Hot Topics: professional ethics
by Ann Mongoven, Ph.D.
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[Editor’s note: Breaking news about a new data contract between Amazon and the U.K’s National Health Service underscores the need for ethical reflection on commercial/non-profit collaborations in health data analytics.
by Craig Klugman, Ph.D.
A commentary in Nature this past week suggested that bioethics may no longer be relevant. The author argues that the pace of technological change is so fast that bioethics can’t keep up: “Bioethics, once a beacon of principled pathways to policy, is increasingly lost, like Simba, in a sea of thundering wildebeest.” The author is Sarah Franklin, a sociologist and director of the Reproduce Sociology Research Group at the University of Cambridge (UK).…Full Article
by Keisha Ray, Ph.D.
As a philosopher and bioethicist by professional degree and training it is no more apparent that I have one foot in the world of bioethics and one foot in the world of health humanities than when I attend the annual meeting of American Society for Bioethics and Humanities (ASBH).…Full Article
by Craig Klugman, Ph.D.Full Article
by Craig Klugman, Ph.D.
A ProPublica investigation discovered a pattern in some transplant patients at Newark Beth Israel Hospital (NJ): In a few cases, patients were kept in the ICU for one year after transplant and then quickly sent to a long-term care facility where they died.…Full Article
by Craig Klugman, Ph.D.
I recently read Range: Why Generalists Triumph in a Specialized World written by investigative journalist David Epstein.…Full Article
By Charles Foster Informed consent, in practice, is a bad joke. It’s a notion created by lawyers, and like many such notions it bears little relationship to the concerns that real humans have when they’re left to themselves, but it creates many artificial, lucrative, and expensive concerns. Of course there are a few clinical situations […]Full Article
by Bandy X. Lee M.D., M.Div., Edwin B. Fisher Ph.D., and Leonard L. Glass M.D., M.P.H.
In the spring, we assessed the Mueller report from a mental health perspective because of the wealth and quality of content that rendered it useful for a capacity evaluation of the president. …Full Article
The Inner Lives of Doctors: Physician Emotion in the Care of the Seriously Ill
Operational Characteristics of Institutional Review Boards (IRBs) in the United States
Ethical Awareness Scale: Replication Testing, Invariance Analysis, and Implications
Examining Physician Interactions with Disease Advocacy Organizations
Reweighing the Ethical Tradeoffs in the Involuntary Hospitalization of Suicidal Patients
What Is the Minimal Competency for a Clinical Ethics Consult Simulation? Setting a Standard for Use of the Assessing Clinical Ethics Skills (ACES) Tool
Ethical Leadership and Employees’ Perceptions About Raising Ethical Concerns to Managers in the Veterans Health Administration
Neuroethics at 15: The Current and Future Environment for Neuroethics
Expanding, Augmenting, and Operationalizing Ethical and Regulatory Considerations for Using Social Media Platforms in Research and Health Care
Primary care doctors are really good at checking seniors’ cholesterol levels and blood pressure but often fail to use tests that could detect dementia.
Fewer than half of primary care doctors surveyed say they routinely test patients 65 and older for problems with memory and thinking, according to a report released Tuesday by the Alzheimer’s Association.Full Article
The Trump-Pence administration just made an unprecedented move to implement an unethical “gag” rule, prohibiting doctors and nurses from providing millions of patients with full information about their health-care options. This is a serious threat to the deep trust between health-care providers and our patients, and an attack on access to health care for those who need it most.Full Article
Officials at Stanford University have opened an investigation into what several high-profile faculty members knew about a Chinese effort to create gene-edited babies led by a onetime researcher at the California school, He Jiankui.
The investigation, according to people familiar with it, aims to understand what liabilities or risks Stanford may have in connection with the controversial medical experiment, which led last year to the birth of two girls whose genomes had been altered with a molecular tool called CRISPR to render them immune to HIV.Full Article
A near-drowning had left the woman in a persistent vegetative state for nearly a decade. So when she went into labor a few days after Christmas, her caretakers were flummoxed.
On Dec. 29, with help from one of the facility’s nurses, the patient gave birth to a healthy baby boy, KPHO reported. The birth — and the sexual assault of a vulnerable individual that must have preceded it — has cast a harsh glare on conditions at a nonprofit organization that bills itself as a leading provider of health care for Phoenix’s medically fragile.Full Article
The Sarah Cannon Research Institute, based in Nashville, received nearly $8 million in payments from drug companies on behalf of its president for clinical operations, Dr. Howard Burris, largely for research work. Dozens of his articles published in prestigious medical journals did not include the required disclosures of those payments and relationships.Full Article
BEIJING — China said on Thursday that it had suspended the work of a scientist who claims to have created the world’s first genetically edited babies, saying his conduct appeared to be unethical and in violation of Chinese law.
The scientist, He Jiankui, announced on Monday that he had used the gene-editing technique Crispr to alter embryos, which he implanted in the womb of a woman who gave birth to twin girls this month. At an international conference on Wednesday, he asserted that he was proud of what he had done.Full Article
A Chinese researcher claims that he helped make the world’s first genetically edited babies — twin girls born this month whose DNA he said he altered with a powerful new tool capable of rewriting the very blueprint of life.
If true, it would be a profound leap of science and ethics.
A U.S. scientist said he took part in the work in China, but this kind of gene editing is banned in the United States because the DNA changes can pass to future generations and it risks harming other genes.Full Article
The task force was announced in a statement from MSK President and Chief Executive Officer Craig Thompson, MD. It will be chaired by Debra Berns, MSK’s Senior Vice President and Chief Risk Officer.Full Article