» Privacy Where the World Finds Bioethics Wed, 22 Jun 2016 12:18:22 +0000 en-US hourly 1 For cholesterol study volunteer, an unsettling discovery in a Science paper: herself Thu, 12 May 2016 12:14:13 +0000 0 New York Hospital to Pay $2.2 Million Over Unauthorized Filming of 2 Patients Fri, 22 Apr 2016 13:52:19 +0000 0 BIOETHICSTV: Chicago Med 3/29 Wed, 30 Mar 2016 21:45:29 +0000 by Craig Klugman, Ph.D.

BioethicsTV is an occasional feature where we examine bioethical issues raised in televised medical dramas.

Tonight marked the mid-season premiere of Chicago Med, a freshman television show that seems to relish throwing professional and bioethical issues at its audience. This week, viewers saw no fewer than 4 ethical challenges.

1. Blood draws for DUI in the ED. The first story was about a young man who crashes his car into a house. He is brought to the ED and needs immediate surgery for internal bleeding.…

]]> 0
Code Black Ends the Season on Bioethics Tue, 01 Mar 2016 19:27:47 +0000 BioethicsTV is an occasional feature where we examine bioethical issues raised in televised medical dramas.

by Craig Klugman, Ph.D.

The season finale of Code Black (season 1; episode 18 – February 24, 2016) presented a plethora of ethical challenges for the hard working doctors and nurses of Angels Memorial Hospital’s emergency department. The conceit for this show is that this is the busiest emergency room in the country, entering “code black” on over 300 days a year. The show defines a code black as overwhelmed, understaffed, overcrowded.…

]]> 0
Hospital hack reveals digital risk in medical world Wed, 17 Feb 2016 21:33:51 +0000 0 A Generation Gap Between Privacy & Confidentiality Wed, 17 Feb 2016 07:45:51 +0000 by Craig Klugman, Ph.D.

I was sitting in a quiet coffee house when a woman at the other end of the café says loudly into her phone, “ I can send in a copy of the pregnancy test but I really need to have this ultrasound scheduled. The doctor is worried about doing my procedure if I’m pregnant.” Although a private business, a coffee house has a long tradition of being a public space. So why would someone have such a privileged, intimate conversation in public where others can clearly hear (especially when we’d prefer not to).…

]]> 0
U.S. and Europe in ‘Safe Harbor’ Data Deal, but Legal Fight May Await Mon, 08 Feb 2016 21:42:04 +0000 0 Safe Harbor ripped and replaced with Privacy Shield in last-minute US-Europe deal Fri, 05 Feb 2016 00:18:31 +0000 0 Big Pharma’s bet on Big Data creates opportunities and risks Thu, 28 Jan 2016 00:10:39 +0000 0 Revised Medical Access Records Guidelines Reinforce Patient Rights Fri, 22 Jan 2016 07:18:06 +0000 by Craig Klugman, Ph.D.

A few years ago I moved cross-country for a new job. Among the many moving tasks that I had was getting copies of all my medical records so I could bring those to my new physicians. Although I am very aware of HIPAA taught it in my bioethics and health policy courses for many years, I encountered obstacles to getting these records. Some of the refusals were phrased to my benefit: “If you take them then we have to charge but if we send directly to your new doctor, then there’s no charge;” “We’ll send them to you so you don’t need to carry them” and showed up months later in forwarded mail.…

]]> 0
Putting Patients Before Publicity Thu, 21 Jan 2016 04:49:05 +0000 by Craig Klugman, Ph.D.

Imagine if 5 million people learned about your hospital in a week. Would you want your hospital to be featured in a television reality show? Described as “unscripted authentic medical dramas,” such shows follow trauma cases from accident to emergency room. Over 2 seasons, NYMed followed stories at New York-Presbyterian Hospital, Lutheran Medical Center, University Hospital (NJ), and St. Luke’s Roosevelt Hospital. Similar shows include Hopkins, Boston Med, Save My Life: Boston Trauma and Boston EMS.…

]]> 0
Privacy and Information Sharing Tue, 19 Jan 2016 23:26:36 +0000 0 Your health records are supposed to be private. They aren’t. Tue, 05 Jan 2016 15:28:50 +0000 0 Using social media in clinical research: Case studies address ethical gray areas Mon, 16 Nov 2015 23:28:17 +0000 0 Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society? Sun, 01 Nov 2015 22:45:30 +0000 0 Human Chipping: Fishing for Uses Wed, 21 Oct 2015 04:12:11 +0000 by Craig Klugman, Ph.D.

