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Knowing One’s Way Around: The Challenge of Identifying and Overseeing Innovations in Patient Care
George J. Agich

The broad sweep of medicine’s history since the middle of the 20th century has been one of improvement in the care of patients, but that progress has not been uniform. The very processes that lead to important advances in medical care also fail; some of these failures are catastrophic. Patient welfare and improvement in health or functional status comprise the central goal of medical care, yet h...

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Expanding, Augmenting, and Operationalizing Ethical and Regulatory Considerations for Using Social Media Platforms in Research and Health Care
John Torous, Lyle Ungar & Ian Barnett

Social media have allowed the scope and scale of biomedical research studies to greatly expand in the last decade. Now able to nearly reach entire populations via platforms like Facebook, researchers can explore new questions and recruit thousands in a matter of minutes. Social media can also help address challenges of longitudinal retention in research and enable researchers to identify participa...

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Target Article

Innovative Practice, Clinical Research, and the Ethical Advancement of Medicine
Jake Earl

Innovative practice occurs when a clinician provides something new, untested, or nonstandard to a patient in the course of clinical care, rather than as part of a research study. Commentators have noted that patients engaged in innovative practice are at significant risk of suffering harm, exploitation, or autonomy violations. By creating a pathway for harmful or nonbeneficial interventions to spr...

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Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants
Ananya Bhatia-Lin, Alexandra Boon-Dooley, Michelle K. Roberts, Caroline Pronai, Dylan Fisher, Lea Parker, Allison Engstrom, Leah Ingraham & Doyanne Darnell

As social media becomes increasingly popular, human subjects researchers are able to use these platforms to locate, track, and communicate with study participants, thereby increasing participant retention and the generalizability and validity of research. The use of social media; however, raises novel ethical and regulatory issues that have received limited attention in the literature and federal ...

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