Bioethics.net » Human Subjects Research & IRBs http://www.bioethics.net Where the World Finds Bioethics Thu, 23 Oct 2014 00:15:25 +0000 en-US hourly 1 http://wordpress.org/?v=4.0 Day or Night: Ethics Depends on Time http://www.bioethics.net/2014/08/day-or-night-ethics-depends-on-time/ http://www.bioethics.net/2014/08/day-or-night-ethics-depends-on-time/#comments Fri, 01 Aug 2014 07:19:28 +0000 http://www.bioethics.net/?p=52180 by Craig Klugman, Ph.D.

Is that shirt the cashier forget to ring up a bonus or do you point out the oversight? Do you report your peer for being an impaired physician or just look the other way when she drinks? Cut your $20 million pay as a CEO or “layoff” 10,000 workers?

When dealing with ethical issues like these your first step may be to watch the clock. A study published last year found that people are more moral in the afternoon than in the mornings.…

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AIN’T JUST THE MEAT IT IS ALSO THE MOTION: CONSENT MATTERS! http://www.bioethics.net/2014/07/%ef%bb%bfaint-just-the-meat-it-is-also-the-motion-consent-matters/ http://www.bioethics.net/2014/07/%ef%bb%bfaint-just-the-meat-it-is-also-the-motion-consent-matters/#comments Tue, 29 Jul 2014 17:18:43 +0000 http://www.bioethics.net/?p=52141 “But look, you found the notice, didn’t you?”

“Yes,” said Arthur. “yes I did. It was on display in the bottom of a locked filing cabinet stuck in a disused lavatory with a sign on the door saying ‘Beware of the Leopard.'”

                           –Douglas Adams, The Hitchhiker’s Guide to the Galaxy

Any apologia for Facebook’s recent behavioral study has to address one issue head on: that of informed consent. Informed consent is the bedrock upon which the ethics of all biomedical and behavioral research on humans rests.…

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Did Facebook and PNAS violate human research protections in an unethical experiment? http://www.bioethics.net/news/did-facebook-and-pnas-violate-human-research-protections-in-an-unethical-experiment/ http://www.bioethics.net/news/did-facebook-and-pnas-violate-human-research-protections-in-an-unethical-experiment/#comments Thu, 10 Jul 2014 20:02:00 +0000 http://www.bioethics.net/?post_type=news&p=52019 http://www.bioethics.net/news/did-facebook-and-pnas-violate-human-research-protections-in-an-unethical-experiment/feed/ 0 Enter the Corporate Congress: SCOTUS & FACEBOOK http://www.bioethics.net/2014/07/enter-the-corporate-congress-scotus-facebook/ http://www.bioethics.net/2014/07/enter-the-corporate-congress-scotus-facebook/#comments Wed, 02 Jul 2014 03:01:44 +0000 http://www.bioethics.net/?p=51962 by Craig Klugman, Ph.D.

PART 1: SCOTUS
One of the facts that hiring managers are taught is that you can never ask a potential employee about their religion (among other protected areas) unless the candidate brings it up. But after this week, any job candidate would be wise to ask their potential employer about his/her/its (in the case of corporations) religious beliefs.

Who one works for is increasingly determining not only what health care coverage you have but also what laws you have to follow and what legal protections you have.…

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Fostering IRB Collaboration for Review of International Research http://www.bioethics.net/articles/fostering-irb-collaboration-for-review-of-international-research/ http://www.bioethics.net/articles/fostering-irb-collaboration-for-review-of-international-research/#comments Tue, 13 May 2014 17:53:32 +0000 http://www.bioethics.net/?post_type=articles&p=51564 http://www.bioethics.net/articles/fostering-irb-collaboration-for-review-of-international-research/feed/ 0 Why vampires stay young http://www.bioethics.net/2014/05/why-vampires-stay-young/ http://www.bioethics.net/2014/05/why-vampires-stay-young/#comments Fri, 09 May 2014 04:42:19 +0000 http://www.bioethics.net/?p=51539 by Craig Klugman, Ph.D.

In the world of fantasy, the vampire is known for its immortality. In most incarnations, the vampire lives forever in a youthful state by feeding on the blood of humans. Now it turns out that science may have proven that the blood of the young keeps you young.

