Bioethics.net » Health Care http://www.bioethics.net Where the World Finds Bioethics Tue, 30 Sep 2014 18:49:49 +0000 en-US hourly 1 http://wordpress.org/?v=3.8.4 Fair-minded Medicine http://feedproxy.google.com/~r/bioethics-at-tiu/~3/ER_aaxE7UyI/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/ER_aaxE7UyI/#comments Sun, 28 Sep 2014 18:56:31 +0000 http://blogs.tiu.edu/bioethics/?p=5329 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/28/fair-minded-medicine/feed/ 0 Festering Mistrust over Brain Death http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/cQGBxy3fKjU/festering-mistrust-over-brain-death.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/cQGBxy3fKjU/festering-mistrust-over-brain-death.html#comments Sun, 28 Sep 2014 11:00:00 +0000 http://www.bioethics.net/?guid=ffab769824a62c427dbadd0141116d2a http://medicalfutility.blogspot.com/feeds/2945664188954682776/comments/default 0 Congress Urges CMS to Adequately Reimburse Physicians for Advance Care Planning http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/r_4snZPP4fE/congress-urges-cms-to-adequately.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/r_4snZPP4fE/congress-urges-cms-to-adequately.html#comments Sat, 27 Sep 2014 09:00:00 +0000 http://www.bioethics.net/?guid=4f1d7fafd6983ad203a3bc472b3aa8e0 http://medicalfutility.blogspot.com/feeds/4547801576886833010/comments/default 0 More on Relativity and Happiness http://www.peterubel.com/behavioral_economics/more-on-relativity-and-happiness/ http://www.peterubel.com/behavioral_economics/more-on-relativity-and-happiness/#comments Fri, 26 Sep 2014 13:22:27 +0000 http://www.peterubel.com/?p=7066 Continue reading ]]> http://www.peterubel.com/behavioral_economics/more-on-relativity-and-happiness/feed/ 0 Australian Medical Association Position Statement on Medical Futility http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/kdHo6ZZcpSk/australian-medical-association-position.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/kdHo6ZZcpSk/australian-medical-association-position.html#comments Fri, 26 Sep 2014 09:00:00 +0000 http://www.bioethics.net/?guid=6a28d00f0d902d7f17c0817fdd9afb6b Earlier this month, the Australian Medical Association released a new "Position Statement on End of Life Care and Advance Care Planning 2014." The statement outlines policy on issues such as medical futility, decision making capacity, advance care planning, artificial nutrition and hydration, bereavement, workforce, and community awareness.

Futile Treatment is defined as "Treatment that no longer provides a benefit to a patient or treatment where the burdens of treatment outweigh the benefits. Doctors are not required to offer treatment options they consider neither medically beneficial nor clinically appropriate."

Here are the three sections on medical futility:


"7.1  Doctors should understand the limits of medicine in prolonging life and recognise when efforts to prolong life may not benefit the patient. In end of life care, medically futile treatment can be considered to be treatment that gives no, or an extremely small, chance of meaningful prolongation of survival and, at best, can only briefly delay the inevitable death of the patient."

"7.2  Whilst doctors are generally not obliged to provide treatments that are considered medically futile, where possible it is important that the doctor discuss their reasons for determining a treatment to be medically futile with the patient (and/or the SDM, carers, family members) before deciding the treatment should not be offered."

"7.3  In some cases, a treatment may not offer a benefit in terms of curing a patient’s condition, or significantly extending life or improving quality of life, but it may benefit the patient in other ways. For example, a ‘medically futile’ treatment may briefly extend the life of the patient so he or she can achieve their wish of saying goodbye to a relative who is arriving shortly from overseas."

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So when do you hope to die? http://feedproxy.google.com/~r/bioethics-at-tiu/~3/mU45bdRUqOk/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/mU45bdRUqOk/#comments Fri, 26 Sep 2014 03:58:24 +0000 http://blogs.tiu.edu/bioethics/?p=5326 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/25/so-when-do-you-hope-to-die/feed/ 0 As Doctors Lose Clout, Drug Firms Redirect the Sales Call http://www.bioethicsinternational.org/blog/2014/09/25/as-doctors-lose-clout-drug-firms-redirect-the-sales-call/ http://www.bioethicsinternational.org/blog/2014/09/25/as-doctors-lose-clout-drug-firms-redirect-the-sales-call/#comments Thu, 25 Sep 2014 20:06:56 +0000 http://www.bioethicsinternational.org/blog/?p=6761 http://www.bioethicsinternational.org/blog/2014/09/25/as-doctors-lose-clout-drug-firms-redirect-the-sales-call/feed/ 0 Behavioral Economics and the Relativity Theory of Happiness http://www.peterubel.com/behavioral_economics/behavioral-economics-and-the-relativity-theory-of-happiness/ http://www.peterubel.com/behavioral_economics/behavioral-economics-and-the-relativity-theory-of-happiness/#comments Thu, 25 Sep 2014 17:39:47 +0000 http://www.peterubel.com/?p=7061 Continue reading ]]> http://www.peterubel.com/behavioral_economics/behavioral-economics-and-the-relativity-theory-of-happiness/feed/ 0 Synthetic Biology: A Study in Reinvention http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7097&blogid=140 http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7097&blogid=140#comments Thu, 25 Sep 2014 14:54:00 +0000 http://www.bioethics.net/?guid=1f2d6ab35f60839130b91bf3ede89f00 Gregory E. Kaebnick

