» Privacy Where the World Finds Bioethics Mon, 12 Oct 2015 10:00:05 +0000 en-US hourly 1 Hello Barbie: Considering Potential Unforeseen Problems with A.I. Dolls and What Children Tell Them Mon, 28 Sep 2015 12:00:00 +0000 by Amanda Zink, J.D., M.A.

Hello Barbie, a doll with artificial intelligence (AI) that enables it to “talk” with children, is slated for release this November, just in time for the holiday season.

When a child activates a microphone inside Hello Barbie’s necklace, her words will be recorded and transmitted to computer servers. Speech recognition software will convert the audio message to analyzable text, enabling the “correct” response to be chosen out of thousands of pre-scripted lines.

Given recent articles on this toy in the popular press, I pose the question: Has Mattel taken enough time to think through the problems that could ensue from giving thousands of children a talking friend and uploading their conversations to the Cloud – for the manufacturers, the children’s parents, and maybe even the NSA to hear?…

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You’re surrounded by a cloud of bacteria as unique as a fingerprint Wed, 23 Sep 2015 22:01:02 +0000 0 Ashley Madison & Using Stolen Data Thu, 10 Sep 2015 20:35:01 +0000 by Arthur L Caplan, PhD and Charles Seife, MS

This past August, the public was treated to gigabytes of data stolen from the Ashley Madison website, including detailed records on millions of people who had registered for their service. Their service, of course, is a dating site meant to facilitate extra-marital affairs. The message isn’t subtle, as anyone who’s got their upbeat jingle — “I’m looking for someone other than my wife!” — stuck in his head can attest.…

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81 percent of hospitals and health insurance companies have had a data breach Fri, 04 Sep 2015 18:11:21 +0000 0 The Private as Public: What it Means for Bioethics Sat, 22 Aug 2015 05:54:36 +0000 by Craig Klugman, Ph.D.

Today I was sitting in an outdoor coffee house and listened to the sounds around me. I heard the jackhammer from the street construction and the beep of a truck backing up. There was the gentleman working on his computer at the next table, playing music from his cell phone, out loud for everyone to hear. There were two women behind me (one actually moved so that she was next to me) speaking in very loud voices while one was convincing the other to use her as a web designer (and complaining about their boyfriends).…

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Investigating Two Claims Against Planned Parenthood: Center of Medical Progress’s Secret Videos Mon, 27 Jul 2015 22:00:39 +0000 by Craig Klugman, Ph.D.

Before you being reading, I have a disclaimer: Growing up, my mother worked for Planned Parenthood. As a nurse, she practiced in their clinics offering well women services, counseling, and contraception. After many years, she went on to direct their clinic’s in vitro fertilization program. I also heard the word “Planned Parenthood” stated with a quick northeastern accent. Said that way, as a child, I thought the place was called “Plant Parenthood” and wondered what plants had to do with women’s health.…

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Court rules NSA program illegal Thu, 07 May 2015 19:15:16 +0000 0 How Private DNA Data Linked an Innocent Man to a 20-year-old Murder Case Fri, 01 May 2015 22:29:53 +0000 0 Why Doctors Should Audio Record Patient Encounters Wed, 29 Apr 2015 07:03:00 +0000 by Craig Klugman, Ph.D.

In Dave Eggers’ novel, The Circle, a behemoth tech company makes it popular for people to wear cameras and to live broadcast every minute of their lives (except for time in the bathroom). The goal is to remove secrets and to improve behavior because if you thought you were being watched all the time, you would always behave well (drawing on Bentham and Foucault’s ideas of the panopticon).

Much has been written about using cameras to protect ourselves.…

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Figure 1: Global Medical Education and Collaboration in Real Time Tue, 21 Apr 2015 23:26:34 +0000 by Craig Klugman, Ph.D.

When I was teaching in medical schools I recall a case where a student was reprimanded for breaking patient confidentiality by uploading a picture of surgery to his Facebook profile. This incident led to educational interventions about the appropriate use of social media in medicine. The short guideline was, “Never upload photos of patients onto the internet.” Now, physicians are encouraged to upload patient pictures through a service called Figure1, which has been described as “Instagram for doctors.”

Figure 1 is part of Medicine 2.0, using online technology to enable collaboration and interaction.…

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Health data breaches on the rise Tue, 14 Apr 2015 18:14:12 +0000 0 Should Medical Staff ‘Google’ Patients? Mon, 16 Mar 2015 13:47:09 +0000 ]]> 0 Caveat Scholasticus Thu, 12 Mar 2015 12:23:34 +0000 ]]> 0 Gov. Brown Makes History, End-of-Life Choices, Personal Health at our Fingertips Tue, 27 Jan 2015 23:54:39 +0000 0 Who Owns A Human Genome? Fri, 16 Jan 2015 18:02:29 +0000 0 Computers ‘judge personality better than friends Tue, 13 Jan 2015 17:50:19 +0000 0 Of Course 23andMe’s Plan Has Been to Sell Your Genetic Data All Along Tue, 13 Jan 2015 15:29:40 +0000 0 Case Study:The Obligations to Report Statutory Sexual Abuse Disclosed in a Research Study Wed, 01 Oct 2014 18:22:35 +0000 0 Thousands Of People Oblivious To Fact That Anyone On The Internet Can Access Their Computers Tue, 16 Sep 2014 21:18:45 +0000 0 Insurance giants creating massive database of patient records Mon, 15 Sep 2014 21:14:52 +0000 0 Big Data Peeps At Your Medical Records To Find Drug Problems Tue, 02 Sep 2014 23:57:34 +0000 0 NSA’s ‘MonsterMind’ Could Automate Cyberwar Tue, 19 Aug 2014 21:40:56 +0000 0 Google Seeks Human Guinea Pigs for Health Project Tue, 29 Jul 2014 20:01:39 +0000 0 Police Won’t Use Nude Photos of Va. Teen as Evidence in Sexting Case, Attorney Says Tue, 15 Jul 2014 18:35:22 +0000 0 Facebook responds to criticism of its experiment on users Mon, 30 Jun 2014 22:15:26 +0000 0 Big brother is a health care provider Sat, 28 Jun 2014 00:38:03 +0000 Read More »]]> 0 Health by the numbers Wed, 18 Jun 2014 07:06:23 +0000 by Craig Klugman, Ph.D.

