible report of an offence – especially […]Full Article
In a recent blog post on this site Dom Wilkinson, writing about the case of Vincent Lambert, said this: ‘If, as is claimed by Vincent’s wife, Vincent would not have wished to remain alive, then the wishes of his parents, of other doctors or of the Pope, are irrelevant. My views or your views on the […]Full Article
by Craig Klugman, Ph.D.
Max Goodwin is at home resting from his chemotherapy after stepping down temporarily from his medical director position.…Full Article
Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana
Ethical Criteria for Health-Promoting Nudges: A Case-by-Case Analysis
Exploring Understanding of “Understanding”: The Paradigm Case of Biobank Consent Comprehension
Informed Consent: A Matter of Aspiration Since 1966 (At Least)
Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial
Withholding and Withdrawing Life-Sustaining Treatment: Ethically Equivalent?
Female Genital Cutting (FGC) and the Cultural Boundaries of Medical Practice
Patients’ Beliefs About Deep Brain Stimulation for Treatment-Resistant Depression
Transgender Children and the Right to Transition: Medical Ethics When Parents Mean Well but Cause Harm
The year-old outbreak has now reached Goma, a heavily populated city near the border with Rwanda. The W.H.O. will ask experts again to decide whether to issue a declaration that could increase funding to fight the disease spread.Full Article
Normally, parents make decisions about their children’s health care. But when it comes to the prevention of sexually transmitted diseases and cancer, kids should have the right to protect themselves. That is why Senate Bill 3899A, which would allow teenagers, in consultation with their physicians, to receive vaccines against HPV (human papilloma virus), ought to become the law in New York.Full Article
NIPT’s entry into the mainstream has raised some questions as busy health-care providers scramble to figure out how to offer it en masse to a public with varying understanding of genetic testing and little access to genetic counselors.Full Article
It felt as if humanity had crossed an important line: In China, a scientist named He Jiankui announced on Monday that twins had been born in November with a gene that he had edited when they were embryos.
But in some ways this news is not new at all. A few genetically modified people already walk among us.Full Article
Ten years ago, Jennifer Wyms was a 17-year-old junior at Normandy High School in Wellston, Mo. She was the captain of her school’s hip-hop dance team and enjoyed going to the mall with friends. But when a health scare engulfed her St. Louis community, it cast a shadow on her high school experience.
A letter from school officials sent to parents and guardians in October 2008 relayed the news that epidemiologists with the St. Louis County Department of Health had grounds to believe that HIV may have been transmitted among some students — as many as 50 students at Normandy High School could have been exposed, it said.
“Everybody wanted to know, who had it? Where it came from? Why our school?” Wyms told The Washington Post.Full Article
But as ubiquitous as the phenomenon is, and as plentiful the studies that demonstrate it, the placebo effect has yet to become part of the doctor’s standard armamentarium — and not only because it has a reputation as “fake medicine” doled out by the unscrupulous to the credulous. It also has, so far, resisted a full understanding, its mechanisms shrouded in mystery. Without a clear knowledge of how it works, doctors can’t know when to deploy it, or how.Full Article
In a landmark move bound to further shake the tobacco industry, the Food and Drug Administration plans to propose a ban on menthol cigarettes next week as part of its aggressive campaign against flavored e-cigarettes and some tobacco products, agency officials said.Full Article
The picture of genetic privacy that emerges from this systematic literature review is complex and riddled with gaps. When asked specifically “are you worried about genetic privacy,” the general public, patients, and professionals frequently said yes. In many cases, however, that question was posed poorly or only in the most general terms. While many participants expressed concern that genomic and medical information would be revealed to others, respondents frequently seemed to conflate privacy, confidentiality, control, and security. People varied widely in how much control they wanted over the use of data.Full Article
The doctor still isn’t supposed to suggest changing medication until they have you genetically tested again by an independent lab. “It seems to me that if a patient has an interest in their pharmacogenetic profile that could impact medication decisions, they’re probably better off just asking the physician about what testing can be doneFull Article
The Food and Drug Administration on Friday approved a new form of an extremely potent opioid to manage acute pain in adults, weeks after the chairman of the advisory committee that reviewed it asked the agency to reject it on grounds that it would likely be abused.Full Article