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Synthetic Biology: A Study in Reinvention http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7097&blogid=140 http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7097&blogid=140#comments Thu, 25 Sep 2014 14:54:00 +0000 http://www.bioethics.net/?guid=1f2d6ab35f60839130b91bf3ede89f00 Gregory E. Kaebnick

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Tackling the Problem of Domestic Violence http://thebioethicsprogram.wordpress.com/2014/09/25/tackling-the-problem-of-domestic-violence/ http://thebioethicsprogram.wordpress.com/2014/09/25/tackling-the-problem-of-domestic-violence/#comments Thu, 25 Sep 2014 13:28:58 +0000 http://thebioethicsprogram.wordpress.com/?p=414 ]]> http://thebioethicsprogram.wordpress.com/2014/09/25/tackling-the-problem-of-domestic-violence/feed/ 0 Denying Others the Right to Die (cartoon) http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/qbG-LBedsLo/denying-others-right-to-die-cartoon.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/qbG-LBedsLo/denying-others-right-to-die-cartoon.html#comments Thu, 25 Sep 2014 08:00:00 +0000 http://www.bioethics.net/?guid=f758677d5c3e769d41399316690a7693 http://medicalfutility.blogspot.com/feeds/6487344643853841925/comments/default 0 How does the history of contraceptive responsibility shape current contraceptive coverage conversations? http://www.amc.edu/BioethicsBlog/post.cfm/how-does-the-history-of-contraceptive-responsibility-shape-current-contraceptive-coverage-conversations http://www.amc.edu/BioethicsBlog/post.cfm/how-does-the-history-of-contraceptive-responsibility-shape-current-contraceptive-coverage-conversations#comments Thu, 25 Sep 2014 03:09:14 +0000 http://www.bioethics.net/?guid=7438cb68e875dd29ccad00417f100f5a http://www.bioethics.net/2014/09/how-does-the-history-of-contraceptive-responsibility-shape-current-contraceptive-coverage-conversations/feed/ 0 POLST – New US Map of POLST Paradigm Programs http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/l-RH-a7Cd64/polst-new-us-map-of-polst-paradigm.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/l-RH-a7Cd64/polst-new-us-map-of-polst-paradigm.html#comments Wed, 24 Sep 2014 19:54:00 +0000 http://www.bioethics.net/?guid=d3c5d9f9d2290413b7b16f4e9e5a0dd0




























The National POLST Paradigm Task Force has updated its national map of POLST programs.  Here are the definitions of the different statuses.  

Mature status - the highest level of endorsement by the NPPTF is reserved solely for states with statewide POLST programs that, among other requirements are the standard preferred method of advance care planning for persons with advanced illness or frailty. Mature POLST programs are used by 50% or more of hospitals, nursing homes, and hospices in each region (as defined by established criteria such as EMS, Department of Health, or the Dartmouth Atlas) of the state. These programs are actively gathering data for quality assurance programs and have considered centralized POLST databases.

EndorsedThe NPPTF will endorse state POLST programs when they have developed and implemented a POLST program and form meeting the NPPTF standards. Endorsed programs are POLST programs that have become standard components of advance care planning in their location. These programs have addressed legal and regulatory issues associated with POLST, and have developed strategies for ongoing implementation and quality assurance.

Developing - Programs are recognized as “developing” when they have both: (1) submitted the Developing State Status Application form and (2) presented the state’s POLST form and progress to the NPPTF’s Developing State Assistance Committee (DSAC). Developing POLST Paradigm Programs may be at various stages of development, ranging from the initial design of a POLST form to active usage of POLST forms, but are working towards the goal of implementing the POLST program statewide. In general, programs at this step are starting to contemplate addressing all Seven Core Elements of Sustainability.

