Bioethics.net » Health Care http://www.bioethics.net Where the World Finds Bioethics Tue, 25 Nov 2014 16:49:05 +0000 en-US hourly 1 http://wordpress.org/?v=4.0.1 What Jonathan Gruber Didn’t Say About Obamacare http://www.peterubel.com/health_policy/what-jonathan-gruber-didnt-say-about-obamacare/ http://www.peterubel.com/health_policy/what-jonathan-gruber-didnt-say-about-obamacare/#comments Tue, 25 Nov 2014 16:49:05 +0000 http://www.peterubel.com/?p=7137 Continue reading ]]> http://www.peterubel.com/health_policy/what-jonathan-gruber-didnt-say-about-obamacare/feed/ 0 Bad Blood Author James H. Jones Visits the Bioethics Commission http://blog.bioethics.gov/2014/11/25/bad-blood-author-james-h-jones-visits-the-bioethics-commission/ http://blog.bioethics.gov/2014/11/25/bad-blood-author-james-h-jones-visits-the-bioethics-commission/#comments Tue, 25 Nov 2014 16:21:45 +0000 http://blog.bioethics.gov/?p=1498 http://blog.bioethics.gov/2014/11/25/bad-blood-author-james-h-jones-visits-the-bioethics-commission/feed/ 0 New Advance Care Planning Videos Show How to Avoid Premature Dying http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/eUyBTboq5m4/new-advance-care-planning-videos-show.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/eUyBTboq5m4/new-advance-care-planning-videos-show.html#comments Tue, 25 Nov 2014 15:03:00 +0000 http://www.bioethics.net/?guid=9c6b121a2b932d74a85873c95c6d827f Did Robin Williams commit suicide due to fear of Advanced Dementia? Did Brittany Maynard hasten her dying based on her fear of future unbearable pain? Did they pay the high price of premature dying—losing some remaining enjoyable life—to act while they still had capacity to control WHEN they died? Might they have lived longer had they been aware of an effective plan to die AFTER losing capacity?

Psychiatrist/bioethicist Stanley Terman, PhD, MD, Medical Director and CEO of the non-profit organization, Caring Advocates, has created ​three ​new videos from live presentations in Oct. and Nov. 2014​.

​1) The BEST WAY to Say Goodbye—if living with pain or dementia.​

Th​is video portrays poignant stories of patients that illustrate the need for diligent, strategic Advance Care Planning:

Robin Williams: Was a “key factor” in his decision to commit suicide experiencing hallucinations or other symptoms of early Lewy Body Dementia? Might he have suffered from the “Dementia Fear”?

Brittany Maynard: She admitted this “did not seem like the right time” but then died a few days later. She feared cancer would take away her autonomy: “The worst thing that could happen to me is that I wait too long.” Where there issues she could have worked on to reduce her current suffering, so she could decide to live longer?

Meryl Comer: As her husband’s caregiver, she considers herself a “POA” (Prisoner of Alzheimer’s). Dr. Gralnick was diagnosed 20 years ago. Yet no professional has ever advised Ms Comer about the ethically accepted method of “Substituted Judgment” to make end-of-life decisions. The new “Consensus of Substituted Judgment” method strives to be more accurate, less stressful, and its protocol has built-in, a way to deal with family conflicts.

Margaret Bentley: Neither the administrators of her residential care facility nor the court would HONOR the instructions she made in her Living Will, even though they were consistent with the requests made by her husband and daughter—her proxies/agents. Her sad story shows why DILIGENCE is necessary when completing a written Living Will.

Casey Kasem: His final weeks were plagued with pain and family conflict. The misery of his last chapter of life might have been avoided had he used his (famous) voice to make a strategic audio or video recording on which he stated what he wanted and explained why.

Gillian Bennett: Was her suicide premature and motivated by the “Dementia Fear”? Would she have decided to live longer if she had known about, and had confidence in a strategic plan to implement Natural Dying—AFTER she reached the stage of Advanced Dementia?

Sadly, many people are led to believe they have ONLY two options: premature dying (so they lose some joyful life) OR prolonged dying (so they are forced to endure more suffering longer). A third option makes premature dying unnecessary, sad, and tragic: Diligent, strategic Advance Care Planning.

This one-hour video can be viewed in two parts. Part 2 begins at minute 36. It includes:

  • What is Natural Dying and why is it a peaceful and moral way to die?
  • How can you complete a clear, specific Living Will by making “one decision at a time”? 
  • How can you set up a strategy to feel confident you will get relief from end-of-life pain?
  • What can you do to relieve the prolonged suffering of a loved one who now lives with Advanced Dementia—if he never completed a clear and specific Living Will?

