Hot Topics: Research Ethics

Blog Posts (72)

February 21, 2017

User Beware: Privacy Settings just a Facade

By Brenda Curtis, Ph.D. Social media platforms continue to improve and refine their privacy settings as the demand for advanced user protections increases. Although enabling catered privacy settings to online profiles allows users to indicate who they would like share personal information with, it does not necessarily protect them from the platforms – i.e. websites … More User Beware: Privacy Settings just a Facade
February 21, 2017

Studying “Friends”: The Ethics of Using Social Media as Research Platforms

by Sandra Soo-Jin Lee, Ph.D.

Social media is increasingly creating the contours of many Americans’ daily lives as a medium that is simultaneously intimate and powerfully public.…

February 16, 2017

The 2017 Common Rule and the Clinical Ethics of Prolixity

by Steven H. Miles, MD

Bioethicist Steven Miles suggest that making the new Common Rules regulations easy to read is as important as the content

The new Common Rule to protect human subjects has an extraordinarily large and diverse audience.…

January 19, 2017

New Common Rule Regs Mean New Training for IRB Members

by Craig Klugman, Ph.D.

Yesterday, the Department of Health & Human Services released the long-awaited, and debated, new Common Rule.…

January 19, 2017

Peer Reviewing: Paying it Forward

by Kayhan Parsi, JD, PhD and Bela Fishbeyn, MS

As an associate editor and executive editor of the American Journal of Bioethics, we identify and recruit peer reviewers to review manuscripts that have been submitted for publication.…

January 17, 2017

‘Goodness of Fit Ethics’ to Promote Health Research for LGBT Youth

This past November, Public Responsibility in Medicine and Research (PRIM&R), a non-profit organization dedicated to the study and advancement of the highest ethical standards in the conduct of research, held its annual Advancing Ethical Research (AER) Conference featuring Dr. Celia B. Fisher, Director of the Center for Ethics Education and HIV and Drug Abuse Prevention Research Ethics Training Institute … More ‘Goodness of Fit Ethics’ to Promote Health Research for LGBT Youth
January 10, 2017

Be Wary What You Research: You Might Get Sued

by Craig M. Klugman, Ph.D.

Peter Cohen, Clayton Bloszies, Caleb Yee and Roy Gerona published an article in the journal Drug Testing and Analysis in April 2015 explaining the results of their testing of supplements.…

December 19, 2016

BioethicsTV: Pure Genius Proudly Ignores the Rules

by Craig Klugman, Ph.D.

“We’re Bunker Hill, since when do we follow the rules” sums up the attitude of this poor-performing medical drama that kicks ethics, law, and regulation to the curb on a weekly basis.…

November 9, 2016

Bioethics faces a rocky but navigable road

by Arthur Caplan, Ph.D.

Academic bioethics has never been popular with Republicans.  Libertarians dislike academic bioethics because it seems too elitist and anti-free market. …

October 31, 2016

Bioethics.net: The Presidential Election Edition

by Craig Klugman, Ph.D.

Every four years the United States chooses a new chief executive. Although encoded in the Constitution, the idea that a person with such power would willingly surrender it and walk away to allow another to lead is remarkable.…

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Published Articles (192)

American Journal of Bioethics: Volume 17 Issue 3 - Mar 2017

Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations Luke Gelinas, Robin Pierce, Sabune Winkler, I. Glenn Cohen, Holly Fernandez Lynch & Barbara E. Bierer

American Journal of Bioethics: Volume 17 Issue 3 - Mar 2017

Studying “Friends”: The Ethics of Using Social Media as Research Platforms Sandra Soo-Jin Lee

AJOB Primary Research: Volume 8 Issue 1 - Feb 2017

When are primary care physicians untruthful with patients? A qualitative study Stephanie R. Morain, Lisa I. Iezzoni, Michelle M. Mello, Elyse R. Park, Joshua P. Metlay, Gabrielle Horner & Eric G. Campbell

AJOB Primary Research: Volume 8 Issue 1 - Feb 2017

How are PCORI-funded researchers engaging patients in research and what are the ethical implications? Lauren E. Ellis MA, PhD & Nancy E. Kass

American Journal of Bioethics: Volume 16 Issue 10 - Oct 2016

Healing Without Waging War: Beyond Military Metaphors in Medicine and HIV Cure Research Jing-Bao Nie, Adam Gilbertson, Malcolm de Roubaix, Ciara Staunton, Anton van Niekerk, Joseph D. Tucker & Stuart Rennie