NonconformingMaryland legislation that went into effect in 2013 mandates the completion of POLST forms for certain patients. Their program violates the POLST Paradigm’s tenant that completion of a POLST is always voluntary.  The current Massachusetts form does not include the “limited intervention” section that is the heart of POLST and where data documents the highest level of effectiveness but, instead, has a variety of questions. This lack of structure in the form causes confusion and lacks clarity and likely reduces effectiveness in honoring patient wishes.  The current Vermont form is cumbersome and unclear, potentially causing confusion. It also incorporates elements of the state’s advance directive statute, mentioning the concept of futility with respect to the CPR/DNR order section.

No ProgramWhen states are exploring the development of a regional or statewide POLST Paradigm program they can formally connect with the NPPTF. This level is for states not yet ready to complete the Developing POLST Paradigm documentation but who would like to participate in the National POLST Paradigm Program (e.g., receive emails from the national office, attend various education sessions put on by the National Office or the NPPTF, etc).

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Wit, conflict of interest, and John Donne http://feedproxy.google.com/~r/bioethics-at-tiu/~3/ebwppGp72f0/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/ebwppGp72f0/#comments Wed, 24 Sep 2014 15:28:58 +0000 http://blogs.tiu.edu/bioethics/?p=5324 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/24/wit-conflict-of-interest-and-john-donne/feed/ 0 Why We Cannot Trust Political Pundits, or Ourselves http://www.peterubel.com/uncategorized/why-we-cannot-trust-political-pundits-or-ourselves/ http://www.peterubel.com/uncategorized/why-we-cannot-trust-political-pundits-or-ourselves/#comments Wed, 24 Sep 2014 14:06:02 +0000 http://www.peterubel.com/?p=7055 Continue reading ]]> http://www.peterubel.com/uncategorized/why-we-cannot-trust-political-pundits-or-ourselves/feed/ 0 Clinical Informatics: Old Art, New Science http://www.bioethics.net/2014/09/clinical-informatics-old-art-new-science/ http://www.bioethics.net/2014/09/clinical-informatics-old-art-new-science/#comments Wed, 24 Sep 2014 04:13:00 +0000 http://www.bioethics.net/?p=52597 by Eric Swirsky, JD, MA

Through the millennia the science and practice of medicine have evolved and along with them the moral relationship that exists between doctor and patient.  While much has changed, the need for information exchange has not; it is a central component of the doctor-patient relationship and shapes its moral status.  The practice of medicine has been transformed with the rise of the health care industry. Traditional clinical values, such as respecting autonomy, promoting what is best for the patient, refraining from harm, and upholding principles of justice, have been joined by business needs for efficiency, cost effectiveness, and increased productivity.…