​2) ​Lost, NOT found in Alzheimer’s—important, timely & relevant lessons in Meryl Comer’s revealing book:

“Slow Dancing with a Stranger—Lost and Found in the Age of Alzheimer’s” is inspiring, informative, and above all, honest. It shines a bright light on the dark side, to allow readers to learn what is important, timely, and relevant. It can motivate readers to complete their own diligent Advance Care Planning, if they ever reach the stage of Advanced Dementia. It also demonstrates the urgent need for broader education so that people are informed about end-of-life options that are legal and moral—if their loved one did not previously complete a clear and specific Living Will.

Three events had potential to dramatically change the lives of two people in their prime. Emmy-award winning journalist, Meryl Comer as the "POA"--"Prisoner of Alzheimer's" and her afflicted with dementia husband, Harvey Gralnick, the former head of oncology and hematology at the National Institutes of Health. These events were:  
(1) Not receiving an accurate diagnosis promptly;
(2) Not receiving a realistic potential prognosis; and,
(3) Not receiving information and advice so the POA would know how to implement the ethically accepted standard of “Substituted Judgment method” that she needed, to make a difficult end-of-life decision.

WITHDRAWING hand-feeding/drinking but still offering (that is, NEVER WITHHOLDING) the vital substances of food and fluid can be clinically and ethically appropriate to reduce prolonged and intense suffering of Advanced Dementia patients. Such actions can also be considered consistent with the Principle of Proportionality.


​3) ​Must we all die with forced hand-feeding in Advanced Dementia? Will others honor our Living Will?” 
​​
​Initially, this PowerPoint ​presentation was given to the American Society for Bioethics and Humanities annual meeting in October, 2014​. This video has a revised​, updated audio.

Dementia (Alzheimer's) presents huge challenges. In the advanced stage, the goal to sustain life may conflict with the goal to relieve suffering.

Margot Bentley completed a strongly worded Living Will because she was adamant: She did NOT want to suffer a long time in Advanced Dementia. She also appointed her warriors: her husband and daughter —to make sure her wishes would be honored.

Sadly, her plan did not work. She has now been forced-fed for three years.
What can we learn about from her experience?