How are you? How are you feeling? These used to be straightforward greetings with simple answers. “I’m fine.” I’m doing well.” “I had been feeling ill but am much better now.” Or even “I keep struggling with diet and exercise.”

However, in the age of accountability, our society has become less comfortable with fuzzy statements and prefers to quantify everything possible, irrespective of whether it’s meaningful. The same question today may elicit responses of “My cholesterol is at 265.” “My sugar is at 210.” “BP is 96 over 75.” Or even “I can’t talk right now, I still have 4,000 steps to go.”

Health has moved from describing a state of being to listing a collection of numbers.…

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Minnesota to resume storing newborn blood samples Tue, 13 May 2014 15:00:56 +0000 0 Lessons for the Future of Primary Care from Robin Cook’s Cell Thu, 01 May 2014 07:28:23 +0000 by Craig Klugman, Ph.D.

I just finished reading the popular fiction novel Cell by Robin Cook. This medical thriller revolves around George Wilson, a radiology resident who finds people dying suddenly after receiving diagnoses of terminal illnesses including his fiancé and next-door-neighbor. The catch is that all of these people were beta testers for a new mobile app called iDoc. A technology company developed this program to be a personal primary care physician. iDoc can answer all of your health questions, monitor your vital signs, and even give you a dose of insulin through an implantable reservoir.…

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Would you share your DNA info to advance medicine? Wed, 23 Apr 2014 17:46:06 +0000 0 French School Carries out DNA Dragnet in Rape Case Thu, 17 Apr 2014 21:42:59 +0000 0 PatientsLikeMe Launches “Data for Good” Campaign to Encourage Health Data Sharing to Advance Medicine Wed, 02 Apr 2014 18:14:36 +0000 0 Yahoo updates methodology in new transparency report Thu, 27 Mar 2014 21:50:36 +0000 0 British spy agency collected images of Yahoo webcam chats Thu, 27 Feb 2014 18:56:32 +0000 0 Take Two Aspirin and Let Me Tell You What I Think About the Affordable Care Act Wed, 12 Feb 2014 17:39:42 +0000 by Kayhan Parsi, JD, PhD

I recently saw a subspecialist for a medical procedure.  I had never met this physician before so as he sat down to review what was going on in the monitor in front of him, the first thing he asked me was what I did for a living.  I promptly informed him that I was a bioethics professor at Loyola University Chicago.  This immediately piqued his interest.  He asked me what this entailed, and I told him that I taught graduate and medical students, did ethics consultations, did my own research and writing, gave presentations, etc. …

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Did AOL CEO Tim Armstrong Violate HIPAA? Wed, 12 Feb 2014 00:38:02 +0000 0 The Year in Bioethics That Was Wed, 01 Jan 2014 21:05:33 +0000 by Craig Klugman, Ph.D.

Happy New Year. The ending of one year and the beginning of another is often a time for reflection, for reviewing the year that has passed and for making plans/predictions for the year to come. 2013 was the first full year of the re-launch of the editor’s blog as well.

Ten bloggers in addition to myself worked for us this year and we are thankful for their contributions: Maurice Bernstein, Arthur Caplan, Jennifer Chevinsky, Nanette Elster, Ellen Fox, Jessica Jerome, David Magnus, Steven Miles, Kayhan Parsi, and Thaddeus Pope.…

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New public attitudes about access to medical information, bio tissue for research Sun, 15 Dec 2013 18:59:42 +0000 0 Many Would Give Private Info to Health Insurers to Save Money Wed, 13 Nov 2013 21:32:59 +0000 0 Pot-Smoking Quadriplegic’s Firing Shows Haze Over Rules Mon, 11 Nov 2013 19:37:15 +0000 0 Lawsuit: Cops forced man to undergo enemas, colonoscopy on invalid warrant Thu, 07 Nov 2013 00:16:46 +0000 0 Getting Your Microbes Analyzed Raises Big Privacy Issues Mon, 04 Nov 2013 19:14:37 +0000 0 EU Parliament says other countries spy, but not as much as the UK or US Fri, 25 Oct 2013 19:05:20 +0000 0 Firefox Plug-In Shows Who Is Tracking You Fri, 25 Oct 2013 18:59:10 +0000 0 Is your doctor spying on your tweets? Social media raises medical privacy questions Tue, 22 Oct 2013 19:20:54 +0000 0 Brazil’s Rousseff: NSA spying violated human rights Tue, 24 Sep 2013 19:34:44 +0000 0 Why Misconduct Trumps Patient–Therapist Confidentiality and Ways to Avoid the Disclosure Dilemma Thu, 12 Sep 2013 21:56:43 +0000 0 Google Glass in the operating room at Ohio State University Thu, 29 Aug 2013 20:51:46 +0000 0 CVS thinks $50 is enough reward for giving up healthcare privacy Thu, 22 Aug 2013 20:52:33 +0000 0 NYC stop-and-frisk policy violates civil rights, judge rules; outside monitor appointed Mon, 12 Aug 2013 19:25:04 +0000 0