At least, if you’re a mouse. Three papers published in the last week (two in Science and one in Nature Medicine) showed that giving blood from young mice to older mice reduced many of the signs of aging.…

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Guidance published on informing study participants about findings with potential health implications http://www.bioethics.net/news/guidance-published-on-informing-study-participants-about-findings-with-potential-health-implications/ http://www.bioethics.net/news/guidance-published-on-informing-study-participants-about-findings-with-potential-health-implications/#comments Wed, 02 Apr 2014 18:17:26 +0000 http://www.bioethics.net/?post_type=news&p=51029 http://www.bioethics.net/news/guidance-published-on-informing-study-participants-about-findings-with-potential-health-implications/feed/ 0 Women Still Left Out of Medical Research: Report http://www.bioethics.net/news/women-still-left-out-of-medical-research-report/ http://www.bioethics.net/news/women-still-left-out-of-medical-research-report/#comments Mon, 03 Mar 2014 21:08:33 +0000 http://www.bioethics.net/?post_type=news&p=50749 http://www.bioethics.net/news/women-still-left-out-of-medical-research-report/feed/ 0 Does Execution by Lethal Injection Violate the Ethics of Human Research? http://www.bioethics.net/2013/11/does-execution-by-lethal-injection-violate-the-ethics-of-human-research/ http://www.bioethics.net/2013/11/does-execution-by-lethal-injection-violate-the-ethics-of-human-research/#comments Fri, 15 Nov 2013 06:14:27 +0000 http://www.bioethics.net/?p=49807 by Arthur L. Caplan, PhD

The Governor of Ohio has been wrestling with the question of whether a prisoner soon to be executed can donate his organs.  Ronald Phillips, 40, is scheduled to be executed in the next few days for the 1993 rape and murder of 3-year-old Sheila Marie Evans.  He says he would like to donate his heart and kidney to his family members who may need them.  In fact, execution by electrocution, gassing and lethal injection in an execution chamber do not go well with organ donation. …