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Where Social Justice Fits in Medical Decision-Making http://thebioethicsprogram.wordpress.com/2014/11/24/where-social-justice-fits-in-medical-decision-making/ http://thebioethicsprogram.wordpress.com/2014/11/24/where-social-justice-fits-in-medical-decision-making/#comments Mon, 24 Nov 2014 14:23:24 +0000 http://thebioethicsprogram.wordpress.com/?p=436 ]]> http://thebioethicsprogram.wordpress.com/2014/11/24/where-social-justice-fits-in-medical-decision-making/feed/ 0 Stop Unwanted Medical Treatment http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/hC67HEKhaN4/stop-unwanted-medical-treatment.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/hC67HEKhaN4/stop-unwanted-medical-treatment.html#comments Mon, 24 Nov 2014 13:18:00 +0000 http://www.bioethics.net/?guid=9aaed0708a4341a828fbb414b4d68847 http://medicalfutility.blogspot.com/feeds/2389904801965589296/comments/default 0 Deregulation and Free Markets for Stem Cell Products http://www.amc.edu/BioethicsBlog/post.cfm/deregulation-and-free-markets-for-stem-cell-products http://www.amc.edu/BioethicsBlog/post.cfm/deregulation-and-free-markets-for-stem-cell-products#comments Mon, 24 Nov 2014 03:11:14 +0000 http://www.bioethics.net/?guid=051efcbd81bd16b15816ef84c9089ad8 http://www.bioethics.net/2014/11/deregulation-and-free-markets-for-stem-cell-products/feed/ 0 Mary Welch Charged with Medical Child Abuse for Obtaining Unnecessary Treatment http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/2ItakOxGTX4/mary-welch-charged-with-medical-child.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/2ItakOxGTX4/mary-welch-charged-with-medical-child.html#comments Sat, 22 Nov 2014 23:17:00 +0000 http://www.bioethics.net/?guid=1b702b6f704a668e6a8217ff08aa1dce http://medicalfutility.blogspot.com/feeds/100688994705966836/comments/default 0 Brain in a Jar – Sufficient Reason to Keep Me Alive http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/rTVLsVdZeJo/brain-in-jar-sufficient-reason-to-keep.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/rTVLsVdZeJo/brain-in-jar-sufficient-reason-to-keep.html#comments Sat, 22 Nov 2014 00:00:00 +0000 http://www.bioethics.net/?guid=d031441e72537006f9644861202af606 http://medicalfutility.blogspot.com/feeds/6538445662921861652/comments/default 0 Bioethics Exam http://feedproxy.google.com/~r/bioethics-at-tiu/~3/-Ki3mHNqw98/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/-Ki3mHNqw98/#comments Fri, 21 Nov 2014 21:20:28 +0000 http://blogs.tiu.edu/bioethics/?p=5530 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/21/bioethics-exam/feed/ 0 The Bioethics Commission’s Neuro Double-Header http://blog.bioethics.gov/2014/11/21/the-bioethics-commissions-neuro-double-header/ http://blog.bioethics.gov/2014/11/21/the-bioethics-commissions-neuro-double-header/#comments Fri, 21 Nov 2014 16:14:51 +0000 http://blog.bioethics.gov/?p=1495 http://blog.bioethics.gov/2014/11/21/the-bioethics-commissions-neuro-double-header/feed/ 0 Time To Stop Paying For Pepsi With Food Stamps http://www.peterubel.com/behavioral_economics/time-to-stop-paying-for-pepsi-with-food-stamps/ http://www.peterubel.com/behavioral_economics/time-to-stop-paying-for-pepsi-with-food-stamps/#comments Fri, 21 Nov 2014 13:51:23 +0000 http://www.peterubel.com/?p=7131 Continue reading ]]> http://www.peterubel.com/behavioral_economics/time-to-stop-paying-for-pepsi-with-food-stamps/feed/ 0 Resident physicians as the key to Do Not Resuscitate orders http://feedproxy.google.com/~r/bioethics-at-tiu/~3/zHXMJwpXsA0/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/zHXMJwpXsA0/#comments Fri, 21 Nov 2014 05:24:00 +0000 http://blogs.tiu.edu/bioethics/?p=5528 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/20/resident-physicians-as-the-key-to-do-not-resuscitate-orders/feed/ 0 Resolving Medical Futility Disputes – Alberta follows Ontario in Chalifoux v. Alberta Health Services http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/DJZ67-PJEa8/resolving-medical-futility-disputes.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/DJZ67-PJEa8/resolving-medical-futility-disputes.html#comments Thu, 20 Nov 2014 09:00:00 +0000 http://www.bioethics.net/?guid=906d9bd5ab7a0a7aa289e28108cb9693 http://medicalfutility.blogspot.com/feeds/1351757011543321349/comments/default 0 The Ethics of Uterus Transplantation http://www.amc.edu/BioethicsBlog/post.cfm/the-ethics-of-uterus-transplantation http://www.amc.edu/BioethicsBlog/post.cfm/the-ethics-of-uterus-transplantation#comments Thu, 20 Nov 2014 03:11:10 +0000 http://www.bioethics.net/?guid=3d30036279e191ee0c0a8311c3b05101 http://www.bioethics.net/2014/11/the-ethics-of-uterus-transplantation/feed/ 0 Martha Perez – Texas Family Charges Organs Procured BEFORE Death http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/swOwsmD0pbs/martha-perez-texas-family-charges.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/swOwsmD0pbs/martha-perez-texas-family-charges.html#comments Wed, 19 Nov 2014 08:30:00 +0000 http://www.bioethics.net/?guid=6676762e5cd49c933e8a9f3efe8df6c6 I recently summarized a few cases in which a patient was either negligently or intentionally declared dead prematurely.  

But this recent case reported by Fox News in Dallas Fort Worth indicates misunderstanding by the family rather than error by the clinicians.  

26-year-old Martha Perez dies from injuries sustained in an car wreck involving a suspected drunk driver.  Perez was a registered organ donor and doctors told the family they were prepared to harvest the organs for donations.

The family objected: “But she still has heart and lung functions,” said family member Juan Martinez.  Unfortunately, this statement indicates that the family does not understand that these cardiopulmonary functions are compatible with legal death in Texas.  They can be artificially sustained even after death is determined (on neurological criteria).   

On the other hand, the family also alleges: “They took her off the life support and she was still breathing.”  If that is true, then the determination of death must have been wrong.  A person breathing on their own (without ventilation support) cannot be dead under either cardiopulmonary or neurological criteria.