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More patients could wear regular clothing in hospital: study http://www.bioethics.net/news/more-patients-could-wear-regular-clothing-in-hospital-study/ http://www.bioethics.net/news/more-patients-could-wear-regular-clothing-in-hospital-study/#comments Tue, 23 Sep 2014 17:55:24 +0000 http://www.bioethics.net/?post_type=news&p=52594 http://www.bioethics.net/news/more-patients-could-wear-regular-clothing-in-hospital-study/feed/ 0 New Education Materials on Compensation for Research-Related Injury http://blog.bioethics.gov/2014/09/23/new-education-materials-on-compensation-for-research-related-injury/ http://blog.bioethics.gov/2014/09/23/new-education-materials-on-compensation-for-research-related-injury/#comments Tue, 23 Sep 2014 15:04:34 +0000 http://blog.bioethics.gov/?p=1420 http://blog.bioethics.gov/2014/09/23/new-education-materials-on-compensation-for-research-related-injury/feed/ 0 Hospice Ethics Policy and Practice in Palliative Care http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/t2EJxGJTSFg/hospice-ethics-policy-and-practice-in.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/t2EJxGJTSFg/hospice-ethics-policy-and-practice-in.html#comments Tue, 23 Sep 2014 11:59:00 +0000 http://www.bioethics.net/?guid=e33b9b64511f42e494616ecba8d2ca37 http://medicalfutility.blogspot.com/feeds/663839653946006306/comments/default 0 Stem Cell Tourism and Patient Education http://www.amc.edu/BioethicsBlog/post.cfm/stem-cell-tourism-and-patient-education http://www.amc.edu/BioethicsBlog/post.cfm/stem-cell-tourism-and-patient-education#comments Tue, 23 Sep 2014 11:09:24 +0000 http://www.bioethics.net/?guid=4f50311cb7598ac7aed5fa88874046f3 http://www.bioethics.net/2014/09/stem-cell-tourism-and-patient-education/feed/ 0 Tobacco is Taking Over the World! http://www.peterubel.com/uncategorized/tobacco-is-taking-over-the-world/ http://www.peterubel.com/uncategorized/tobacco-is-taking-over-the-world/#comments Mon, 22 Sep 2014 17:22:59 +0000 http://www.peterubel.com/?p=7037 Continue reading ]]> http://www.peterubel.com/uncategorized/tobacco-is-taking-over-the-world/feed/ 0 Epistemological Uncertainty & Autonomy http://feedproxy.google.com/~r/bioethics-at-tiu/~3/TWxC3O2zaA0/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/TWxC3O2zaA0/#comments Mon, 22 Sep 2014 13:53:56 +0000 http://blogs.tiu.edu/bioethics/?p=5309 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/22/epistemological-uncertainty-autonomy/feed/ 0 Health Care Reform Implementation in Minnesota: Mission Advanced But Not Accomplished http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/ihpOTBdcruI/health-care-reform-implementation-in.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/ihpOTBdcruI/health-care-reform-implementation-in.html#comments Sun, 21 Sep 2014 19:36:00 +0000 http://www.bioethics.net/?guid=e15fb0f6edb955e95fa33fa87af10fa7 http://medicalfutility.blogspot.com/feeds/1499560347664397494/comments/default 0 Careers & Pro Bono Opportunities in Bioethics & Law http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/BpVJfh5V-jg/careers-pro-bono-opportunities-in.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/BpVJfh5V-jg/careers-pro-bono-opportunities-in.html#comments Sun, 21 Sep 2014 19:29:00 +0000 http://www.bioethics.net/?guid=eeefc22ca93752a3808bc6fb89d2bd2b http://medicalfutility.blogspot.com/feeds/1658542618161237147/comments/default 0 Population Health: the New Medicine http://feedproxy.google.com/~r/bioethics-at-tiu/~3/8dzTe3rLo1E/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/8dzTe3rLo1E/#comments Sat, 20 Sep 2014 13:34:24 +0000 http://blogs.tiu.edu/bioethics/?p=5301 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/20/population-health-the-new-medicine/feed/ 0 Both Sides Now: Living with Dying: An Immersive Arts Experience http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/ynNM1_ATOKY/both-sides-now-living-with-dying.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/ynNM1_ATOKY/both-sides-now-living-with-dying.html#comments Sat, 20 Sep 2014 12:57:00 +0000 http://www.bioethics.net/?guid=567bf238679fd6137f70f90ce57faa62 http://medicalfutility.blogspot.com/feeds/1656941670173618468/comments/default 0 Both Sides Now: Living with Dying: An Immersive Arts Experience http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/ynNM1_ATOKY/both-sides-now-living-with-dying.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/ynNM1_ATOKY/both-sides-now-living-with-dying.html#comments Sat, 20 Sep 2014 12:57:00 +0000 http://www.bioethics.net/?guid=567bf238679fd6137f70f90ce57faa62 http://medicalfutility.blogspot.com/feeds/1656941670173618468/comments/default 0 Antidepressants: Society duped? http://feedproxy.google.com/~r/bioethics-at-tiu/~3/fIT3I_-ZSuk/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/fIT3I_-ZSuk/#comments Sat, 20 Sep 2014 03:32:44 +0000 http://blogs.tiu.edu/bioethics/?p=5290 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/19/antidepressants-society-duped/feed/ 0 Heart-Wrenching Words from Beethoven on Deafness http://www.peterubel.com/uncategorized/heart-wrenching-words-from-beethoven-on-deafness/ http://www.peterubel.com/uncategorized/heart-wrenching-words-from-beethoven-on-deafness/#comments Fri, 19 Sep 2014 16:29:03 +0000 http://www.peterubel.com/?p=7031 Continue reading ]]> http://www.peterubel.com/uncategorized/heart-wrenching-words-from-beethoven-on-deafness/feed/ 0 Ethical Issues in End-of-Life Care: MacLean Center Interdisciplinary Faculty Seminar Series http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/fr8n2hq7cMA/maclean-center-ethical-issues-in-end-of.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/fr8n2hq7cMA/maclean-center-ethical-issues-in-end-of.html#comments Fri, 19 Sep 2014 12:30:00 +0000 http://www.bioethics.net/?guid=bf06547a7fee0072969d91ce31ed317c Check out this amazing roster of nearly 30 world class seminars on end-of-life issues in the MacLean Center's 2014-2015 Interdisciplinary Faculty Seminar Series.

