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Blog Posts (11)

December 12, 2018

Hospitals Selling Patient Records To Data Brokers: A Violation of Patient Trust and Autonomy

by Craig Klugman, Ph.D.

I recently received an email from a community organization which asked the following question: “Are there any ethical issues with our community health plan selling its medical records to a private company?” This is not an example of a new occurrence.…

October 5, 2018

Ethics and Society Newsfeed – October 5, 2018

Politics Everything on Brett Kavanaugh and the F.B.I. Investigation “Around 2:30 a.m., the White House said in a statement it had received the F.B.I.’s investigation, which was “being transmitted to the Senate” as well. The statement expressed confidence the completed inquiry would not stand in the way of Judge Kavanaugh’s confirmation. On Wednesday, Senator Mitch […]
September 21, 2018

Ethics and Society Newsfeed – September 21, 2018

Politics Trump Rated Worse Than Other Modern-Day Presidents on Ethics “The American public’s ratings of the ethical standards of Trump and his administration’s top officials are generally much worse than their ratings of his predecessors. Trump is viewed as having lower ethical standards than all presidents since Nixon, who resigned when faced with imminent impeachment.” […]
September 10, 2018

The Experience of Long-Distance Caregiving: Dr. Elizabeth Yuko Reflects on Her Journey

Elizabeth Yuko, Ph.D., the Health & Sex Editor for SheKnows Media and Adjunct Professor of Ethics at Fordham University, explains in her recent New York Times article, “Strategies for Long-Distance Caregiving,” that her biggest worries used to be politics, finances, and meeting work deadlines. Then her mother called and revealed she had been diagnosed with […]
September 7, 2018

Ethics and Society Newsfeed – September 7, 2018

Politics I Am Part of the Resistance Inside the Trump Administration “The root of the problem is the president’s amorality. Anyone who works with him knows he is not moored to any discernible first principles that guide his decision making.” Anonymous White House Writer Isn’t A Patriot. They’re Betraying The Constitution. “I can appreciate the […]
September 5, 2018

Genomics, Big Data, and Broad Consent: a New Ethics Frontier for Prevention Science

In a new article published in Prevention Science, Dr. Celia Fisher, Director of Fordham University’s Center for Ethics Education and Deborah Layman, PhD Candidate of Fordham University’s Applied Developmental Psychology program, discuss the genomic revolution and emergence of big data to understanding the ethical implications for prevention scientists. Additionally, Fisher and Layman write about the uncertainty […]
August 24, 2018

Ethics and Society Newsfeed – August 24, 2018

Bioethics/Medical Ethics Jahi McMath, Teen At Center Of Medical And Religious Debate On Brain Death, Has Died Jahi McMath, a brain-dead patient who had been on life support since 2013, died on June 22, 2018 because of liver failure. McMath’s situation sparked a debate over whether brain-dead patients are considered physically dead. Though McMath is […]
July 23, 2018

Ethics of War AI: Keep the Humans in Charge

by Craig Klugman, Ph.D.

In 1967, the original Star Trek premiered “A Taste of Armageddon” wherein the U.S.S. Enterprise visits a planet that has ended the destructive nature of war.…

May 4, 2018

Ethics and Society Newsfeed – May 4, 2018

Bioethics/Medical Ethics Bioethics group to study technology behind ‘three-parent babies’ “Mitochondrial genome replacement technology involves combining the genetic material (DNA) of a couple – who would otherwise be unlikely to have healthy children of their own – with that of a female egg donor.” Ethicists Call for More Scrutiny of ‘Human-Challenge’ Trials “In an article […]
May 2, 2018

From Westworld to the Rest of the World: Time to Regulate the Mining of Third Party Data

by Craig Klugman, Ph.D.

You do not have control over your ideas, your passions, or even your DNA anymore. Your biological material and your ideas may be taken without your awareness of it.…

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Published Articles (5)

AJOB Primary Research: Volume 9 Issue 3 - Nov 2018

Freezing fertility or freezing false hope? A content analysis of social egg freezing in U.S. print media Lisa Campo-Engelstein, Rohia Aziz, Shilpa Darivemula, Jennifer Raffaele, Rajani Bhatia & Wendy M. Parker

American Journal of Bioethics: Volume 18 Issue 9 - Sep 2018

The Ethics of Smart Pills and Self-Acting Devices: Autonomy, Truth-Telling, and Trust at the Dawn of Digital Medicine Craig M. Klugman, Laura B. Dunn, Jack Schwartz & I. Glenn Cohen