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Found: Billions of Wasted Medicare Dollars http://www.peterubel.com/health_policy/found-billions-of-wasted-medicare-dollars/ http://www.peterubel.com/health_policy/found-billions-of-wasted-medicare-dollars/#comments Tue, 18 Nov 2014 13:48:39 +0000 http://www.peterubel.com/?p=7127 Continue reading ]]> http://www.peterubel.com/health_policy/found-billions-of-wasted-medicare-dollars/feed/ 0 Texas Legislature to Address Marlise Munoz Dead Pregnant Situation http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/7UeSGlD1icI/texas-legislature-to-address-marlise.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/7UeSGlD1icI/texas-legislature-to-address-marlise.html#comments Tue, 18 Nov 2014 10:30:00 +0000 http://www.bioethics.net/?guid=3f649abba5780d90a459fcbbd929495d http://medicalfutility.blogspot.com/feeds/8366669417432158896/comments/default 0 Elderspeak: Words Can Hurt http://www.bioethics.net/2014/11/elderspeak-words-can-hurt/ http://www.bioethics.net/2014/11/elderspeak-words-can-hurt/#comments Tue, 18 Nov 2014 07:04:33 +0000 http://www.bioethics.net/?p=53087 by Craig Klugman, Ph.D.

During the season premiere of the HBO comedy, Getting On, I noticed the excessive use of toddler-speak toward patients portrayed as being elderly. The show takes place in a senior rehab/hospice unit in a community hospital. Whenever one of the health care providers (physician or nurse) was speaking to one of the patients, they tended to use baby talk—higher pitch, lilting tone, longer spaces between words, elongated space around vowels, and using simple, shortened words.…