In the near future:

Thank you Ms. Riviera, it seems that we have all of your paperwork in order for your new job. The only thing left is your microchip. Please extend your left hand. This will only sting a little.

Tagging humans with microchips has long been a trope in fiction: The X-Files; Terminal Man; Total Recall; Johnny Mnemonic; South Park: Bigger, Longer, Uncut; Spiderman 2; Mission Impossible 3; Final Cut; and Strange Days to name a few.…

]]> 0
Hello Barbie: Considering Potential Unforeseen Problems with A.I. Dolls and What Children Tell Them Mon, 28 Sep 2015 12:00:00 +0000 by Amanda Zink, J.D., M.A.

Hello Barbie, a doll with artificial intelligence (AI) that enables it to “talk” with children, is slated for release this November, just in time for the holiday season.

When a child activates a microphone inside Hello Barbie’s necklace, her words will be recorded and transmitted to computer servers. Speech recognition software will convert the audio message to analyzable text, enabling the “correct” response to be chosen out of thousands of pre-scripted lines.

Given recent articles on this toy in the popular press, I pose the question: Has Mattel taken enough time to think through the problems that could ensue from giving thousands of children a talking friend and uploading their conversations to the Cloud – for the manufacturers, the children’s parents, and maybe even the NSA to hear?…

]]> 0
You’re surrounded by a cloud of bacteria as unique as a fingerprint Wed, 23 Sep 2015 22:01:02 +0000 0 Ashley Madison & Using Stolen Data Thu, 10 Sep 2015 20:35:01 +0000 by Arthur L Caplan, PhD and Charles Seife, MS

This past August, the public was treated to gigabytes of data stolen from the Ashley Madison website, including detailed records on millions of people who had registered for their service. Their service, of course, is a dating site meant to facilitate extra-marital affairs. The message isn’t subtle, as anyone who’s got their upbeat jingle — “I’m looking for someone other than my wife!” — stuck in his head can attest.…

]]> 0
81 percent of hospitals and health insurance companies have had a data breach Fri, 04 Sep 2015 18:11:21 +0000 0 The Private as Public: What it Means for Bioethics Sat, 22 Aug 2015 05:54:36 +0000 by Craig Klugman, Ph.D.

Today I was sitting in an outdoor coffee house and listened to the sounds around me. I heard the jackhammer from the street construction and the beep of a truck backing up. There was the gentleman working on his computer at the next table, playing music from his cell phone, out loud for everyone to hear. There were two women behind me (one actually moved so that she was next to me) speaking in very loud voices while one was convincing the other to use her as a web designer (and complaining about their boyfriends).…

]]> 0
Investigating Two Claims Against Planned Parenthood: Center of Medical Progress’s Secret Videos Mon, 27 Jul 2015 22:00:39 +0000 by Craig Klugman, Ph.D.

Before you being reading, I have a disclaimer: Growing up, my mother worked for Planned Parenthood. As a nurse, she practiced in their clinics offering well women services, counseling, and contraception. After many years, she went on to direct their clinic’s in vitro fertilization program. I also heard the word “Planned Parenthood” stated with a quick northeastern accent. Said that way, as a child, I thought the place was called “Plant Parenthood” and wondered what plants had to do with women’s health.…

]]> 0
Court rules NSA program illegal Thu, 07 May 2015 19:15:16 +0000 0 How Private DNA Data Linked an Innocent Man to a 20-year-old Murder Case Fri, 01 May 2015 22:29:53 +0000 0 Why Doctors Should Audio Record Patient Encounters Wed, 29 Apr 2015 07:03:00 +0000 by Craig Klugman, Ph.D.

In Dave Eggers’ novel, The Circle, a behemoth tech company makes it popular for people to wear cameras and to live broadcast every minute of their lives (except for time in the bathroom). The goal is to remove secrets and to improve behavior because if you thought you were being watched all the time, you would always behave well (drawing on Bentham and Foucault’s ideas of the panopticon).

Much has been written about using cameras to protect ourselves.…

]]> 0
Figure 1: Global Medical Education and Collaboration in Real Time Tue, 21 Apr 2015 23:26:34 +0000 by Craig Klugman, Ph.D.