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Reporting to NIH on Race and Ethnicity of Clinical Research Participants http://www.bioethics.net/news/reporting-to-nih-on-race-and-ethnicity-of-clinical-research-participants-see-more-at-httpnexus-od-nih-govall20130821reporting-to-nih-on-race-and-ethnicity-of-clinical-research-participants/ http://www.bioethics.net/news/reporting-to-nih-on-race-and-ethnicity-of-clinical-research-participants-see-more-at-httpnexus-od-nih-govall20130821reporting-to-nih-on-race-and-ethnicity-of-clinical-research-participants/#comments Mon, 26 Aug 2013 16:56:36 +0000 http://www.bioethics.net/?post_type=news&p=48659 http://www.bioethics.net/news/reporting-to-nih-on-race-and-ethnicity-of-clinical-research-participants-see-more-at-httpnexus-od-nih-govall20130821reporting-to-nih-on-race-and-ethnicity-of-clinical-research-participants/feed/ 0 Views of IRBs Concerning Their Local Ecologies: Perceptions of Relationships, Systems, and Tensions Between IRBs and Their Institutions http://www.bioethics.net/articles/views-of-irbs-concerning-their-local-ecologies-perceptions-of-relationships-systems-and-tensions-between-irbs-and-their-institutions/ http://www.bioethics.net/articles/views-of-irbs-concerning-their-local-ecologies-perceptions-of-relationships-systems-and-tensions-between-irbs-and-their-institutions/#comments Fri, 19 Apr 2013 17:15:52 +0000 http://www.bioethics.net/?post_type=articles&p=47028 http://www.bioethics.net/articles/views-of-irbs-concerning-their-local-ecologies-perceptions-of-relationships-systems-and-tensions-between-irbs-and-their-institutions/feed/ 0 Stanford bioethicist speaks out about layers of stem cell regulations http://www.bioethics.net/news/stanford-bioethicist-speaks-out-about-layers-of-stem-cell-regulations-2/ http://www.bioethics.net/news/stanford-bioethicist-speaks-out-about-layers-of-stem-cell-regulations-2/#comments Wed, 20 Mar 2013 21:51:04 +0000 http://www.bioethics.net/?post_type=news&p=45919 http://www.bioethics.net/news/stanford-bioethicist-speaks-out-about-layers-of-stem-cell-regulations-2/feed/ 0 Time to ditch stand-alone stem cell oversight panels, experts say http://www.bioethics.net/news/time-to-ditch-stand-alone-stem-cell-oversight-panels-experts-say/ http://www.bioethics.net/news/time-to-ditch-stand-alone-stem-cell-oversight-panels-experts-say/#comments Thu, 07 Mar 2013 18:19:50 +0000 http://www.bioethics.net/?post_type=news&p=44954 http://www.bioethics.net/news/time-to-ditch-stand-alone-stem-cell-oversight-panels-experts-say/feed/ 0 ‘Benefits and burdens’ of participating in clinical research trials http://www.bioethics.net/news/benefits-and-burdens-of-participating-in-clinical-research-trials/ http://www.bioethics.net/news/benefits-and-burdens-of-participating-in-clinical-research-trials/#comments Tue, 10 Apr 2012 17:18:11 +0000 http://www.bioethics.net/?post_type=news&p=36230 http://www.bioethics.net/news/benefits-and-burdens-of-participating-in-clinical-research-trials/feed/ 0 Protecting Patient Privacy Redux: Response to Open Peer Commentaries on You Don’t Know Me, But: Access to Patient Data and Subject Recruitment in Human Subjects Research http://www.bioethics.net/articles/protecting-patient-privacy-redux-response-to-open-peer-commentaries-on-you-dont-know-me-but-access-to-patient-data-and-subject-recruitment-in-human-subjects-research/ http://www.bioethics.net/articles/protecting-patient-privacy-redux-response-to-open-peer-commentaries-on-you-dont-know-me-but-access-to-patient-data-and-subject-recruitment-in-human-subjects-research/#comments Fri, 17 Feb 2012 01:12:45 +0000 http://bioethics.net/articles/protecting-patient-privacy-redux-response-to-open-peer-commentaries-on-you-dont-know-me-but-access-to-patient-data-and-subject-recruitment-in-human-subjects-research/ http://www.bioethics.net/articles/protecting-patient-privacy-redux-response-to-open-peer-commentaries-on-you-dont-know-me-but-access-to-patient-data-and-subject-recruitment-in-human-subjects-research/feed/ 0 Fines expose failings in policing of Indian drug trials http://www.bioethics.net/news/fines-expose-failings-in-policing-of-indian-drug-trials/ http://www.bioethics.net/news/fines-expose-failings-in-policing-of-indian-drug-trials/#comments Wed, 18 Jan 2012 06:00:00 +0000 