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Genetic Testing Can’t Do Our Behavioral Dirty Work http://www.peterubel.com/mdm/genetic-testing-cant-do-our-behavioral-dirty-work/ http://www.peterubel.com/mdm/genetic-testing-cant-do-our-behavioral-dirty-work/#comments Mon, 17 Nov 2014 18:04:36 +0000 http://www.peterubel.com/?p=7123 Continue reading ]]> http://www.peterubel.com/mdm/genetic-testing-cant-do-our-behavioral-dirty-work/feed/ 0 Janina Kolkiewicz Wakes Up in Morgue after Pronounced Dead http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Y7i8pWd2a68/janina-kolkiewicz-wakes-up-in-morgue.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Y7i8pWd2a68/janina-kolkiewicz-wakes-up-in-morgue.html#comments Mon, 17 Nov 2014 09:30:00 +0000 http://www.bioethics.net/?guid=a7c74c115a2c2179470b014985437c9f http://medicalfutility.blogspot.com/feeds/6409499454681339718/comments/default 0 The New Abortion Issue: The Moral Status of Women http://www.amc.edu/BioethicsBlog/post.cfm/the-new-abortion-issue-the-moral-status-of-women http://www.amc.edu/BioethicsBlog/post.cfm/the-new-abortion-issue-the-moral-status-of-women#comments Mon, 17 Nov 2014 03:11:17 +0000 http://www.bioethics.net/?guid=9309a7e85ff354f60cd336c5b55e59dd http://www.bioethics.net/2014/11/the-new-abortion-issue-the-moral-status-of-women/feed/ 0 Oregon Death with Dignity Act – 20th Anniversary http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Vyp7iyok0bw/oregon-death-with-dignity-act-20th.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Vyp7iyok0bw/oregon-death-with-dignity-act-20th.html#comments Mon, 17 Nov 2014 00:14:00 +0000 http://www.bioethics.net/?guid=6d306e3e4e2c8037b459ffa8fc971ca8 http://medicalfutility.blogspot.com/feeds/5051415366847515279/comments/default 0 The Importance of Ethical Standards http://feedproxy.google.com/~r/bioethics-at-tiu/~3/2MXw0vMxTqo/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/2MXw0vMxTqo/#comments Sun, 16 Nov 2014 15:22:21 +0000 http://blogs.tiu.edu/bioethics/?p=5524 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/16/the-importance-of-ethical-standards/feed/ 0 Top 30 Bioethics Journals on Earth http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/jWdLjwXDgBI/top-30-bioethics-journals-on-earth.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/jWdLjwXDgBI/top-30-bioethics-journals-on-earth.html#comments Sun, 16 Nov 2014 10:00:00 +0000 http://www.bioethics.net/?guid=895718bfcf8152ca8d423c015ae9d7f7 http://medicalfutility.blogspot.com/feeds/8294729455904577101/comments/default 0 First Execution under Obamacare Death Panels? http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/fLx_Gn5I2qc/first-execution-under-obamacare-death.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/fLx_Gn5I2qc/first-execution-under-obamacare-death.html#comments Sat, 15 Nov 2014 08:30:00 +0000 http://www.bioethics.net/?guid=658e0345167d1ec64eed65a92105fe7e http://medicalfutility.blogspot.com/feeds/2578133020567419272/comments/default 0 Is it right to compel hospital staff to care for patients with Ebola? http://feedproxy.google.com/~r/bioethics-at-tiu/~3/gfHpwXkTKv0/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/gfHpwXkTKv0/#comments Fri, 14 Nov 2014 23:46:22 +0000 http://blogs.tiu.edu/bioethics/?p=5512 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/14/is-it-right-to-compel-hospital-staff-to-care-for-patients-with-ebola/feed/ 0 Patient Modesty: Volume 70 http://bioethicsdiscussion.blogspot.com/2014/11/patient-modesty-volume-70.html http://bioethicsdiscussion.blogspot.com/2014/11/patient-modesty-volume-70.html#comments Fri, 14 Nov 2014 21:44:00 +0000 http://www.bioethics.net/?guid=0f099de5e3d7a3cb384cc11c0849eea8 http://bioethicsdiscussion.blogspot.com/feeds/8794236827430151308/comments/default 0 My Burrito Has How Many Calories?!? http://www.peterubel.com/behavioral_economics/my-burrito-has-how-many-calories/ http://www.peterubel.com/behavioral_economics/my-burrito-has-how-many-calories/#comments Fri, 14 Nov 2014 19:49:25 +0000 http://www.peterubel.com/?p=7118 Continue reading ]]> http://www.peterubel.com/behavioral_economics/my-burrito-has-how-many-calories/feed/ 0 Finding a Voice http://medhum.med.nyu.edu/blog/?p=4703 http://medhum.med.nyu.edu/blog/?p=4703#comments Fri, 14 Nov 2014 16:42:41 +0000 http://medhum.med.nyu.edu/blog/?p=4703 http://medhum.med.nyu.edu/blog/?feed=rss2&p=4703 0 Dhaka Hospital Withdraws Life Support without Consent or Consultation http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/D3gNNgvPIp4/dhaka-hospital-withdraws-life-support.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/D3gNNgvPIp4/dhaka-hospital-withdraws-life-support.html#comments Fri, 14 Nov 2014 12:57:00 +0000 http://www.bioethics.net/?guid=7fa510ea2695e42a1290bbf87c6d3f37 http://medicalfutility.blogspot.com/feeds/3174875546002769077/comments/default 0 Three Items About Human Research Ethics http://feedproxy.google.com/~r/bioethics-at-tiu/~3/aIATpSIki3Q/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/aIATpSIki3Q/#comments Fri, 14 Nov 2014 01:27:33 +0000 http://blogs.tiu.edu/bioethics/?p=5510 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/13/three-items-about-human-research-ethics/feed/ 0 Patients and Clinicians Discuss Only 2 of 11 Goals of Care Elements http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/fZpciyNpmVo/patients-and-clinicians-discuss-only-2.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/fZpciyNpmVo/patients-and-clinicians-discuss-only-2.html#comments Thu, 13 Nov 2014 09:30:00 +0000 http://www.bioethics.net/?guid=050f86ec127456be60fa651a36c863f0 Studies showing lackluster rates of advance care planning are nothing new.  But this new study in the Canadian Medical Association Journal is particularly disturbing.  





















The authors identified 11 recommended elements of goals-of-care discussions that are the most important to older adults patients in hospital with serious illness and their family members.  They found that these elements are VERY infrequently addressed by health care providers in hospital.
  1. Asked the respondent about preferences for care in event of life-threatening illness
  2. Inquired about the respondent’s values
  3. Discussed prognosis 
  4. Gave an opportunity for the respondent to express fears or concerns
  5. Asked the respondent if they had additional questions about goals of care
  6. Provided information about outcomes, risks, benefits of comfort care
  7. Asked about prior discussions or written documents
  8. Offered a time to meet to discuss goals of care
  9. Provided information about outcomes, risks, benefits of life sustaining treatments
  10. Provided information to review about advance care planning before discussions
  11. Helped access legal documents to record advance care plans

