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02/24/2017

BioethicsTV: Substituted Judgment

by Craig Klugman, Ph.D.

On Grey’s Anatomy (Season 13, Episode 14) two cases lead to questions about who makes decisions for patients. In the first story, a young woman wanders into the ED disoriented and talking about snakes in a hat to denote to the viewer that she has a mental illness and lacks capacity. She is filthy, homeless, and lacks identification. The woman collapses because her very old pacemaker malfunctions. Two cardiologists in the room agree that she needs the surgery and this is all that the viewer sees of consent. There is no interaction with social work or calls to the police to identify her, to look for missing persons reports, or to circulate her image and description.…

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02/23/2017

Still further on heritable human gene editing

I want to spend a little time—several consecutive posts—on the subject of heritable gene editing in humans, and on the recent report by the National Academies of Science, Engineering, and Medicine on it.  The topic bears more attention than a single blog post, written in a bit of a rush, based on only the initial release of the report, pending a deeper dive.  That is... // Read More »

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02/22/2017

The Knick by Gregory Clark

"The More Things Change, The More They Stay The Same" When I first watched The Knick two years ago, it seemed like a show about the past and the rapid pace of medical discoveries in the early days of modern medicine, before antibiotics, when patients were still brought into the […]

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This entry was posted in Health Care and tagged , , . Posted by Lucy Bruell. Bookmark the permalink.

02/22/2017

New Legislation Seeks to Prohibit Clinicians from Stopping Life-sustaining Treatment without Consent

In a series of articles, I have described jurisdictions like Idaho, Oklahoma, and Ontario as "red light" states, because they prohibit clinicians from removing life-sustaining medical treatment without surrogate consent. Now spreading across the count...

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

02/21/2017

The Convenings – Meaningful Conversations about Living and Dying Well in Minnesota

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

02/21/2017

User Beware: Privacy Settings just a Facade

By Brenda Curtis, Ph.D. Social media platforms continue to improve and refine their privacy settings as the demand for advanced user protections increases. Although enabling catered privacy settings to online profiles allows users to indicate who they would like share personal information with, it does not necessarily protect them from the platforms – i.e. websites … More User Beware: Privacy Settings just a Facade

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02/21/2017

Studying “Friends”: The Ethics of Using Social Media as Research Platforms

by Sandra Soo-Jin Lee, Ph.D.

Social media is increasingly creating the contours of many Americans’ daily lives as a medium that is simultaneously intimate and powerfully public. Beyond providing tools to communicate with friends, family, and colleagues, social media platforms have become critical sources of news around the world and a significant medium for self-expression. The ability to amplify one’s joy, fear, anger and hope to hundreds, thousands, even tens of thousands of “friends” with a click of a button has altered how we think about the distribution of information and social networks. In this age of mounting expectation over the possibilities of ‘big data,” social media sites are focal points for accessing large amounts of detailed, personal information cheaply and quickly.…

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This entry was posted in Featured Posts, Informed Consent, Media, Privacy, Research Ethics and tagged , , . Posted by Blog Editor. Bookmark the permalink.

02/21/2017

Ethics, refugees, and the President’s Executive Order

by Nancy Kass, ScD
There are different political philosophies about the responsibilities of states regarding whether to accept refugees. While there is a political philosophy that might be called Nationalist in perspective that says, essentially, “Not my Problem,” the predominant philosophy globally is different. That philosophy says that the refugee crisis is a global problem, people are in need, and we have the capacity to help. The reasoning behind this latter view recognizes that the benefit to others in accepting refugees is a matter of life and death, and the sacrifice to countries who accept them is, in the long run, minimal.…

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02/21/2017

Medicare Spending at End-of-Life Is Declining

Fifteen years ago, nearly 20% of Medicare spending was on patients in their last year of life.  Today, it is less than 13%.   Patients are living longer and older patients tend to spend less on medical care in their final years of life than ...

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This entry was posted in Health Care and tagged , . Posted by Thaddeus Mason Pope, JD, PhD. Bookmark the permalink.

02/21/2017

The Aftergift

“… and maybe then you’ll hear the words I’ve been singing; Funny, when you’re dead how people start listen’n…” If I Die Young (2010) by The Band Perry It was in the fall of 2015 that I received a call from a Mrs. Jones.  She went on to detail how her husband, Robert, had died […]

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This entry was posted in Health Care and tagged , , , . Posted by reflectivemeded. Bookmark the permalink.