In the past 50 years, medicine has developed new and unprecedented technologies like breathing machines and dialysis that can prevent or delay death. These technologies have changed how people die, where people die, and physicians’ responsibilities to dying patients. During these 50 years, physicians and society have gradually learned how to best apply these life-saving technologies and how to stop them. In the vast majority of cases in which death is anticipated, patients, families and physicians reach prudent and “negotiated” decisions on when to stop aggressive care.

Yet questions remain. Advance directives have not been the panacea they were hoped to be and deciding for patients who are unable to speak for themselves remains painfully difficult for families and practitioners. Newer technologies such as implanted cardiac defibrillators, left ventricular assist devices, extracorporeal membrane oxygenation continue to raise new questions. Euthanasia and physician assisted suicide remain contentious subjects. Even questions that were thought settled, such as brain death and palliative sedation, have generated new controversies. Further, the cost of caring for patients at the end of life continues to consume a large percentage of the health budget, raising questions about the optimal and just use of health care resources.

THE ETHICS OF GLOBAL PALLIATIVE CARE
KATHEY FOLEY
Wednesday, October 8

THE DEFINITION OF DEATH: NEWLY EMERGING CONTROVERSIES
ROBERT VEATCH
Wednesday, October 15

STARTING VERY SMALL: NEWBORN PERSPECTIVES ON THE BIG DECISIONS
PERRIS KLASS
Wednesday, October 22

BEING MORTAL: MEDICINE AND WHAT MATTERS IN THE END
ATUL GAWANDE
Thursday, October 23

VOLUNTARILY STOPPING EATING AND DRINKING: SEPARATING THE WHEAT FROM THE CHAFF
DANIEL SULMASY
Wednesday, October 29

THE LACK OF CONSENSUS ABOUT FUTILITY
ALAN MEISEL
Wednesday, November 5

TRANFORMING HOW WE CARE FOR THOSE NEAR THE END OF LIFE
SUSAN TOLLE
Wednesday, November 12

COMMUNICATING ABOUT PROGNOSIS AND END-OF-LIFE CARE IN PATIENTS WITH ADVANCED CANCER
JENNIFER TEMEL
Wednesday, November 19

THE FIVE HORSEMEN: MANAGING ‘WICKED’ GLOBAL CRISES
DANIEL CALLAHAN
Wednesday, December 3

SEDATION, CONSCIOUSNESS AND PERSONHOOD: CLINICAL AND ETHICAL PERSPECTIVES IN A PALLIATIVE SETTING
TIMOTHY QUILL
Wednesday, December 10

DONATION AFTER CARDIAC DEATH (DCD): ACADEMIC DISSENT FAILS PATIENTS
TRACY KOOGLER
Wednesday, January 7

THE COST OF END-OF-LIFE CARE
TOMAS PHILIPSON
Wednesday, January 14

MEDICAL STUDENT REFLECTIONS ON CARING FOR DYING PATIENTS
MARK KUCZEWSKI
Wednesday, January 21

WHEN GOOD INTENTIONS AREN’T ENOUGH: BARRIERS TO OPTIMAL END-OF-LIFE CARE
RANJANA SRIVASTAVA
Wednesday, January 28

END-OF-LIFE DECISIONS IN PEDIATRICS: WHY THEY ARE DIFFERENT
JOEL FRADER
Wednesday, February 4

PREDICTING END OF LIFE
BILL MEADOW
Wednesday, February 11

DEMOCRATIC LEGITIMACY AND END-OF-LIFE DECISIONS
DAN BRUDNEY
Wednesday, February 18

THE PROMISE OF A TREATMENT: CARDIAC ARREST AND ITS EFFECT ON CONTEMPORARY MEDICINE
DAN BRAUNER
Wednesday, February 25

ETHICAL OBLIGATIONS AND CLINICAL CARE IN END-OF-LIFE CARE: DERIVING A QUALITY-OF-LIFE CONSTRUCT BASED ON THE ISLAMIC CONCEPT OF ACCOUNTABILITY BEFORE GOD
AASIM PADELA
Wednesday, March 4

TORT LIABILITY IN END-OF-LIFE CARE
NADIA SAWICKI
Wednesday, March 11

ETHICAL ISSUES IN DISCONTINUING LVADS
SAVITRI FEDSON
Wednesday, April 1

IMPROVING QUALITY REDUCES COSTS: ETHICAL ASPECTS OF CARE FOR THE SERIOUSLY ILL
DIANE MEIER
Wednesday, April 8

PERSONS WITH DEMENTIA: ARE THEY THE CANARY IN THE COAL MINE?
JOAN TENO
Wednesday, April 15

WHAT’S SO HARD ABOUT END-OF-LIFE DECISION-MAKING?
PETER UBEL
Wednesday, April 22

A GENERATION LATER: WHY HAS THE END-OF-LIFE DEBATE ENDED?
RICHARD EPSTEIN
Wednesday, April 29

ECMO AS A ‘BRIDGE TO NOWHERE’: ETHICALLY CHALLENGING POIGNANT CASES FROM THE TECHNOLOGICAL EDGE
KEN PRAGER
Wednesday, May 6

