Bioethics.net » Privacy

NSA surveillance played little role in foiling terror plots, experts say

The American Journal of Bioethics — Wed, 12 Jun 2013 21:23:10 +0000

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Accord Aims to Create Trove of Genetic Data

Jennifer Miller — Fri, 07 Jun 2013 18:25:36 +0000

[NYTimes] More than 70 medical, research and advocacy organizations active in 41 countries and including the National Institutes of Health announced Wednesday that they had agreed to create an organized way to share genetic and clinical information. Th...

Data Aggregation and the Medical Marketplace

Craig Klugman — Tue, 04 Jun 2013 21:47:37 +0000

Craig Klugman, Ph.D.

Big brother is watching you. And calling you. And selling your medical information to a pharmaceutical corporation.

In the modern age of information as commodity, drugmakers buy database that tell them how much of what drug each doctor prescribes, which patients fill those prescriptions, and whether renewals are filled. They know your medical conditions, test results, insurance data, age, ethnicity, and income level.

Several companies have developed with the express purpose of tracking patients and their medical habits.…

California DNA law is broader than program upheld by Supreme Court

The American Journal of Bioethics — Mon, 03 Jun 2013 21:53:05 +0000

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Justices Allow Police to Take DNA Samples After Arrests

The American Journal of Bioethics — Mon, 03 Jun 2013 19:22:51 +0000

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Pills Tracked From Doctor to Patient to Aid Drug Marketing

The American Journal of Bioethics — Mon, 20 May 2013 18:05:42 +0000

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Nuffield report: Parents should decide whether or not to ‘tell’

Simone Penasa — Sun, 28 Apr 2013 14:11:11 +0000

[Bio News] Last week, the Nuffield Council on Bioethics presented its report on ethical aspects of information sharing in donor conception. Although the moral acceptability of third-party reproduction is still debated, this report importantly starts...

How Much Monitoring Is Too Much?

Donna Hanrahan — Thu, 28 Mar 2013 12:03:51 +0000

[Scientific American] It started in the ‘70s. A pregnant woman with diabetes faced a deeply entrenched medical routine: months in hospital having her blood glucose closely monitored. She managed to stay out by convincing her doctor, Clara Lowy, to le...

Judge extends order halting campus drug tests

The American Journal of Bioethics — Fri, 22 Mar 2013 21:25:00 +0000

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Data at a Distance: Thoughts on ‘Digital Public Health’

Donna Hanrahan — Thu, 21 Mar 2013 04:23:39 +0000

[Forbes] Today, our body temperature can be scanned from a distance quickly and simply. For a busy Mom with a sick child, this is a great idea. Just pointing a sensor at a spot of skin and obtaining an ‘instant’ reading is a real advance from...

Harvard Professors Call Ethics of Email Search Into Question

The American Journal of Bioethics — Wed, 13 Mar 2013 19:18:20 +0000

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Did Sperm and Egg Donors Unwittingly Contribute to NIH-Approved Stem Cells?

Simone Penasa — Thu, 28 Feb 2013 03:01:23 +0000

[ScienceInsider] (by Jocelyn Kaiser) A review of the 200 or so human embryonic stem cell (hESC) lines approved by the National Institutes of Health (NIH) for federal funding has found a possible ethical problem: Some of the cell lines may have involved...

Walmart Health Screening Stations Touted As Part Of ‘Self-Service Revolution’

Lindsay Smith — Tue, 19 Feb 2013 17:05:09 +0000

[Kaiser Health News] STERLING, Va. – Perched by a computer monitor wedged between shelves of cough drops and the pharmacy in a bustling Walmart, Mohamed Khader taps out answers to questions such as how often he eats vegetables, whether anyone in ...

No anonymity for sperm donors, court rules

Simone Penasa — Sun, 17 Feb 2013 16:13:02 +0000

[Deutsche Welle] The decision of a regional appeals court in Hamm that the children of sperm donors have the right to know who their fathers are could have a wider impact – some 100,000 children in Germany were born to sperm donors. For people who ...

Did Sperm and Egg Donors Unwittingly Contribute to NIH-Approved Stem Cells?

James Muller — Tue, 12 Feb 2013 15:07:23 +0000

[Science Insider] A review of the 200 or so human embryonic stem cell (hESC) lines approved by the National Institutes of Health (NIH) for federal funding has found a possible ethical problem: Some of the cell lines may have involved sperm or egg donor...

Va eugenics victims would receive compensation under sterilization bill

Becky Kowalsky — Mon, 04 Feb 2013 17:34:33 +0000

[Washington Post] In Richmond — E. Lewis Reynolds was just a boy when his cousin hit him in the head with a rock, nearly killing him and triggering epileptic-like convulsions that lingered for some years. His condition didn’t stop him from enlistin...

If your genome is public, so are you, researchers find

The American Journal of Bioethics — Wed, 30 Jan 2013 21:19:45 +0000

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Genetic privacy: How private is private?

Simone Penasa — Tue, 29 Jan 2013 13:55:47 +0000

[Nature] How private is private? A study published on 17 January reveals vulnerabilities in the security of public databases that contain genetic data, the latest in a series of similar revelations. So far, research funders that host the databases have...

TSA to drop X-ray airport scanners by June because of privacy concerns; other scanners staying

The American Journal of Bioethics — Thu, 24 Jan 2013 19:13:14 +0000

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New HIPAA Rules Fortify Patient Privacy

The American Journal of Bioethics — Wed, 23 Jan 2013 22:55:00 +0000

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Diagnosing the Famous Non-Patient

Jennifer Chevinsky — Wed, 23 Jan 2013 22:35:26 +0000

Jennifer Chevinksy, B.S.

