Hot Topics: Informed Consent

Blog Posts (32)

October 18, 2016

BioethicsTV: 10/11-10/17 – Assaulting demented patients, sex trafficking, and surrogate decision-making

by Craig Klugman, Ph.D.

An occasional column examining the ethical issues raised in television medical dramas.

On Code Black (Season 2; Episode 3) the most important ethical issue was very brief, not taking more than about 2 minutes of screen time.…

August 25, 2016

Do the EPA Exposure Studies Violate Do No Harm and Informed Consent?

by Craig Klugman, Ph.D

A government agency recruits elderly and sick patients for an important research study. In a controlled environment, subjects are exposed to airborne pollutants at levels many times higher than found in the real world.…

May 13, 2016

BioethicsTV: Paternalism (again) on Chicago Med

by Craig Klugman, Ph.D.

Our favorite television dramas this week were light on bioethics issues with the exception of Chicago Med (season 1; episode 17 “Withdrawal”) that continues to explore bioethical issues.…

May 12, 2016

Euthanasia for Reasons of Mental Health

by Craig Klugman, Ph.D.

An article in the (UK) Daily Mail this week focused on a Dutch woman who chose euthanasia “after doctors decided her post-traumatic stress and other conditions were incurable.” Under Dutch euthanasia laws, a physician can end a patient’s life with a lethal injection for mental suffering.…

May 6, 2016

BioethicsTV: Mistaken diagnosis, patient battery, “work-arounds,” and trans-gender patient health

by Craig Klugman, Ph.D.

A look at the ethical and professionals issues raised in medical dramas this week: Chicago Med and Heartbeat.…

May 5, 2016

“And Death Shall Be No More”

by Craig Klugman, Ph.D.

Two years after John Donne’s death, the Holy Sonnets were published. In Sonnet 10, Donne speaks about the end of death: “Death, thou shalt die.” Although a metaphorical conceit referring to eternal life in heaven, the poem takes on new meaning in the age of regenerative medicine.…

April 26, 2016

BioEthicsTV: A night of consent issues on ChicagoMed

by Craig Klugman, Ph.D.

On this week’s episode of ChicagoMed (Season 1; Episode 15) issues of consent was the main focus.…

April 21, 2016

Clarifying the Rules: No media in patient treatment areas

by Craig Klugman, Ph.D.

In January, I wrote about the case of Mark Chanko, a patient run over by a truck whose death was recorded for a real-life medical show and was later viewed on television by his horrified widow who had never been asked for permission for the airing.…

April 20, 2016

Stinging Doctors: Recording Your Own Surgery

by Craig Klugman, Ph.D.

Ethel Easter expressed outraged this week at what her health care team said about her during her surgery in Texas last year.…

March 30, 2016

BIOETHICSTV: Chicago Med 3/29

by Craig Klugman, Ph.D.

BioethicsTV is an occasional feature where we examine bioethical issues raised in televised medical dramas.

Tonight marked the mid-season premiere of Chicago Med, a freshman television show that seems to relish throwing professional and bioethical issues at its audience.…

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Published Articles (23)

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

Does promoting research advance planning in a general elderly population enhance completion of a research directive and proxies' predictive ability? a randomized controlled trial Gina Bravo, Lise Trottier, Marie-France Dubois, Marcel Arcand, Danièle Blanchette, Anne-Marie Boire-Lavigne, Maryse Guay, Paule Hottin, Julie Lane, Suzanne Bellemare & Karen Painter

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

A pilot study of neonatologists' decision-making roles in delivery room resuscitation counseling for periviable births Brownsyne Tucker Edmonds, Fatima McKenzie, Janet E. Panoch, Douglas B. White & Amber E. Barnato

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

Clarifying ethical responsibilities in pediatric biobanking Merle Spriggs & Craig L. Fry

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

Experimental evidence showing that physician guidance promotes perceptions of physician empathy Daniel Russell Hans, Priyanka Dubé & Jason Adam Wasserman

American Journal of Bioethics: Volume 16 Issue 8 - Aug 2016

The Curious Case of the De-ICD: Negotiating the Dynamics of Autonomy and Paternalism in Complex Clinical Relationships Daryl Pullman & Kathleen Hodgkinson

