Hot Topics: Research Ethics

Blog Posts (108)

June 26, 2018

Welcome to the 2018 HIV and Drug Abuse Prevention Research Ethics Training Institute Fellows!

The Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI) is pleased to announce that the following individuals have been selected as 2018 Fellows: The Fordham University  HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI), now in its 8th year, is a training grant sponsored by the National Institute on Drug Abuse (NIDA) (R25 DA031608-08), Principal Investigator, […]
June 6, 2018

The Trumpification of Research Ethics: It’s Now OK to Use Prisoners as Guinea Pigs

By Celia Fisher, PhD Fordham University Federal regulations prohibiting scientists from using prisoners to study health problems not directly related to the causes and conditions of their incarceration are now threatened by the same morally ambiguous forces undermining other U.S. regulations designed to protect the public.  As reported in The New York Times, to resolve scientific […]
June 6, 2018

The Trumpification of Research Ethics: It’s Now OK to Use Prisoners as Guinea Pigs

By Celia Fisher, PhD Fordham University Federal regulations prohibiting scientists from using prisoners to study health problems not directly related to the causes and conditions of their incarceration are now threatened by the same morally ambiguous forces undermining other U.S. regulations designed to protect the public.  As reported in The New York Times, to resolve scientific […]
May 17, 2018

Big Data Studies and Abuse of Fiduciary Duties

by Craig Klugman, Ph.D.

A study published in the May 17th, 2018 issue of Cell, “Disease Heritability Inferred from Familial Relationships Reported in Medical Records,” shows a connection between families and certain diseases at three large urban university medical centers.…

May 16, 2018

The Homeless as Human Subjects

STUDENT VOICES | CHYNN ETHICS PRIZE FIRST-PLACE WINNER By Sarah Reis During my senior year of high school, on a bitter Saturday morning in January, I found myself at the entrance to the Boston Common assisting other volunteers from the Sock Exchange charity in organizing food and clothing for distribution to the homeless of the […]
April 25, 2018

Fordham University’s Dr. Celia Fisher on Patient-Provider Communications with Gay Teens

Fordham University’s Celia Fisher, PhD was the Principal Investigator on a recently completed quantitative study that resulted in a paper published in the journal AIDS and Behavior titled “Patient-Provider Communication Barriers and Facilitators to HIV and STI Preventive Services for Adolescent MSM.” The purpose of this study was to explore adolescent men who have sex with men (AMSM) […]
April 8, 2018

Building a Trustworthy Precision Health Research Enterprise

This editorial also appears in the April 2018 edition of the American Journal of Bioethics

by David Magnus, PhD and Jason N.

April 8, 2018

Artist’s Blurb- April AJOB Cover

by Natalie Yoshioka, BA
I spent the most time trying to find an exciting visual metaphor that would best represent the recommendation of building trust within a community over an extended period of time.…

April 6, 2018

Ethics and Society Newsfeed – April 6, 2018

Image via Bioethics/Medical Ethics/Animal Ethics The Human Thing: When It’s Not About “Bioethics” “In the place of narcissistic and subjective dignity wrongly invoked by procreation militants, we need a return to the transcendent and objective dignity of human nature.” A Global Observatory for Gene Editing “Sheila Jasanoff and J. Benjamin Hurlbut call for an international […]
February 9, 2018

Ethics and Society Newsfeed – February 9, 2018

Politics The Circumscribed Ethics Investigation into Devin Nunes “The House Intelligence Committee chair claimed he’d been completely cleared, but the panel probing his conduct never gained access to the intelligence he was accused of divulging.” Trump’s Choice For Ethics Chief Wins Praise As ‘Somebody Who Plays It By The Book’ “Emory A. Rounds III is … More Ethics and Society Newsfeed – February 9, 2018

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Published Articles (216)

American Journal of Bioethics: Volume 18 Issue 4 - Apr 2018

Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee

American Journal of Bioethics: Volume 18 Issue 4 - Apr 2018

Building a Trustworthy Precision Health Research Enterprise David Magnus & Jason N. Batten

AJOB Primary Research: Volume 8 Issue 1 - Mar 2018

Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories Sara L. Ackerman PhD, MPH & Barbara A. Koenig

AJOB Primary Research: Volume 8 Issue 1 - Mar 2018

A paradigm for understanding trust and mistrust in medical research: The Community VOICES study M. Smirnoff, I. Wilets, D. F. Ragin, R. Adams, J. Holohan, R. Rhodes, G. Winkel, E. M. Ricci, C. Clesca & L. D. Richardson

AJOB Primary Research: Volume 8 Issue 1 - Mar 2018

Would you be willing to zap your child's brain? Public perspectives on parental responsibilities and the ethics of enhancing children with transcranial direct current stimulation Katy Wagner, Hannah Maslen, Justin Oakley & Julian Savulescu

AJOB Primary Research: Volume 8 Issue 1 - Mar 2018

Children's perspectives on the benefits and burdens of research participation Claudia Barned, Jennifer Dobson, Alain Stintzi, David Mack & Kieran C. O'Doherty

American Journal of Bioethics: Volume 18 Issue 1 - Jan 2018

The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative Kathryn M. Porter, Marion Danis, Holly A. Taylor, Mildred K. Cho, Benjamin S. Wilfond & on behalf of the Clinical Research Ethics Consultation Collaborative Repository Group

American Journal of Bioethics: Volume 17 Issue 12 - Dec 2017

Our Life Depends on This Drug: Competence, Inequity, and Voluntary Consent in Clinical Trials on Supervised Injectable Opioid Assisted Treatment Daniel Steel, Kirsten Marchand & Eugenia Oviedo-Joekes