http://bioethics.net/news/fines-expose-failings-in-policing-of-indian-drug-trials/ http://www.bioethics.net/news/fines-expose-failings-in-policing-of-indian-drug-trials/feed/ 0 Citizens for Responsible Care and Research http://www.bioethics.net/resources/citizens-for-responsible-care-and-research/ http://www.bioethics.net/resources/citizens-for-responsible-care-and-research/#comments Mon, 25 Oct 2010 04:00:00 +0000 http://bioethics.net/resources/citizens-for-responsible-care-and-research/ http://www.bioethics.net/resources/citizens-for-responsible-care-and-research/feed/ 1 EPA Reverses Controversial ?Human Guinea Pig? Rule http://www.bioethics.net/news/epa-reverses-controversial-human-guinea-pig-rule/ http://www.bioethics.net/news/epa-reverses-controversial-human-guinea-pig-rule/#comments Wed, 23 Jun 2010 05:00:00 +0000 http://bioethics.net/news/epa-reverses-controversial-human-guinea-pig-rule/ http://www.bioethics.net/news/epa-reverses-controversial-human-guinea-pig-rule/feed/ 0 Concern Over Foreign Trials for Drugs Sold in U.S. http://www.bioethics.net/news/concern-over-foreign-trials-for-drugs-sold-in-u-s/ http://www.bioethics.net/news/concern-over-foreign-trials-for-drugs-sold-in-u-s/#comments Tue, 22 Jun 2010 05:00:00 +0000 http://bioethics.net/news/concern-over-foreign-trials-for-drugs-sold-in-u-s/ http://www.bioethics.net/news/concern-over-foreign-trials-for-drugs-sold-in-u-s/feed/ 0 Consent Form Gobbledygook: Are Medical Research Subjects Adequately Informed? http://www.bioethics.net/news/consent-form-gobbledygook-are-medical-research-subjects-adequately-informed/ http://www.bioethics.net/news/consent-form-gobbledygook-are-medical-research-subjects-adequately-informed/#comments Mon, 21 Jun 2010 05:00:00 +0000 http://bioethics.net/news/consent-form-gobbledygook-are-medical-research-subjects-adequately-informed/ http://www.bioethics.net/news/consent-form-gobbledygook-are-medical-research-subjects-adequately-informed/feed/ 0 Physicians group accuses CIA of testing torture techniques on detainees http://www.bioethics.net/news/physicians-group-accuses-cia-of-testing-torture-techniques-on-detainees/ http://www.bioethics.net/news/physicians-group-accuses-cia-of-testing-torture-techniques-on-detainees/#comments Tue, 08 Jun 2010 05:00:00 +0000 http://bioethics.net/news/physicians-group-accuses-cia-of-testing-torture-techniques-on-detainees/ http://www.bioethics.net/news/physicians-group-accuses-cia-of-testing-torture-techniques-on-detainees/feed/ 0 Council Bars Doctor Who Liked Vaccine With Autism http://www.bioethics.net/news/council-bars-doctor-who-liked-vaccine-with-autism/ http://www.bioethics.net/news/council-bars-doctor-who-liked-vaccine-with-autism/#comments Thu, 27 May 2010 05:00:00 +0000 http://bioethics.net/news/council-bars-doctor-who-liked-vaccine-with-autism/ http://www.bioethics.net/news/council-bars-doctor-who-liked-vaccine-with-autism/feed/ 0 The Moral Life of Babies http://www.bioethics.net/news/the-moral-life-of-babies/ http://www.bioethics.net/news/the-moral-life-of-babies/#comments Sun, 09 May 2010 05:00:00 +0000 http://bioethics.net/news/the-moral-life-of-babies/ http://www.bioethics.net/news/the-moral-life-of-babies/feed/ 0 My Name Is Jesse. But I am not a boy. Inside my parents’ failed experiment with gender neutrality. http://www.bioethics.net/news/my-name-is-jesse-but-i-am-not-a-boy-inside-my-parents-failed-experiment-with-gender-neutrality/ http://www.bioethics.net/news/my-name-is-jesse-but-i-am-not-a-boy-inside-my-parents-failed-experiment-with-gender-neutrality/#comments Tue, 13 Apr 2010 05:00:00 +0000 http://bioethics.net/news/my-name-is-jesse-but-i-am-not-a-boy-inside-my-parents-failed-experiment-with-gender-neutrality/ http://www.bioethics.net/news/my-name-is-jesse-but-i-am-not-a-boy-inside-my-parents-failed-experiment-with-gender-neutrality/feed/ 0 Patient Records ‘Open to Prying Eyes’ http://www.bioethics.net/news/patient-records-open-to-prying-eyes/ http://www.bioethics.net/news/patient-records-open-to-prying-eyes/#comments Mon, 29 Mar 2010 05:00:00 +0000 http://bioethics.net/news/patient-records-open-to-prying-eyes/ http://www.bioethics.net/news/patient-records-open-to-prying-eyes/feed/ 0 Senator Moves to Block Medical Ghostwriting http://www.bioethics.net/news/senator-moves-to-block-medical-ghostwriting-2/ http://www.bioethics.net/news/senator-moves-to-block-medical-ghostwriting-2/#comments Thu, 20 Aug 2009 05:00:00 +0000 http://bioethics.net/news/senator-moves-to-block-medical-ghostwriting-2/ http://www.bioethics.net/news/senator-moves-to-block-medical-ghostwriting-2/feed/ 0 Swine flu vaccine tests underway http://www.bioethics.net/news/swine-flu-vaccine-tests-underway/ http://www.bioethics.net/news/swine-flu-vaccine-tests-underway/#comments Mon, 10 Aug 2009 05:00:00 +0000 http://bioethics.net/news/swine-flu-vaccine-tests-underway/ http://www.bioethics.net/news/swine-flu-vaccine-tests-underway/feed/ 0 Television Viewing Linked to Blood Pressure Increases in Children http://www.bioethics.net/news/television-viewing-linked-to-blood-pressure-increases-in-children/ http://www.bioethics.net/news/television-viewing-linked-to-blood-pressure-increases-in-children/#comments Thu, 06 Aug 2009 05:00:00 +0000 http://bioethics.net/news/television-viewing-linked-to-blood-pressure-increases-in-children/ http://www.bioethics.net/news/television-viewing-linked-to-blood-pressure-increases-in-children/feed/ 0 Lack of Study Volunteers May Hobble Cancer Fight http://www.bioethics.net/news/lack-of-study-volunteers-may-hobble-cancer-fight/ http://www.bioethics.net/news/lack-of-study-volunteers-may-hobble-cancer-fight/#comments Mon, 03 Aug 2009 05:00:00 +0000 http://bioethics.net/news/lack-of-study-volunteers-may-hobble-cancer-fight/ http://www.bioethics.net/news/lack-of-study-volunteers-may-hobble-cancer-fight/feed/ 0 Minorities Needed for Research Trials – Rochester Leads the Way http://www.bioethics.net/news/minorities-needed-for-research-trials-rochester-leads-the-way/ http://www.bioethics.net/news/minorities-needed-for-research-trials-rochester-leads-the-way/#comments Mon, 27 Jul 2009 05:00:00 +0000 http://bioethics.net/news/minorities-needed-for-research-trials-rochester-leads-the-way/ http://www.bioethics.net/news/minorities-needed-for-research-trials-rochester-leads-the-way/feed/ 0 NCI tackles trial enrollment http://www.bioethics.net/news/nci-tackles-trial-enrollment/ http://www.bioethics.net/news/nci-tackles-trial-enrollment/#comments Fri, 24 Jul 2009 05:00:00 +0000 http://bioethics.net/news/nci-tackles-trial-enrollment/ http://www.bioethics.net/news/nci-tackles-trial-enrollment/feed/ 0 Setback for Huntington’s disease therapy http://www.bioethics.net/news/setback-for-huntingtons-disease-therapy/ http://www.bioethics.net/news/setback-for-huntingtons-disease-therapy/#comments Tue, 21 Jul 2009 05:00:00 +0000 http://bioethics.net/news/setback-for-huntingtons-disease-therapy/ http://www.bioethics.net/news/setback-for-huntingtons-disease-therapy/feed/ 0 The Belmont Report http://www.bioethics.net/resources/the-belmont-report-2/ http://www.bioethics.net/resources/the-belmont-report-2/#comments Fri, 19 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/the-belmont-report-2/ http://www.bioethics.net/resources/the-belmont-report-2/feed/ 0 Office for Human Research Protections (OHRP) http://www.bioethics.net/resources/office-for-human-research-protections-ohrp/ http://www.bioethics.net/resources/office-for-human-research-protections-ohrp/#comments Fri, 19 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/office-for-human-research-protections-ohrp/ http://www.bioethics.net/resources/office-for-human-research-protections-ohrp/feed/ 0 Alliance for Human Research Protection http://www.bioethics.net/resources/alliance-for-human-research-protection/ http://www.bioethics.net/resources/alliance-for-human-research-protection/#comments Fri, 19 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/alliance-for-human-research-protection/ http://www.bioethics.net/resources/alliance-for-human-research-protection/feed/ 0 American Educational Research Association Ethical Standards http://www.bioethics.net/resources/american-educational-research-association-ethical-standards/ http://www.bioethics.net/resources/american-educational-research-association-ethical-standards/#comments Fri, 19 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/american-educational-research-association-ethical-standards/ http://www.bioethics.net/resources/american-educational-research-association-ethical-standards/feed/ 0 FDA Guidance for Institutional Review Boards, Clinical