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Wisdom Does Come with Age http://www.amc.edu/BioethicsBlog/post.cfm/wisdom-does-come-with-age http://www.amc.edu/BioethicsBlog/post.cfm/wisdom-does-come-with-age#comments Thu, 13 Nov 2014 03:11:09 +0000 http://www.bioethics.net/?guid=aa9c07fd8d627ca01a80cc199a5a85fb http://www.bioethics.net/2014/11/wisdom-does-come-with-age/feed/ 0 A Look at How M.D. Anderson Cancer Center Uses Bioethics Educational Materials http://blog.bioethics.gov/2014/11/12/a-look-at-how-m-d-anderson-cancer-center-uses-bioethics-educational-materials/ http://blog.bioethics.gov/2014/11/12/a-look-at-how-m-d-anderson-cancer-center-uses-bioethics-educational-materials/#comments Wed, 12 Nov 2014 17:39:41 +0000 http://blog.bioethics.gov/?p=1492 http://blog.bioethics.gov/2014/11/12/a-look-at-how-m-d-anderson-cancer-center-uses-bioethics-educational-materials/feed/ 0 Outpatient Spending Is Catching Up To Hospital Expenditures http://www.peterubel.com/health_wellbeing/outpatient-spending-is-catching-up-to-hospital-expenditures/ http://www.peterubel.com/health_wellbeing/outpatient-spending-is-catching-up-to-hospital-expenditures/#comments Wed, 12 Nov 2014 13:50:14 +0000 http://www.peterubel.com/?p=7115 Continue reading ]]> http://www.peterubel.com/health_wellbeing/outpatient-spending-is-catching-up-to-hospital-expenditures/feed/ 0 UK Hospital Places DNR Order without Consent or Consultation http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/X6De68eCsk0/uk-hospital-places-dnr-order-without.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/X6De68eCsk0/uk-hospital-places-dnr-order-without.html#comments Wed, 12 Nov 2014 10:00:00 +0000 http://www.bioethics.net/?guid=3ad0320a4f87cda2082853d5a8d7fb6e Leon Scoble and his sister Danni say that Basildon University Hospital put a “do not resuscitate” order on their father Paul Scoble without consulting them. (Echo)

On a Facebook page the family states:

"The doctors have twice put a Do Not Resuscitate on our Dad, we managed to get it lifted the first time but doctors refuse to lift it now their reason for this is due to a faulty heart valve." 

"He needs an operation on his heart to fix two faulty valves but the hospital have refused due to his size. We have heard about TAVI Mitral valve surgery by Dr Vinayak Bapat at St Thomas' Hospital in London and men much bigger than Dad have survived this operation."

"All we ask is that our Dad is given a chance at life, if he doesn't get this operation he will die. His situation has become pretty desperate over the last couple of weeks, he has been having panic attacks brought on by hearing doctors discussing switching off the machine. As you can imagine, he's terrified and so are we."

"The doctors have met and decided he is to receive no more treatment, even though the drugs being given are damaging to the kidneys, should a problem arise they have already stated that they will take no action."

"They tell us we cannot move our father to another hospital, as he is from Harlow."

"We want our Dad moved to a hospital that has the capability and desire to save his life (preferably St Thomas') He's a 48 year old father of two, who hasn't yet walked his only daughter down the aisle or held a first grandchild. He isn't a statistic, he's our world, so much more than just a father and we refuse to give up on him because he's never given up on us."

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Susan Tolle Wins MacLean Center Prize in Clinical Ethics for Work on POLST http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/QzXRiMDpmHs/susan-tolle-wins-maclean-center-prize.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/QzXRiMDpmHs/susan-tolle-wins-maclean-center-prize.html#comments Wed, 12 Nov 2014 10:00:00 +0000 http://www.bioethics.net/?guid=349666a827b438e72eeb71db826d314b The 2014 MacLean Center Prize in Clinical Ethics, an award of $50,000, will be presented to Susan Tolle, MD, who has pioneered efforts to improve communication between health care providers and patients regarding end-of-life care.

Tolle will receive the MacLean Prize, the largest award in the clinical medical ethics field, during the 26th annual Dorothy J. MacLean Fellows Conference on ethics in medicine. The conference will be held at the University of Chicago Law School, on Friday and Saturday, Nov. 14 and 15.

“Dr. Susan Tolle’s dedication, scholarship and hard work to ensure that patient’s wishes are honored at the end of life has transformed the care of dying patients in the U.S.,” said Mark Siegler, MD, Lindy Bergman Distinguished Service Professor of Medicine and Surgery and director of the MacLean Center. “I’m very proud of how Dr. Tolle continues to improve patient care and advance the field of clinical medical ethics.”