American Journal of Bioethics: Volume 17 Issue 12 - Dec 2017

Reframing Consent for Clinical Research: A Function-Based Approach Neal W. Dickert, Nir Eyal, Sara F. Goldkind, Christine Grady, Steven Joffe, Bernard Lo, Franklin G. Miller, Rebecca D. Pentz, Robert Silbergleit, Kevin P. Weinfurt, David Wendler & Scott Y. H. Kim

American Journal of Bioethics: Volume 17 Issue 12 - Dec 2017

The Idea of a “Standard View” of Informed Consent Tom L. Beauchamp

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News (429)

July 31, 2018 3:00 am

Experimental Alzheimer's drug stirs hope after early trials (CNN)

After a series of prominent failures, there’s reason to be hopeful in the search for a drug to slow the progression of Alzheimer’s disease. Results of an early trial of an experimental drug showed that it improved cognition and reduced clinical signs of Alzheimer’s in the brains of study participants, and experts are “cautiously optimistic” that the results will be duplicated in future clinical trials.

July 16, 2018 3:04 am

Drug to Treat Smallpox Approved by F.D.A., a Move Against Bioterrorism (The New York Times)

The Food and Drug Administration on Friday approved the first drug intended to treat smallpox — a move that could halt a lethal pandemic if the virus were to be released as a terrorist bioweapon or through a laboratory accident.

July 10, 2018 3:00 am

Iceland's ethical debate: Should DNA donors be told if they are predisposed to a deadly disease? (CBC Radio)

If you knew someone was genetically predisposed to cancer, would you tell them? Dr. Kari Stefansson would. The Icelandic neurologist is the CEO of deCODE Genetics, a company that has collected the DNA of nearly half the country’s population. Using the company’s data, he said that he can pinpoint 1,600 people at risk of deadly cancers in Iceland. The government, however, won’t let him.

June 26, 2018 3:49 am

Hundreds of new genes may underlie intelligence—but also autism and depression (Science)

Being smart is a double-edged sword. Intelligent people appear to live longer, but many of the genes behind brilliance can also lead to autism, anxiety, and depression, according to two new massive genetic studies. The work also is one of the first to identify the specific cell types and genetic pathways tied to intelligence and mental health, potentially paving the way for new ways to improve education, or therapies to treat neurotic behavior.

May 18, 2018 9:00 am

Creepy 'brain in a bucket' study spurs medical, ethical debates (NBC News)

Three weeks ago, a Yale University neuroscientist, Nenad Sestan, explored the ethical implications of experiments using human brain tissue in an essay in the journal Nature. Then last week Sestan’s own brain research was splashed across tabloids under lurid headlines like “Yale experiment to reanimate dead brains promises ‘living hell’ for humans.”

April 25, 2018 9:00 am

FDA investigating unauthorized herpes vaccine research (CNN)

Since 1995, Halford had been conducting and publishing research on the herpes simplex virus, for which he had received small grants from the National Institutes of Health. But the biology professor at Southern Illinois University had run out of time. Diagnosed in 2011 with sinonasal undifferentiated carcinoma, a rare form of cancer, Halford knew that he might not be able to complete development of his vaccine and gain approval from the US Food and Drug Administration before his life ended. In fact, when Halford died of cancer in June at the age of 48, his vaccine had not cleared all the regulatory hurdles necessary for a medical product to be approved for use in the US. Now, the FDA has launched a criminal investigation into Halford’s research practices, according to a report by Kaiser Health News.
April 23, 2018 2:56 pm

Can a genetic weapon combat one of the world’s major crop destroyers? (Science)

The spotted wing fruit fly is one of the world’s major crop destroyers. Scientifically known as Drosophila suzukii, this peppercorn-size insect uses a serrated organ to lay its eggs inside—rather than on top of—unripe fruit, damaging raspberry, strawberry, and cherry crops across the globe. Now, scientists may have found a way to fight this pest using a strategy called gene drive, which can spread genes rapidly through a population.

April 10, 2018 9:00 am

Facebook's facial recognition violates user privacy, watchdog groups plan to tell FTC (USA Today)

Already under siege over loose privacy controls and Russian manipulation, Facebook is about to be challenged on another issue: facial recognition. The Electronic Privacy Information Center and several other consumer groups plan Friday to file a complaint with the Federal Trade Commission asking for an investigation into the network’s use of facial recognition technology.

April 9, 2018 9:00 am

Facebook Decides Now's Not a Great Time to Harvest Patients' Medical Data (Fortune)

According to CNBC, the company was as recently as last month talking to the likes of Stanford Medical School about setting up a data-sharing agreement for a research project with a focus on heart disease. “This work has not progressed past the planning phase, and we have not received, shared, or analyzed anyone’s data,” Facebook told CNBC, which reported that the plan was put on hold following the Cambridge Analytica data privacy scandal, and the subsequent revelations about Facebook’s data-sharing practices.

April 5, 2018 9:00 am

NIH moves to punish researchers who violate confidentiality in proposal reviews (Science)

When a scientist sends a grant application to the U.S. National Institutes of Health (NIH) in Bethesda, Maryland, and it goes through peer review, the entire process is supposed to be shrouded in secrecy. But late last year, NIH officials disclosed that they had discovered that someone involved in the proposal review process had violated confidentiality rules designed to protect its integrity. As a result, the agency announced in December 2017 that it would rereview dozens of applications that might have been compromised.

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