When I was teaching in medical schools I recall a case where a student was reprimanded for breaking patient confidentiality by uploading a picture of surgery to his Facebook profile. This incident led to educational interventions about the appropriate use of social media in medicine. The short guideline was, “Never upload photos of patients onto the internet.” Now, physicians are encouraged to upload patient pictures through a service called Figure1, which has been described as “Instagram for doctors.”

Figure 1 is part of Medicine 2.0, using online technology to enable collaboration and interaction.…

]]> 0
Health data breaches on the rise Tue, 14 Apr 2015 18:14:12 +0000 0 Should Medical Staff ‘Google’ Patients? Mon, 16 Mar 2015 13:47:09 +0000 ]]> 0 Caveat Scholasticus Thu, 12 Mar 2015 12:23:34 +0000 ]]> 0 Gov. Brown Makes History, End-of-Life Choices, Personal Health at our Fingertips Tue, 27 Jan 2015 23:54:39 +0000 0 Who Owns A Human Genome? Fri, 16 Jan 2015 18:02:29 +0000 0 Computers ‘judge personality better than friends Tue, 13 Jan 2015 17:50:19 +0000 0 Of Course 23andMe’s Plan Has Been to Sell Your Genetic Data All Along Tue, 13 Jan 2015 15:29:40 +0000 0 Case Study:The Obligations to Report Statutory Sexual Abuse Disclosed in a Research Study Wed, 01 Oct 2014 18:22:35 +0000 0 Thousands Of People Oblivious To Fact That Anyone On The Internet Can Access Their Computers Tue, 16 Sep 2014 21:18:45 +0000 0 Insurance giants creating massive database of patient records Mon, 15 Sep 2014 21:14:52 +0000 0 Big Data Peeps At Your Medical Records To Find Drug Problems Tue, 02 Sep 2014 23:57:34 +0000 0 NSA’s ‘MonsterMind’ Could Automate Cyberwar Tue, 19 Aug 2014 21:40:56 +0000 0 Google Seeks Human Guinea Pigs for Health Project Tue, 29 Jul 2014 20:01:39 +0000 0 Police Won’t Use Nude Photos of Va. Teen as Evidence in Sexting Case, Attorney Says Tue, 15 Jul 2014 18:35:22 +0000 0 Facebook responds to criticism of its experiment on users Mon, 30 Jun 2014 22:15:26 +0000 0 Big brother is a health care provider Sat, 28 Jun 2014 00:38:03 +0000 Read More »]]> 0 Health by the numbers Wed, 18 Jun 2014 07:06:23 +0000 by Craig Klugman, Ph.D.

How are you? How are you feeling? These used to be straightforward greetings with simple answers. “I’m fine.” I’m doing well.” “I had been feeling ill but am much better now.” Or even “I keep struggling with diet and exercise.”

However, in the age of accountability, our society has become less comfortable with fuzzy statements and prefers to quantify everything possible, irrespective of whether it’s meaningful. The same question today may elicit responses of “My cholesterol is at 265.” “My sugar is at 210.” “BP is 96 over 75.” Or even “I can’t talk right now, I still have 4,000 steps to go.”

Health has moved from describing a state of being to listing a collection of numbers.…

]]> 0
Minnesota to resume storing newborn blood samples Tue, 13 May 2014 15:00:56 +0000 0 Lessons for the Future of Primary Care from Robin Cook’s Cell Thu, 01 May 2014 07:28:23 +0000 by Craig Klugman, Ph.D.

I just finished reading the popular fiction novel Cell by Robin Cook. This medical thriller revolves around George Wilson, a radiology resident who finds people dying suddenly after receiving diagnoses of terminal illnesses including his fiancé and next-door-neighbor. The catch is that all of these people were beta testers for a new mobile app called iDoc. A technology company developed this program to be a personal primary care physician. iDoc can answer all of your health questions, monitor your vital signs, and even give you a dose of insulin through an implantable reservoir.…

]]> 0
Would you share your DNA info to advance medicine? Wed, 23 Apr 2014 17:46:06 +0000 0 French School Carries out DNA Dragnet in Rape Case Thu, 17 Apr 2014 21:42:59 +0000 0 PatientsLikeMe Launches “Data for Good” Campaign to Encourage Health Data Sharing to Advance Medicine Wed, 02 Apr 2014 18:14:36 +0000 0 Yahoo updates methodology in new transparency report Thu, 27 Mar 2014 21:50:36 +0000 0 British spy agency collected images of Yahoo webcam chats Thu, 27 Feb 2014 18:56:32 +0000 0