Hot Topics: Technology
Written by Stephen Rainey and Christoph Bublitz Increasing use of brain data, either from research contexts, medical device use, or in the growing consumer brain-tech sector raises privacy concerns. Some already call for international regulation, especially as consumer neurotech is about to enter the market more widely. In this post, we wish to look at […]Full Article
By Neil Skjoldal Many of us have witnessed the giving of bad news to a patient. It is never a pleasant experience. Unfortunately, some medical professionals are simply not skilled enough to share bad news in a way that is both compassionate and comprehensible. And even if they are, it is still bad news after …Full Article
by Craig Klugman, Ph.D.
An article has sent shockwaves through the bioethics and end-of-life care worlds: A 78-year-old man who was unable to breathe makes his way to the hospital where he is informed in the middle of the night via a telemedicine robot that “he would likely die within days.” The physician appeared on a tablet -like screen attached to a mobile unit and delivers the bad news.…Full Article
STUDENT VOICES By Elizabeth Andersen Originally named ‘medicine babies,’ savior babies have been a more recent discovery in the medical world, presenting families with a quick fix to dealing with terminally ill children. In 2015, the Journal of Medical Ethics wrote a piece on ‘Savior Siblings’ and the ethical implications that arise when considered as […]Full Article
by Craig Klugman, Ph.D.
Move over United States, China is the new research powerhouse. In the last few months, announcements out of China talk about the first live human births from genetically edited embryos; the birth of 5 cloned, genetically edited monkeys, and most recently, announced the development of an artificial intelligencethat is more accurate than human doctors at diagnosing diseases in children.…Full Article
by Olya Kudina and Lori Bruce
Online social spaces maintain an increasing presence in our lives. Yearly, people upload around 1.2 trillion photos on social media and share personal stories and milestones through their social networks.…Full Article
Written by Stephen Rainey If ‘neurotechnology’ isn’t a glamour area for researchers yet, it’s not far off. Technologies centred upon reading the brain are rapidly being developed. Among the claims made of such neurotechnologies are that some can provide special access to normally hidden representations of consciousness. Through recording, processing, and making operational brain signals we […]Full Article
by Craig Klugman, Ph.D.
I recently received an email from a community organization which asked the following question: “Are there any ethical issues with our community health plan selling its medical records to a private company?” This is not an example of a new occurrence.…Full Article
Politics Everything on Brett Kavanaugh and the F.B.I. Investigation “Around 2:30 a.m., the White House said in a statement it had received the F.B.I.’s investigation, which was “being transmitted to the Senate” as well. The statement expressed confidence the completed inquiry would not stand in the way of Judge Kavanaugh’s confirmation. On Wednesday, Senator Mitch […]Full Article
Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants
Innovative Practice, Clinical Research, and the Ethical Advancement of Medicine
Expanding, Augmenting, and Operationalizing Ethical and Regulatory Considerations for Using Social Media Platforms in Research and Health Care
Ethical Issues to Consider Before Introducing Neurotechnological Thought Apprehension in Psychiatry
How Do We Conduct Fruitful Ethical Analysis of Speculative Neurotechnologies?
The DNA Test Results That Uncovered a Family Secret
Comparison of philosophical concerns between professionals and the public regarding two psychiatric treatments
Freezing fertility or freezing false hope? A content analysis of social egg freezing in U.S. print media
The Ethics of Smart Pills and Self-Acting Devices: Autonomy, Truth-Telling, and Trust at the Dawn of Digital Medicine
Ethical Considerations in the Manufacture, Sale, and Distribution of Genome Editing Technologies
Open conflict broke out among U.S. liver transplant centers this week, with doctors and patients in less populous parts of the country seeking a contempt of court order against the Health and Human Services Department and the nonprofit organization that runs the transplant system.Full Article
Stanford University has cleared Stephen Quake, a bioengineering professor, of any wrongdoing in his interactions with a Chinese researcher who roiled the scientific world by creating the first gene-edited babies.Full Article
An influential committee of the World Health Organization said on Tuesday that it would be “irresponsible” to try to create babies from gene-edited human embryos. The panel called for an international registry to track all research into editing the human genome.Full Article
During his State of the State address last month, California Gov. Gavin Newsom made a brief, if bold, promise.
“California’s consumers should be able to share in the wealth that is created from their data,” said Newsom, who went on to add that his team was working up a proposal for what he called a “data dividend.”
The term was simple, self-explanatory and puzzling.
A law that would compensate consumers for the use of their data by tech monoliths such as Google and Facebook, who make billions off this information, is so novel it would be a national and indeed global first.
But as appealing as a data dividend might sound, data privacy experts say it is far more easily announced than implemented.Full Article
One night in November 1999, a 26-year-old woman was raped in a parking lot in Grand Rapids, Mich. Police officers managed to get the perpetrator’s DNA from a semen sample, but it matched no one in their databases.
Detectives found no fingerprints at the scene and located no witnesses. The woman, who had been attacked from behind, could not offer a description. It looked like the rapist would never be found.
Five years later, there was a break in the case. A man serving time for another sexual offense submitted a DNA sample with his parole application. The sample matched DNA from the rape scene.
There was just one catch: The parolee had an identical twin, and standard DNA tests can’t distinguish between identical twins. Prosecutors had no additional evidence to rule out one or the other. Because they couldn’t press charges against either of the men, the case remains open nearly 20 years later.Full Article
OF ALL THE big, world-remaking bets on the genome-editing tool known as Crispr, perhaps none is more tantalizing than its potential to edit some of humanity’s worst diseases right out of the history books. Just this week, Crispr Therapeutics announcedit had begun treating patients with an inherited blood disorder called beta thalassemia, in the Western drug industry’s first test of the technology for genetic disease. But despite the progress, there remain a host of unknowns standing in the way of Crispr-based medicines going mainstream, chief among them safety.
That’s because the classic, most widely used version of Crisprworks by slicing open a strand of DNA in a specific spot in the genome and letting the cell stitch it back together. The major concern is that an army of DNA-breaking enzymes might sometimes wander astray and cause unintended mutations in places it shouldn’t.Full Article
If no one reads the terms and conditions, how can they continue to be the legal backbone of the internet?
The average person would have to spend 76 working days reading all of the digital privacy policies they agree to in the span of a year. Reading Amazon’s terms and conditions alone out loud takes approximately nine hours.Full Article
A preliminary investigation by Guangdong Province in China of He Jiankui, the scientist who created the world’s first gene-edited babies, found that “He had intentionally dodged supervision, raised funds and organized researchers on his own to carry out the human embryo gene-editing intended for reproduction, which is explicitly banned by relevant regulations.”Full Article