AJOB Neuroscience: Volume 7 Issue 2 - Apr 2016

The Arts and Sciences of Reading: Humanities in The Laboratory Lindsey Grubbs

AJOB Neuroscience: Volume 7 Issue 2 - Apr 2016

The Relevance and Context of Research Laura Otis

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

Ethical challenges in designing and implementing health systems research: Experiences from the field Adnan Hyder & Carleigh Krubiner

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

Promoting equity through health systems research in low- and middle-income countries: Practices of researchers Bridget Pratt, Katharine A. Allen & Adnan A. Hyder

AJOB Primary Research: Volume 7 Issue 3 - Jul 2016

Does promoting research advance planning in a general elderly population enhance completion of a research directive and proxies' predictive ability? a randomized controlled trial Gina Bravo, Lise Trottier, Marie-France Dubois, Marcel Arcand, Danièle Blanchette, Anne-Marie Boire-Lavigne, Maryse Guay, Paule Hottin, Julie Lane, Suzanne Bellemare & Karen Painter

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News (394)

March 24, 2017 9:00 am

World’s first full-body PET scanner could aid drug development, monitor environmental toxins (Science)

Researchers are working to build the world’s first full-body PET scanner, which they claim will increase our power to understand what’s going on in our bodies through more vivid PET images and the opportunity to examine how the whole body responds to drugs and toxins.

March 14, 2017 9:00 am

Scientists Closer To Creating A Fully Synthetic Yeast Genome (NPR)

Scientists have taken another important step toward creating different types of synthetic life in the laboratory. An international research consortium reports Thursday that it has figured out an efficient method for synthesizing a substantial part of the genetic code of yeast.

February 24, 2017 9:00 am

The Birth of CRISPR Inc (Science)

As the science grew even more compelling and venture capital (VC) beckoned, the jockeying to start CRISPR companies became intense. The research community was rent apart by concerns about intellectual property, academic credit, Nobel Prize dreams, geography, media coverage, egos, personal profit, and loyalty. A billion dollars poured into what might be called CRISPR Inc.

February 23, 2017 9:00 am

How Silicon Valley Is Trying to Hack Its Way Into a Longer Life (Time)

Rather than wait years for treatments to be approved by federal officials, many of them are testing ways to modify human biology that fall somewhere on the spectrum between science and entrepreneurialism. It’s called biohacking, and it’s one of the biggest things happening in the Bay Area.

February 22, 2017 6:00 am

Artificial intelligence grows a nose (Science)

Now, 22 teams of computer scientists have unveiled a set of algorithms able to predict the odor of different molecules based on their chemical structure. It remains to be seen how broadly useful such programs will be, but one hope is that such algorithms may help fragrancemakers and food producers design new odorants with precisely tailored scents.

February 21, 2017 9:00 am

Harvard and M.I.T. Scientists Win Gene-Editing Patent Fight (The New York Times)

The Broad Institute in Cambridge, Mass., will retain potentially lucrative rights to a powerful gene-editing technique that could lead to major advances in medicine and agriculture, the federal Patent and Trademark Office ruled on Wednesday.

February 10, 2017 9:00 am

Brain researchers fight National Hockey League’s demand for records (Science)

A pair of Boston University (BU) brain researchers is pushing back against demands by the National Hockey League (NHL) that they release data, brain pathology slides, and interview records of former NHL players and their families. The scientists accumulated the records during their research on chronic traumatic encephalopathy (CTE), a neurodegenerative disease that has been linked to repetitive head trauma.

February 7, 2017 9:00 am

USDA blacks out animal welfare information (Science)

The U.S. Department of Agriculture (USDA) today removed public access to tens of thousands of reports that document the numbers of animals kept by research labs, companies, zoos, circuses, and animal transporters—and whether those animals are being treated humanely under the Animal Welfare Act. Henceforth, those wanting access to the information will need to file a Freedom of Information Act request.

January 27, 2017 9:00 am

Japanese military entices academics to break taboo (Science)

In 1950, Japan’s scientific community, chastened by the complicity of researchers in their nation’s disastrous military adventurism, took an extraordinary vow. “To preserve our integrity as scientists, we express our firm commitment both domestically and abroad that we will never pursue scientific research for the purpose of war,” declared the Science Council of Japan (SCJ), now the nation’s equivalent to the U.S. National Academies of Sciences, Engineering, and Medicine.

January 26, 2017 9:00 am

Human tissues in a dish: The research and ethical implications of organoid technology (Science)

Growing functional human tissues and organs would provide much needed material for regeneration and repair. New technologies are taking us in that direction. In addition to their use in regenerative medicine, stem cells that grow and morph into organ-like structures known as organoids can be used in drug development and toxicology testing. The potential developments and possibilities are numerous and affect not only biomedicine but also areas of ongoing ethical debate.

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