Blog Posts (94)
October 1, 2018
by Ann Mongoven, PhD, MPH
Recent controversies at Memorial Sloan Kettering Cancer Center raise ethical questions about medical research that deserve public attention.…
August 31, 2018
STUDENT VOICES | CHYNN ETHICS PRIZE HONORABLE MENTION By Elizabeth Doty In the history of the United States rhetoric alienating immigrants, documented and undocumented, has consistently pervaded everyday life across the nation, from the front page of The New York Times to college campuses to airports to Congressional hearings to, indeed, even research. While I […]
August 31, 2018
by Craig Klugman, Ph.D.
“What do you call a couple that practices the rhythm method?”
This old joke is getting a modern twist as the FDA approvesNaturalCycles, a mobile app for charting fertility and determining what days are safe for sexual activity with a low risk of conceiving.…
August 23, 2018
by Craig Klugman, Ph.D.
One of my summer projects has been to undertake the most dreaded of adult tasks, updating my last will and testament and advance directive.…
July 27, 2018
by Jenji Learn, MA
“Fix your hearts not our parts!”
”Autonomy, not surgery, my body belongs to ME!”
“Children have rights!”
Those were the pleas of the large gathering of Intersex people that assembled outside of Lurie Children’s Hospital in Chicago last Thursday, along with their families, friends, supporters, and Transex/Transgender allies, to voice their one, simple demand: “Stop mutilating us.…
July 11, 2018
by Craig Klugman, Ph.D.
On the advice of a family friend, I went to see the new documentary, Three Identical Strangers.…
July 9, 2018
The advent of social media technology has opened many new avenues of research in population health, demographics, psychology, and the social sciences. It is crucial to consider whether researchers conducting observational research using social media need to obtain consent from their research subjects, and whether the current research regulations in the United States establish effective,… Read more
The post Social Media, Privacy, and Research: A Muddled Landscape appeared first on The Hastings Center.
July 5, 2018
Code Black (Season 3; Episode 10): Patients Asking Doctors to Lie to Family Members; Code Black (Season 3; Episode 11): Law enforcement pressuring nurse for blood draw
by Craig Klugman, Ph.D.…
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May 11, 2018 9:00 am
The 4-year-old boy fancied himself a real-life superhero, wearing a blue T-shirt with photographs of his 4-month-old twin brothers, who were born with a rare immunodeficiency disease. Michael’s little brothers — Santino, “Sonny,” and Giovanni, “Gio” — needed a bone-marrow transplant, and when his parents told him that he was a donor match, Michael told them that he wanted to save his brothers and would give them some of his.
May 2, 2018 4:40 pm
The National Institutes of Health on Tuesday announced the launch of its attempt to enroll 1 million people in a landmark research effort aimed at developing “personalized” methods of prevention, treatment and care for a wide variety of diseases. The “All of Us” recruitment effort begins Sunday with community events in seven sites around the country, where people will be encouraged to sign up for the mammoth research project.
November 9, 2017 9:00 am
The first controlled, but controversial and small, clinical trial of giving young blood to people with dementia has reported that the procedure appears safe. It has also hinted that it may even produce modest improvements in the daily lives of people who have Alzheimer’s disease.
June 14, 2017 9:00 am
Julianna Snow is dying of an incurable disease. She’s stable at the moment, but any germ that comes her way, even just the common cold virus, could kill her. She’s told her parents that the next time this happens, she wants to die at home instead of going to the hospital for treatment. If Julianna were an adult, there would be no debate about her case: She would get to decide when to say “enough” to medical care and be allowed to die. But Julianna is 5 years old. Should her parents have let her know how grave her situation is? Should they have asked her about her end-of-life wishes? And now that those wishes are known, should her parents heed them?
May 19, 2017 9:00 am
For 40 years starting in 1932, medical workers in the segregated South withheld treatment for unsuspecting men infected with a sexually transmitted disease simply so doctors could track the ravages of the horrid illness and dissect their bodies afterward. Finally exposed in 1972 , the study ended and the men sued, resulting in a $9 million settlement. Twenty years ago this May, President Bill Clinton apologized for the U.S. government. It seemed to mark the end of this ugly episode, once and for all. Except it didn’t.
April 6, 2017 9:00 am
President Trump on Monday signed a congressional resolution to complete the overturning of internet privacy protections created by the Federal Communications Commission during the Obama administration. The change will allow broadband internet service suppliers, such as cable and telecommunications companies, to track and sell a customer’s online information with greater ease.
March 23, 2017 9:00 am
The San people of Southern Africa are among the closest living relatives of our hunting and gathering ancestors. Scientists have flocked to study their age-old rituals and ancient genetic fingerprints. Now, after more than a century of being scrutinized by science, the San are demanding something back. Earlier this month the group unveiled a code of ethics for researchers wishing to study their culture, genes, or heritage.
March 20, 2017 9:00 am
As doctors, our goal is to help you, of course, and to do no harm. But we may actually hurt you, irreversibly. Not that this happens frequently, but it might. How does that sound? Ready to take the plunge? The secret is that informed consent in health care is commonly not-so-well informed. It might be a document we ask you to sign, at the behest of our lawyers, in case we end up in court if a bad outcome happens. Unfortunately, it’s often not really about informing you.
February 10, 2017 9:00 am
A pair of Boston University (BU) brain researchers is pushing back against demands by the National Hockey League (NHL) that they release data, brain pathology slides, and interview records of former NHL players and their families. The scientists accumulated the records during their research on chronic traumatic encephalopathy (CTE), a neurodegenerative disease that has been linked to repetitive head trauma.
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