LAST EXIT OFF THE CARDIAC FREEWAY: ETHICAL CONSIDERATIONS IN PALLIATIVE CARE AND CARDIOVASCULAR IMPLANTABLE ELECTRONIC DEVICES
JAMES KIRKPATRICK
Wednesday, May 13

ONE EXPLORER’S MAP INTO THE WORLD OF PALLIATIVE CARE CHAPLAINCY RESEARCH
LINDA EMANUEL
Wednesday, May 20

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“Financial Toxicity” http://feedproxy.google.com/~r/bioethics-at-tiu/~3/L0W74_VzfZw/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/L0W74_VzfZw/#comments Fri, 19 Sep 2014 02:02:36 +0000 http://blogs.tiu.edu/bioethics/?p=5287 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/18/financial-toxicity/feed/ 0 Genetic Testing For All: Is It Eugenics? http://www.amc.edu/BioethicsBlog/post.cfm/genetic-testing-for-all-is-it-eugenics http://www.amc.edu/BioethicsBlog/post.cfm/genetic-testing-for-all-is-it-eugenics#comments Fri, 19 Sep 2014 01:09:27 +0000 http://www.bioethics.net/?guid=9313b6d47d166eeac2c9b827f40ab955 http://www.bioethics.net/2014/09/genetic-testing-for-all-is-it-eugenics/feed/ 0 Responding to Ebola: Retrofitting Governance Systems http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7076&blogid=140 http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7076&blogid=140#comments Thu, 18 Sep 2014 14:54:00 +0000 http://www.bioethics.net/?guid=92ab04c313e1fdf00dbb98a70a5d5c9a Mohini Banerjee and Chelsea Jack]]> http://www.bioethics.net/2014/09/responding-to-ebola-retrofitting-governance-systems/feed/ 0 Better to Be Dead than Disabled? http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/rION1KSNLNQ/better-to-be-dead-than-disabled.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/rION1KSNLNQ/better-to-be-dead-than-disabled.html#comments Thu, 18 Sep 2014 12:53:00 +0000 http://www.bioethics.net/?guid=3b15a61d7d18e42456ccf28ae99266e5 The disability rights group Not Dead Yet is leading a three-day protest vigil against the World Federation of Right to Die Societies which is holding a meeting that I am attending in Chicago.  

Disability rights advocates have certainly expressed some valid concerns about the expansion of options to hasten death.  Legislators, regulators, and clinicians should seriously grapple with concerns like risks of bias and coercion.  

Unfortunately, the disability groups reach far beyond their valid concerns to make hyperbolic comments.  For example, Not Dead Yet president Diane Coleman stated: "We are here to contradict the message of these groups that it’s better to be dead than disabled."  

That is emphatically not the message of any group attending this meeting.  The core thesis of this meeting is that particular individuals, after careful deliberation, may determine that in their own situation they want to avoid the effects of advanced illnesses like severe dementia.  They would rather die than live a life that they find intolerable. 

There has not been a single suggestion about what individuals ought to choose.  The focus remains on what individuals may choose, on what they have a right to choose for themselves.