Tolle, a professor of medicine in the Oregon Health & Science University School of Medicine and director of the OHSU Center for Ethics in Health Care, is one of the founders of the Physician Orders for Life-Sustaining Treatment (POLST) movement in Oregon in the early 1990s. In a specific subset of patients — those with advanced illness or frailty — Tolle and others found that advanced directives were insufficient to safeguard patients’ wishes about how they wanted to be treated in life-threatening situations. By contrast, POLST orders work to allow patients to receive the level of care they want in the setting they want.

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Dying and Dignity http://feedproxy.google.com/~r/bioethics-at-tiu/~3/f_80GW3o5HU/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/f_80GW3o5HU/#comments Wed, 12 Nov 2014 02:06:06 +0000 http://blogs.tiu.edu/bioethics/?p=5495 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/11/dying-and-dignity/feed/ 0 A Park Bench That Tells You You’re Fat? http://www.peterubel.com/behavioral_economics/a-park-bench-that-tells-you-youre-fat/ http://www.peterubel.com/behavioral_economics/a-park-bench-that-tells-you-youre-fat/#comments Tue, 11 Nov 2014 14:23:30 +0000 http://www.peterubel.com/?p=7112 Continue reading ]]> http://www.peterubel.com/behavioral_economics/a-park-bench-that-tells-you-youre-fat/feed/ 0 Making a Case for Case Studies http://www.amc.edu/BioethicsBlog/post.cfm/making-a-case-for-case-studies http://www.amc.edu/BioethicsBlog/post.cfm/making-a-case-for-case-studies#comments Tue, 11 Nov 2014 10:11:43 +0000 http://www.bioethics.net/?guid=c90af21d8baaddbf23f34580ddbbbb12 http://www.bioethics.net/2014/11/making-a-case-for-case-studies/feed/ 0 Taiwan End-of-Life Policies Inflict Unwanted Pain & Torture http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/3tF7M3niXXc/taiwan-end-of-life-policies-inflict.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/3tF7M3niXXc/taiwan-end-of-life-policies-inflict.html#comments Tue, 11 Nov 2014 09:00:00 +0000 http://www.bioethics.net/?guid=62dbbb1a41954890b7ef448eebf6d4a4 http://medicalfutility.blogspot.com/feeds/5143973920099697289/comments/default 0 Ruby Graupera-Cassimiro Survives 45 Minutes without Pulse http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/8vsPKm_hc8g/ruby-graupera-cassimiro-survives-45.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/8vsPKm_hc8g/ruby-graupera-cassimiro-survives-45.html#comments Tue, 11 Nov 2014 01:36:00 +0000 http://www.bioethics.net/?guid=405292c6b20d54661f6f54c58e8b3e95 http://medicalfutility.blogspot.com/feeds/3198599235733300872/comments/default 0 Ethics in Neonatology Symposium http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/piPjOwEhMhc/ethics-in-neonatology-symposium.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/piPjOwEhMhc/ethics-in-neonatology-symposium.html#comments Mon, 10 Nov 2014 11:00:00 +0000 http://www.bioethics.net/?guid=00b22b1cddf85124edf0ed0b2de4ea5f http://medicalfutility.blogspot.com/feeds/5217960368832052477/comments/default 0 "Lethal Malformations" and Language of "Futility" http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/IPQv0otwxhk/lethal-malformations-and-language-of.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/IPQv0otwxhk/lethal-malformations-and-language-of.html#comments Mon, 10 Nov 2014 08:30:00 +0000 http://www.bioethics.net/?guid=f142c5f38308f7940090ba5b008b70e7 http://medicalfutility.blogspot.com/feeds/1871227961410191560/comments/default 0 Death – a New 5 Part Series on NPR http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/g1Pi4LS_V48/death-new-5-part-series-on-npr.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/g1Pi4LS_V48/death-new-5-part-series-on-npr.html#comments Mon, 10 Nov 2014 01:02:00 +0000 http://www.bioethics.net/?guid=da2221be395338b59934e7ad4d1cf6d6 To the Best of Our Knowledge, a nationally syndicated radio show from Wisconsin Public Radio just started a five part series on Death.  

Death: The Reckoning
Did you hear? There's a death movement going on in America. After decades of sanitized death, with dying, funerals, burial and grief shielded from public view, some people are now working to make death a greater part of life. In this hour, we talk with experts about how to begin these difficult conversations, and how they can transform both the dying and the surviving.