The Philippine Medical Association (PMA) has recently denounced the actions of neurologist Dr. Rustico Jimenez who publicly commented on the health status of boxer and politician, Manny Pacquiao. If Dr. Jimenez had evaluated Mr. Pacquiao as a patient, performing a history and physical exam, certainly it would be inappropriate for him to share any related findings with the public since that would be a breach of the duty of confidentiality. However, Dr. Jimenez is not Mr. Pacquiao’s physician nor has Dr.…

Texas school can force teenagers to wear locator chip: judge

The American Journal of Bioethics — Fri, 18 Jan 2013 17:33:11 +0000

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A Little Digging Unmasks DNA Donor Names

The American Journal of Bioethics — Fri, 18 Jan 2013 17:30:51 +0000

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New HIPAA Guidance on De-Identification

Victoria Wilbur — Fri, 11 Jan 2013 15:45:40 +0000

On November 26, 2012, the Office for Civil Rights (OCR) within the Department of Health and Human Services released new Guidance on De-identification of Protected Health Information. The new Guidance provides covered entities—defined as certain healt...

Vote ends on Facebook privacy changes, for good

The American Journal of Bioethics — Tue, 11 Dec 2012 00:57:26 +0000

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Prime Healthcare Services fined $95,000 in privacy case

The American Journal of Bioethics — Fri, 30 Nov 2012 00:24:10 +0000

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Florida Asks Women to Spill Their Sex Habits

The American Journal of Bioethics — Tue, 27 Nov 2012 22:47:54 +0000

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Feds To Use Social Media For Biosurveillance

The American Journal of Bioethics — Wed, 21 Nov 2012 15:00:02 +0000

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Scientific Progress Could Be Casualty in Public Health vs. Privacy Debate Over Newborn Blood Samples

The American Journal of Bioethics — Thu, 15 Nov 2012 23:54:14 +0000

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Social Codes: Sharing Your Genes Online

The American Journal of Bioethics — Fri, 09 Nov 2012 21:28:07 +0000

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Will My Son Develop Cancer? The Promise (and Pitfalls) of Sequencing Children’s Genomes

htaye — Mon, 22 Oct 2012 21:54:35 +0000

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Bioethics Panel Urges More Gene Privacy Protection

htaye — Thu, 18 Oct 2012 21:35:19 +0000

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President’s Bioethics Panel Urges New Privacy Protection to Ensure Benefits from DNA Decoding

htaye — Tue, 16 Oct 2012 23:55:01 +0000

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AJOB’s September Issue is Here!

The American Journal of Bioethics — Sun, 02 Sep 2012 02:41:38 +0000

This month’s issue features:

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Doctor sued for posting breast augmentation photos

The American Journal of Bioethics — Wed, 15 Aug 2012 00:54:35 +0000

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Patient-Doctor Confidentiality Versus Public Safety

The American Journal of Bioethics — Tue, 31 Jul 2012 21:22:41 +0000

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Vial of Ronald Reagan’s blood up for sale, UK auction house claims

The American Journal of Bioethics — Tue, 22 May 2012 21:02:23 +0000

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Penn prof. discusses confidentiality

sysadmin — Thu, 05 Apr 2012 17:57:43 +0000

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Physician Misconduct Showing Up on the Internet: Survey

sysadmin — Wed, 21 Mar 2012 19:31:55 +0000

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How Much of Your Personal Health Information Should Be Online?

sysadmin — Wed, 21 Mar 2012 02:27:41 +0000

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Sheriffs Want Lists of Patients Using Painkillers

The American Journal of Bioethics — Thu, 09 Sep 2010 04:00:00 +0000

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TSA Has A Good Body Image…and Is Keeping It On File.

sysadmin — Wed, 18 Aug 2010 06:11:43 +0000

No, I’m not talking about how one feels about oneself when they look in the mirror. I’m talking about the Transportation Security Administration (TSA) who is taking tens of thousands of full body images of travelers going through scanners at major airports. What do they do with all these choice images? That’s right. They keep them.

According to CNET.com, TSA has hoarded over 35,000 of these checkpoint body scans. And let’s be clear, they don’t need that many for “testing, training, and evaluation purposes.”

What else TSA might do with these images is entirely unclear.…

When Patients Meet Online, Are There Side Effects?

sysadmin — Tue, 01 Jun 2010 05:00:00 +0000

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An Unforeseen Complication of Electronic Medical Records

sysadmin — Thu, 22 Apr 2010 05:00:00 +0000

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The dangers of growing DNA databases

sysadmin — Fri, 09 Apr 2010 05:00:00 +0000

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Your Medical Records Aren’t Secure

sysadmin — Wed, 24 Mar 2010 05:00:00 +0000

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Medical Records: Stored in the Cloud, Sold on the Open Market

sysadmin — Wed, 21 Oct 2009 05:00:00 +0000

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Gender Test After a Gold-Medal Finish

sysadmin — Thu, 20 Aug 2009 05:00:00 +0000

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Doctors Call for ‘Munchausen’ Blacklist

sysadmin — Wed, 19 Aug 2009 05:00:00 +0000

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Octuplets’ hospital privacy fine

sysadmin — Fri, 17 Jul 2009 05:00:00 +0000

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