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Improving Quality and Honoring Individual Preferences Near the End of Life (IOM 2014) http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/R4NWsNPCyQQ/improving-quality-and-honoring.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/R4NWsNPCyQQ/improving-quality-and-honoring.html#comments Thu, 18 Sep 2014 12:34:00 +0000 http://www.bioethics.net/?guid=79193db9ff12cc70c9302842d3dd63de http://medicalfutility.blogspot.com/feeds/3314415820565215067/comments/default 0 Designing a Better Restaurant Menu http://www.peterubel.com/behavioral_economics/designing-a-better-restaurant-menu/ http://www.peterubel.com/behavioral_economics/designing-a-better-restaurant-menu/#comments Thu, 18 Sep 2014 12:11:41 +0000 http://www.peterubel.com/?p=7026 Continue reading ]]> http://www.peterubel.com/behavioral_economics/designing-a-better-restaurant-menu/feed/ 0 Ebola and the cultural understanding of disease http://feedproxy.google.com/~r/bioethics-at-tiu/~3/Zy9N-VDUfOk/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/Zy9N-VDUfOk/#comments Thu, 18 Sep 2014 00:44:59 +0000 http://blogs.tiu.edu/bioethics/?p=5284 Read More »]]> http://blogs.tiu.edu/bioethics/2014/09/17/ebola-and-the-cultural-understanding-of-disease/feed/ 0 Just Published Hastings Center Report Highlights “Teaching Bioethics” http://blog.bioethics.gov/2014/09/17/just-published-hastings-center-report-highlights-teaching-bioethics/ http://blog.bioethics.gov/2014/09/17/just-published-hastings-center-report-highlights-teaching-bioethics/#comments Wed, 17 Sep 2014 20:13:52 +0000 http://blog.bioethics.gov/?p=1416 http://blog.bioethics.gov/2014/09/17/just-published-hastings-center-report-highlights-teaching-bioethics/feed/ 0 Just Published Hastings Center Report Highlights “Teaching Bioethics” http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7074&blogid=140 http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7074&blogid=140#comments Wed, 17 Sep 2014 14:54:00 +0000 http://www.bioethics.net/?guid=eefdd69b8416e36a20319736409a3a6e Hillary Wicai Viers]]> http://www.bioethics.net/2014/09/just-published-hastings-center-report-highlights-teaching-bioethics-2/feed/ 0 What’s Really Scary about Obamacare http://www.peterubel.com/health_policy/whats-really-scary-about-obamacare/ http://www.peterubel.com/health_policy/whats-really-scary-about-obamacare/#comments Wed, 17 Sep 2014 13:29:03 +0000 http://www.peterubel.com/?p=7022 Continue reading ]]> http://www.peterubel.com/health_policy/whats-really-scary-about-obamacare/feed/ 0 Prevalence of Non-Beneficial ICU Treatment http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/4FZ5Crt0UAI/prevalence-of-non-beneficial-icu.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/4FZ5Crt0UAI/prevalence-of-non-beneficial-icu.html#comments Wed, 17 Sep 2014 11:00:00 +0000 http://www.bioethics.net/?guid=caa6c01121869369df84703f9c796c36 http://medicalfutility.blogspot.com/feeds/6549548527755161382/comments/default 0 International Resource Library on Adult Guardianship http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Cm33duIVeOc/international-resource-library-on-adult.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Cm33duIVeOc/international-resource-library-on-adult.html#comments Wed, 17 Sep 2014 09:00:00 +0000 http://www.bioethics.net/?guid=f0791fb1d57d43de5d77fc6fe149c18a The 3rd World Congress on Adult Guardianship recently convened in Washington, DC. One of the goals of this Congress was to form an online International Resource Library on Adult Guardianship.  That resource is now available here.

The organizers are also looking for more submissions, including papers, brochures, manuals, handbooks and more, are welcome if they would be of help to others.  Submissions may be made by emailing info@nationalguardianshipnetwork.org with the subject line “resource library.” Please provide, in English, a description regarding the document(s) you send, so that they can name and categorize them. 


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A call for “new rules” for Internet-based research http://researchethicsblog.com/2014/09/16/a-call-for-new-rules-for-internet-based-research/ http://researchethicsblog.com/2014/09/16/a-call-for-new-rules-for-internet-based-research/#comments Tue, 16 Sep 2014 21:18:43 +0000 http://researchethicsblog.com/?p=606 ]]> http://researchethicsblog.com/2014/09/16/a-call-for-new-rules-for-internet-based-research/feed/ 0 When It Comes to Sex, We Are All Animals http://www.peterubel.com/behavioral_economics/when-it-comes-to-sex-we-are-all-animals/ http://www.peterubel.com/behavioral_economics/when-it-comes-to-sex-we-are-all-animals/#comments Tue, 16 Sep 2014 19:50:43 +0000 http://www.peterubel.com/?p=7017 Continue reading ]]> http://www.peterubel.com/behavioral_economics/when-it-comes-to-sex-we-are-all-animals/feed/ 0 Is It Possible To Do Bioethics In Contemporary America? http://www.amc.edu/BioethicsBlog/post.cfm/is-it-possible-to-do-bioethics-in-contemporary-america http://www.amc.edu/BioethicsBlog/post.cfm/is-it-possible-to-do-bioethics-in-contemporary-america#comments Tue, 16 Sep 2014 11:09:10 +0000 http://www.bioethics.net/?guid=97e81e0b71c23e99ea502b877102a713 http://www.bioethics.net/2014/09/is-it-possible-to-do-bioethics-in-contemporary-america/feed/ 0 Emotional, Religious Reasons to Keep Grandson in PVS on Life Support http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/7H9_OKzNo-4/emotional-religious-reasons-to-keep.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/7H9_OKzNo-4/emotional-religious-reasons-to-keep.html#comments Tue, 16 Sep 2014 11:00:00 +0000 http://www.bioethics.net/?guid=8b2cb3f4772ee6ca31fa9aeb398b9c18 This sad story in the Chicago Tribune powerfully illustrates why one grandmother could not consent to comfort care only for her grandson.  