Death: Exit Plan
We live much longer than we used to, thanks to medical advances, but what are the emotional and financial costs of extending the end of life?  In this hour, we talk with physicians and bioethicists about planning for more humane and less prolonged deaths, about how some doctors don't know how to talk with their patients about preparing for death, and about one family's story of working within Oregon's "Death with Dignity" law. Tune if for a discussion of “a good death” and the story of a pioneering psychiatrist who's using hallucinogens to ease the anxiety of terminally-ill cancer patients.

Death: The Last Moment
Resuscitation science is revolutionizing medical care and reviving people who are clinically dead. With proper care, people who suffer heart attacks and lose brain function–even for two hours — can be brought back to life with no brain damage. What has that revealed about the the medical, spiritual and psychological mysteries of death?  We’ll hear conflicting perspectives on the debate over near-death experiences. Do these extraordinary experiences reveal a transcendent reality, or are they simply the biochemical product of a brain that’s shutting down? Tune in for conversations about "conscious death," and how people are reclaiming the final moments of their lives.

Death: The Wake
hat does it mean to grieve well? "Griefwalker" Stephen Jenkinson says that many cultures have “deep and skilled practitioners of grief." In this hour, explore the pain and healing power of grief, and learn about burial and mourning rituals throughout history.  We'll also hear poignant personal stories from people whose jobs bring them into daily contact with death, from a woman who worked for nine years in an inner-city funeral home, to a Ghanaian man who creates “fantasy coffins.”

Death: The Afterlife
Is death what gives life meaning? Looking at the prominence of death and the afterlife in so many religions, you might think so. But for millennia, people have also dreamed about immortality, and now transhumanists are actively trying to extend life by merging our bodies with machines.  In this hour, we explore the philosophical and religious dimensions of mortality and the afterlife. We talk about the art and poetry of remembrance, and now that much of our lives are lived on-line, how do we plan for our digital afterlives?

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Six Key Themes on Life-Sustaining Treatment Decisions from Australian Jurisprudence http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/bqO3kJ8mG-I/six-key-themes-on-life-sustaining.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/bqO3kJ8mG-I/six-key-themes-on-life-sustaining.html#comments Sun, 09 Nov 2014 09:00:00 +0000 http://www.bioethics.net/?guid=3c54dd95c58955133cc2dcaed370b374 http://medicalfutility.blogspot.com/feeds/3102017580754047910/comments/default 0 World Association for Medical Law – 21st Annual Congress http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Gan8tW1sBlM/world-association-for-medical-law-21st.html http://feedproxy.google.com/~r/MedicalFutilityBlog/~3/Gan8tW1sBlM/world-association-for-medical-law-21st.html#comments Sat, 08 Nov 2014 09:30:00 +0000 http://www.bioethics.net/?guid=9cde6b2f63904dc8b938c9163210fe9e http://medicalfutility.blogspot.com/feeds/8566923369365579993/comments/default 0 Embodying a right to health care http://feedproxy.google.com/~r/bioethics-at-tiu/~3/-lAR1XXa9Nc/ http://feedproxy.google.com/~r/bioethics-at-tiu/~3/-lAR1XXa9Nc/#comments Fri, 07 Nov 2014 20:43:53 +0000 http://blogs.tiu.edu/bioethics/?p=5485 Read More »]]> http://blogs.tiu.edu/bioethics/2014/11/07/embodying-a-right-to-health-care/feed/ 0 Responding to Ebola: Health Care Professionals’ Obligations to Provide Care http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7168&blogid=140 http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7168&blogid=140#comments Fri, 07 Nov 2014 14:54:00 +0000 http://www.bioethics.net/?guid=a5f50a17eb1cb778e7f1135d7a225aa6 Joel Frader and Lainie Friedman Ross]]> http://www.bioethics.net/2014/11/responding-to-ebola-health-care-professionals-obligations-to-provide-care/feed/ 0 Here’s Why Funding Medical Education Helps Vulnerable Patients http://www.peterubel.com/health_wellbeing/heres-why-funding-medical-education-helps-vulnerable-patients/ http://www.peterubel.com/health_wellbeing/heres-why-funding-medical-education-helps-vulnerable-patients/#comments Fri, 07 Nov 2014 13:50:14 +0000 http://www.peterubel.com/?p=7108 Continue reading ]]> http://www.peterubel.com/health_wellbeing/heres-why-funding-medical-education-helps-vulnerable-patients/feed/ 0