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12/04/2016

Virginia Rejects Texas Futility Law and Opts to Further Study Legislation on Life-Sustaining Treatment Conflicts

Last month, the Virginia Joint Commission on Health Care decided not to move forward on specific proposals to amend the state Health Care Decisions Act.   If enacted, the VJCHC proposals would have made Virginia law similar to Texas law, by autho...

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

12/03/2016

DAUGHTERS OF THE DUST, STANDING @ THE SCRATCH LINE: Bioethics meets real Cross Cultural Competency


Director July Dash (Daughters of the Dust and Scratch Line)
at the MVFF 39 October 14, 2016


As a member of  the National Writers Union and affiliate of  the International Federation of Journalists, it is my profound honor to represent the California Film Institute in presenting  director Julie Dash the Mill Valley Film Festival Award. This award honors the excellence of  her lifetime body of work.” —None of  these words could I have imagined coming from my mouth. But, on October 12, 2016, that is what I said at the 39th Mill Valley film festival. MVFF is one of the longest running Film Festival’s in North America with an audience this year of more than 65,000. 

Recently digitally remastered by the Coleman Library, director Dash’s DAUGHTERS OF THE DUST aesthetic remains incomparable with a message persistently timely. An African American family prepares to leave their Gullah Island home. They and their descendants have lived on that land since long before the Emancipation Proclamation. Tensions between the power of the familiar and perils of a new existence are made abundantly clear by a matriarch. She is a first degree relative to those brought as slaves from Africa. 

The re-released version of DAUGHTERS OF THE DUST, screened at the MVFF39, was preceded by the premiere of Dash’s provocative new short film, STANDING @ THE SCRATCH LINE. This new work is a part of the Great Migration Project. It lyrically traces the arrival of the first Africans on the Gullah Island shore their generations of migration from the Gullah Geechee Lowcountry to Philadelphia, PA. The film links the survival of a people to the strengths of the sacred architecture of African American Churches.

Filmmaker Julie Dash’s screen voice is an offspring of the “LA Rebellion”. The LA Rebellion creative movement emerged from the UCLA School of Theater, Film and Television  during the late 1960s and 1970s. The Rebellion was, and is, the bard of  complex justice issues, while also an anti-venom for racism and classism.

Twenty years after the LA Rebellion, in 1991,  internationally recognized, Julie Dash’s DAUGHTERS OF THE DUST, was the first feature-length film by an African American woman with United States theatrical release. The film coincided with a period when we, in clinical medical ethics, were defining the importance of cross-cultural communication in medicine — particularly at the edges of life — birth and death. 

The battle was to get an understanding of race class and culture into the medical curriculum. 
In a real way Ms. Dashs work help to combat health disparity across race, class and culture. Her's is an anthropological short hand bundling the reality of what had before been like talking only about the reflection of stars — Now, one can actually show the celestial body of cultural complexity to colleagues and say,  This is part of what you are working with when you diagnose a person with a life threatening illness, with its fears, attendant loss of family and culture. Director Julie Dash manages to demonstrate that a culture can be simultaneously different from others, while expressing universal concerns.

Other works by Ms. Dash are THE ROSA PARKS STORY,  INCOGNITO, FUNNY VALENTINES, LOVE SONG and SUBWAY STORIES. Coming soon is her film  TRAVEL NOTES OF A GEECHEE GIRL, about writer- actor-griot-culinary anthropologist Vertamae Smart-Grosvenor.

References:



Standing@the Scratch Line https://vimeo.com/180110116

Julie Dash official website: http://juliedash.tv


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This entry was posted in Health Care and tagged . Posted by September Williams, MD. Bookmark the permalink.

12/03/2016

Speaking of Dying – End of Life Planning Workshop Minnesota

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

12/02/2016

Respecting Choices and Disabilities Groups Collaborate on Decision Aids

It is wonderful to see disability organizations working together with advance care planning leader Respecting Choices. Some disability advocates expressed concerns that certain Respecting Choices decision aids (regarding medical nutritional and breath...

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

12/02/2016

Perspectives in learning: Incorporating discussion materials and activities on ethics into science curriculum.

The Commission’s most recent report, Bioethics for Every Generation, outlines a variety of models that can be used to teach ethics, and emphasizes that ethics education is about preparing students how to think ethically, rather than what to think. Bioethics for Every Generation also emphasizes that ethical questions and topics can be incorporated into existing courses, such as biology, chemistry, social studies and history courses, among others.

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This entry was posted in Health Care and tagged , , , , . Posted by Ijeoma Egekeze. Bookmark the permalink.

12/01/2016

“3-Parent Babies” Sally Forth

The journal Nature reports that scientists advising the U.K.’s Human Fertilization and Embryology Authority (HEFA) have judged that attempts to bring so-called “3-parent babies” to birth is “ready for limited clinical testing.”   Presumably this means that the underlying technology, mitochondrial replacement, has been tested enough in the laboratory that it’s ready to try for human procreation.  Also presumably, HEFA will promulgate rules or guidelines to... // Read More »

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This entry was posted in Genetics, Health Care and tagged , , , , . Posted by Jon Holmlund. Bookmark the permalink.

12/01/2016

Critical Care Canada Forum 2016

Presentations from the 2016 Critical Care Forum are now posted to the website.   These include two by Bernat on brain death, one by Rubenfeld on the Rasouli case, and others on intensivist variability and end-of-life care.

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

12/01/2016

Moral Distress in Clinical Ethics: Expanding the Concept

by Alyssa M. Burgart & Katherine E. Kruse

As physician ethicists, we often receive consultations where there is no clear ethical question, but rather, discomfort around value judgments. We have struggled to articulate the meaning of colleagues’ morally uncomfortable experiences. The traditional definition of moral distress is quite restrictive and offers no vocabulary for our observations. Clinicians know something is wrong and that it might be of a moral nature. However, they don’t know the “right” thing to do, and the institution isn’t preventing them from acting. In our practice, most ethics consults do not have “right” answers, but they almost universally have people struggling with moral unease.…

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This entry was posted in Clinical Ethics, Featured Posts. Posted by Blog Editor. Bookmark the permalink.

12/01/2016

Ethics & Society Newsfeed: World AIDS Day 2016

World AIDS Day, December 1, 2016 “World AIDS Day is held on the 1st December each year and is an opportunity for people worldwide to unite in the fight against HIV, show their support for people living with HIV and to commemorate people who have died. World AIDS Day was the first ever global health … More Ethics & Society Newsfeed: World AIDS Day 2016

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12/01/2016

Bioethics Under Attack: Analysis Is Seen As Threat

by Craig Klugman, Ph.D.

A September article in Bioethics by Julian Savulescu and Udo Schuklenk has lit a fire under the Christian media. According to such news sources as The Stream (a conservative Christian website) and author William Briggs (you have to read his bio) “Bioethicists Want to Purge Christian Doctors.” This reaction to the Bioethics article is further evidence that we see what we want in writing rather than what is actually written.

In their article, “Doctors Have No Right to Refuse Medical Assistance in Dying, Abortion or Contraception,” Savulescu and Schuklenk offer a refutation of an article by Christopher Cowley’s, “A Defence of Conscientious Objection in Medicine: A Reply to Schuklenk and Savulescu.” Yes, the article that has offended the Christian press is a reply to a reply to a 2015 editorial written by Schuklenk and a 2006 analysis by Savulescu.…

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This entry was posted in Cultural, Ethics, Featured Posts, Health Regulation & Law, Media. Posted by Craig Klugman. Bookmark the permalink.