The grandmother's daughter had been shot by a gang member while still pregnant.  "To Jefferson, the baby looked just like her daughter — her face, her color, her hands. But doctors told her [the baby] would remain in a persistent vegetative state, unable to see, hear or breathe on his own."  Clinicians "urged her to remove him from life support, telling her his condition would never improve." 

The grandmother "set the date to pull the plug — Oct. 20, 2011, what would have been her daughter's 18th birthday.  But she had a change of heart as she entered Advocate Christ Medical Center that day.  

"I couldn't see turning the machine off on him . . ..   Who am I to judge whether he lives or dies, OK?  I think at (the hospital) a lot of them were kind of disappointed with me because they thought actually I was
going to turn the machine off. . . .  But my faith didn't allow me to do it."

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CALL FOR PAPERS Aging, Law, & Society Critical Research Network http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/TjNRNC3KriE/call-for-papers-aging-law-society.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/TjNRNC3KriE/call-for-papers-aging-law-society.html#comments Tue, 16 Sep 2014 10:00:00 +0000 http://www.bioethics.net/?guid=89bd636eff0f13b6fbb9fc8a051d59ae CALL FOR PAPERS

Aging, Law, & Society Critical Research Network


Law and Society Association Annual Meeting

Seattle, May 28 – May 31, 2015

The Aging, Law, and Society Critical Research Network (CRN) invites scholars to participate in a multi-event workshop sponsored by the CRN as part of the Law and Society Association’s 2014 Annual Meeting.  The Aging, Law & Society CRN brings together scholars from across disciplines to share research and ideas about the relationship between law and aging, including how the law responds the needs of persons as they age and how law shapes the aging experience.


At this year’s meeting, the CRN will sponsor two primary types of panels at the annual meeting:  (1) themed panel presentations on topics selected by the programming committee; and (2) workshops in which scholars present works-in-progress and receive commentary from an assigned discussant.


Accordingly, the CRN encourages paper proposals on a broad range of issues related to law and aging.  However, we especially encourage proposals on the following topics:


·         Comparative approaches to elder law and old age policy;

·         The interaction between elder law and labor and employment law;

·         Creative and empirical methodologies for studying law and aging;

·         The conference theme:  law’s promises and law’s pathos in domestic and transnational contexts.


In addition to paper proposals, we also welcome:

·         Ideas and proposals for themed panels:  In particular, please email Nina Kohn at nakohn@law.syr.edu if you are already planning a panel that you would like to have featured as part of the Aging, Law, and Society CRN; and

·         Volunteers to serve as commentators on works-in-progress. 


If you would like to present a paper as part of a the CRN’s programming, please send a 400-500 word abstract, with your name, full contact information, and a paper title to both Nina Kohn (nakohn@law.syr.edu) and Nancy Knauer (nknauer@temple.edu).   Please indicate the stage at which the paper will be, or is expected to be, in May of 2014.  If you wish to present a paper showcasing a research methodology, please send additional copies to Israel Doron (idoron@univ.haifa.ac.il) and Daphna Hacker (dafna@post.tau.ac.il).



Please submit all proposals for paper presentations by no later than October 1, 2014.   Earlier submissions are highly encouraged and will be given priority. 

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Minnesota Maintains 100 Percent Rate for Advance Care Planning http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/DseR57U6GSM/minnesota-maintains-100-percent-rate.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/DseR57U6GSM/minnesota-maintains-100-percent-rate.html#comments Tue, 16 Sep 2014 09:00:00 +0000 http://www.bioethics.net/?guid=468f1d2a11ba1b5469e5022620f5c4ce http://medicalfutility.blogspot.com/feeds/8523860540961938327/comments/default 0 Vincent Lambert – Treatment Pending European Court of Human Rights http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/TsT-lvVFgZw/vincent-lambert-treatment-pending.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/TsT-lvVFgZw/vincent-lambert-treatment-pending.html#comments Tue, 16 Sep 2014 08:00:00 +0000 http://www.bioethics.net/?guid=44a3efc9f4642880d3232ab2a333a3f1 http://medicalfutility.blogspot.com/feeds/1343225701066247760/comments/default 0