American Journal of Bioethics: Volume 16 Issue 8 - Aug 2016

Reason, Emotion, and Implanted Devices John D. Lantos

AJOB Primary Research: Volume 7 Issue 2 - May 2016

Ethics of research in usual care settings: Data on point Jeremy Sugarman

AJOB Primary Research: Volume 7 Issue 2 - May 2016

Adrift in the gray zone: IRB perspectives on research in the learning health system Sandra Soo-Jin Lee, Maureen Kelley, Mildred K. Cho, Stephanie Alessi Kraft, Cyan James, Melissa Constantine, Adrienne N. Meyer, Douglas Diekema, Alexander M. Capron, Benjamin S. Wilfond & David Magnus

AJOB Primary Research: Volume 7 Issue 2 - May 2016

The patient's perspective on the need for informed consent for minimal risk studies: Development of a survey-based measure Sherrie H. Kaplan, Adrijana Gombosev, Sheila Fireman, James Sabin, Lauren Heim, Lauren Shimelman, Rebecca Kaganov, Kathryn E. Osann, Thomas Tjoa & Susan S. Huang

AJOB Primary Research: Volume 7 Issue 2 - May 2016

Patient and physician views about protocolized dialysis treatment in randomized trials and clinical care Ashley Kraybill, Laura M. Dember, Steven Joffe, Jason Karlawish, Susan S. Ellenberg, Vanessa Madden & Scott D. Halpern

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News (18)

October 21, 2016 8:00 am

The dangers of euthanasia-on-demand (Chicago Tribune)

If the Dutch Cabinet gets what it wants, citizens who feel they have a “completed life” soon will be able to request public support for help in ending their lives. It is a frightening precedent that other nations ought not follow, and a policy the Dutch ought to reject.

September 22, 2016 8:00 am

Belgium minor first to be granted euthanasia (BBC News)

A terminally ill 17-year-old has become the first minor to be helped to die in Belgium since age restrictions on euthanasia requests were removed two years ago, officials say.

April 27, 2016 8:00 am

Letters Telling Women About Breast Density Are Often Too Darn Dense (NPR)

Over the past decade, states have passed laws intended to help women understand the results of their breast cancer screening mammograms if they have dense breasts. But those notifications can be downright confusing and may, in fact, cause more misunderstanding than understanding.

March 9, 2015 6:28 pm

Seeing medical records might ease hospital patients’ confusion

Letting patients see their medical records while they’re in the hospital might ease worry and confusion without extra work for doctors and nurses, a small study suggests.

August 20, 2014 4:21 pm

California lawmakers pass bill banning inmate sterilizations

California lawmakers sent a bill to ban sterilization surgeries on inmates in California prisons to Governor Jerry Brown on Tuesday, after media reports and a later audit showed officials failed to follow the state’s rules for obtaining consent for the procedure known as tubal ligation from incarcerated women.

April 23, 2014 1:46 pm

Would you share your DNA info to advance medicine?

The provocative question of how “big data” will affect medicine and patient privacy is getting a lot of attention at the National Institutes of Health.

December 20, 2013 1:58 pm

The Supreme Court’s terrible—and dangerous—ruling this week on the Fifth Amendment.

On Monday, in a case called Salinas v. Texas that hasn’t gotten the attention it deserves, the Supreme Court held that you remain silent at your peril. The court said that this is true even before you’re arrested, when the police are just informally asking questions.

September 27, 2013 2:22 pm

Pennsylvania law gives patients the right to ask doctors about care

The Pennsylvania’s Medical Care Availability and Reduction of Error Act specifically gives patients the right to ask questions of physicians, not just physician assistants or nurses.

August 27, 2013 1:03 pm

UC Davis surgeons resign after bacteria-in-brain dispute

Two UC Davis neurosurgeons who intentionally infected three brain-cancer patients with bowel bacteria have resigned their posts after the university found they had “deliberately circumvented” internal policies.  The surgeons maintain they were acting in the best interests of their desperately ill patients, whose prognoses for survival were poor.

August 14, 2013 6:32 pm

Electronic Informed Consent: Will it Increase Patient Knowledge on Trials?

As the modernization of the informed consent process looks to keep patients better informed with electronic presentations of trial information, sponsors and CRO may also utilize the tech to track more data.

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