Investigators, and Sponsors http://www.bioethics.net/resources/fda-guidance-for-institutional-review-boards-clinical-investigators-and-sponsors/ http://www.bioethics.net/resources/fda-guidance-for-institutional-review-boards-clinical-investigators-and-sponsors/#comments Fri, 19 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/fda-guidance-for-institutional-review-boards-clinical-investigators-and-sponsors/ http://www.bioethics.net/resources/fda-guidance-for-institutional-review-boards-clinical-investigators-and-sponsors/feed/ 0 Ethical and Policy Issues in Research Involving Human Participants http://www.bioethics.net/resources/ethical-and-policy-issues-in-research-involving-human-participants/ http://www.bioethics.net/resources/ethical-and-policy-issues-in-research-involving-human-participants/#comments Thu, 04 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/ethical-and-policy-issues-in-research-involving-human-participants/ http://www.bioethics.net/resources/ethical-and-policy-issues-in-research-involving-human-participants/feed/ 0 Program Protection of Human Subjects Participating in Research Programs http://www.bioethics.net/resources/program-protection-of-human-subjects-participating-in-research-programs/ http://www.bioethics.net/resources/program-protection-of-human-subjects-participating-in-research-programs/#comments Wed, 03 Jun 2009 04:00:00 +0000 http://bioethics.net/resources/program-protection-of-human-subjects-participating-in-research-programs/ http://www.bioethics.net/resources/program-protection-of-human-subjects-participating-in-research-programs/feed/ 0 Personalized Medicine Will Lead To Changes In FDA Approval Process For New Medications, Von Eschenbach Says http://www.bioethics.net/news/personalized-medicine-will-lead-to-changes-in-fda-approval-process-for-new-medications-von-eschenbach-says/ http://www.bioethics.net/news/personalized-medicine-will-lead-to-changes-in-fda-approval-process-for-new-medications-von-eschenbach-says/#comments Tue, 11 Nov 2008 06:00:00 +0000 http://bioethics.net/news/personalized-medicine-will-lead-to-changes-in-fda-approval-process-for-new-medications-von-eschenbach-says/ http://www.bioethics.net/news/personalized-medicine-will-lead-to-changes-in-fda-approval-process-for-new-medications-von-eschenbach-says/feed/ 0 For Companies Courting Surgeons, How Far is Too Far? http://www.bioethics.net/news/for-companies-courting-surgeons-how-far-is-too-far/ http://www.bioethics.net/news/for-companies-courting-surgeons-how-far-is-too-far/#comments Mon, 08 Sep 2008 05:00:00 +0000 http://bioethics.net/news/for-companies-courting-surgeons-how-far-is-too-far/ http://www.bioethics.net/news/for-companies-courting-surgeons-how-far-is-too-far/feed/ 0 Researchers: Merck Vioxx study was for marketing http://www.bioethics.net/news/researchers-merck-vioxx-study-was-for-marketing/ http://www.bioethics.net/news/researchers-merck-vioxx-study-was-for-marketing/#comments Wed, 20 Aug 2008 05:00:00 +0000 http://bioethics.net/news/researchers-merck-vioxx-study-was-for-marketing/ http://www.bioethics.net/news/researchers-merck-vioxx-study-was-for-marketing/feed/ 0 Probe orderded into clinical trial deaths in AIIMS http://www.bioethics.net/news/probe-orderded-into-clinical-trial-deaths-in-aiims/ http://www.bioethics.net/news/probe-orderded-into-clinical-trial-deaths-in-aiims/#comments Mon, 18 Aug 2008 05:00:00 +0000 http://bioethics.net/news/probe-orderded-into-clinical-trial-deaths-in-aiims/ http://www.bioethics.net/news/probe-orderded-into-clinical-trial-deaths-in-aiims/feed/ 0 Stalled Trial for Autism Highlights Dilemma of Alternative Treatments http://www.bioethics.net/news/stalled-trial-for-autism-highlights-dilemma-of-alternative-treatments/ http://www.bioethics.net/news/stalled-trial-for-autism-highlights-dilemma-of-alternative-treatments/#comments Mon, 21 Jul 2008 05:00:00 +0000 http://bioethics.net/news/stalled-trial-for-autism-highlights-dilemma-of-alternative-treatments/ http://www.bioethics.net/news/stalled-trial-for-autism-highlights-dilemma-of-alternative-treatments/feed/ 0 Malaria vaccine study will infect volunteers with the parasite http://www.bioethics.net/news/malaria-vaccine-study-will-infect-volunteers-with-the-parasite/ 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