American Journal of Bioethics: Volume 18 Issue 8 - Aug 2018

Ethical Considerations in the Manufacture, Sale, and Distribution of Genome Editing Technologies Jeremy Sugarman, Supriya Shivakumar, Martha Rook, Jeanne F. Loring, Christoph Rehmann-Sutter, Jochen Taupitz, Jutta Reinhard-Rupp & Steven Hildemann

American Journal of Bioethics: Volume 18 Issue 1 - Jun 2018

“Natural” Talents and Dedication—Meanings and Values in Sport Thomas H. Murray

American Journal of Bioethics: Volume 18 Issue 5 - May 2018

From Frankenstein to Hawking: Which is the Real Face of Science? Jonathan D. Moreno

News (33)

December 11, 2018 9:15 am

The CRISPR Baby Scandal Gets Worse by the Day (The Atlantic)

Before last week, few people had heard the name He Jiankui. But on November 25, the young Chinese researcher became the center of a global firestorm when it emerged that he had allegedly made the first crispr-edited babies, twin girls named Lulu and Nana. Antonio Regalado broke the story for MIT Technology Review, and He himself described the experiment at an international gene-editing summit in Hong Kong. After his talk, He revealed that another early pregnancy is under way.

It is still unclear if He did what he claims to have done. Nonetheless, the reaction was swift and negative. The crispr pioneer Jennifer Doudna says she was “horrified,” NIH Director Francis Collins said the experiment was “profoundly disturbing,” and even Julian Savulescu, an ethicist who has described gene-editing research as “a moral necessity,” described He’s work as “monstrous.”

December 8, 2018 10:15 am

Microsoft calls for laws to prevent facial recognition AI from hurting consumers (The LA Times)

Microsoft Corp. called for new legislation to govern artificial intelligence software for recognizing faces, advocating for human review and oversight of the technology in crucial cases.

“This includes where decisions may create a risk of bodily or emotional harm to a consumer, where there may be implications on human or fundamental rights, or where a consumer’s personal freedom or privacy may be impinged,” Microsoft’s president and chief legal officer, Brad Smith, wrote in a blog post published Thursday in conjunction with a speech on the topic at the Brookings Institution think tank.

December 5, 2018 9:15 am

Genetically Modified People Are Walking Among Us (The New York Times)

It felt as if humanity had crossed an important line: In China, a scientist named He Jiankui announced on Monday that twins had been born in November with a gene that he had edited when they were embryos.

But in some ways this news is not new at all. A few genetically modified people already walk among us.

December 3, 2018 9:00 am

Watching My Patient Die, Remotely (The New York Times)

As more and more hospitals have adopted electronic medical records, their records have become linked and you can follow your patients, virtually, hundreds of miles away.

November 12, 2018 9:00 am

A systematic literature review of individuals’ perspectives on privacy and genetic information in the United States (PLOS)

The picture of genetic privacy that emerges from this systematic literature review is complex and riddled with gaps. When asked specifically “are you worried about genetic privacy,” the general public, patients, and professionals frequently said yes. In many cases, however, that question was posed poorly or only in the most general terms. While many participants expressed concern that genomic and medical information would be revealed to others, respondents frequently seemed to conflate privacy, confidentiality, control, and security. People varied widely in how much control they wanted over the use of data.

October 25, 2018 9:00 am

Scientists argue heart stem cell trial should be paused (The Washington Post)

Sick people should not be subjected to the risks of an experiment whose underlying science has been called into question.

October 12, 2018 9:00 am

The approach to predictive medicine that is taking genomics research by storm (Nature)

Polygenic risk scores represent a giant leap for gene-based diagnostic tests. Here’s why they’re still so controversial.
October 10, 2018 9:00 am

That New Apple Watch EKG Feature? There Are More Downs Than Ups (The New York Times)

The heart monitor should not be considered a medical device and reflects wider problems with health screens.

September 19, 2018 2:00 am

A plan to advance AI by exploring the minds of children (MIT Technology Review)

The project brings computer scientists and engineers together with neuroscientists and cognitive psychologists to explore research that might lead to fundamental progress in artificial intelligence. Tenenbaum outlined the project, and his vision for advancing AI, at EmTech, a conference held at MIT this week by MIT Technology Review.

September 18, 2018 9:00 am

AI may detect depression just from your voice (Axios)

During a conversation, humans can grasp a friend’s mood or intent by relying on subtle vocal cues or word choice. Now, researchers at MIT say they have developed an algorithm that can detect if the friend is depressed, one of the most widely suffered — and often undiagnosed — conditions in the U.S.

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