Posted: Monday, October 7th, 2019
Working under general supervision, the Research Assistant 2 will plan and carry out projects in accordance with general plans to provide regular full-time research support for the multi-year, NIH-funded research grant “Prenatal Preparation: Actions and Results.”
This study will examine the ways stakeholders understand the meaning of prenatal preparation after a
genetic result, determine what resulting health-seeking and related social behaviors these stakeholders
undertake or enable, and build a conceptual model of preparation to guide future research, practice and
policy development. The project involves interviews with clinicians, patient advocacy groups, and
families who receive prenatal genetic findings and postnatal diagnoses, as well as an expert panel of
researchers, clinicians, bioethicists, advocates, and parents. By building a multidimensional conceptual
model of prenatal preparation and assessing its potential ethical, clinical, research, and practical
implications, this project will lead to more coordinated efforts to inform and support families
experiencing a fetal genetic condition.
Duties include recruiting participants, maintaining databases of recruitment efforts, conducting interviews, coding, and analyzing qualitative data, and collecting and compiling additional data and literature relevant to the study aims. This position requires bilingual ability (Spanish and English) in order to best serve the study population.
The principal investigator of this project is Marsha Michie, PhD, Assistant Professor of Bioethics, at Case Western Reserve University School of Medicine.